Ok, so here I go again asking about the wacky theories.  Hope you guys don't get annoyed with me.   A friend of mine has a condition called hip displaysia, where the bone in her hip is disintegrating.  Very painful, and she can't get around much.  At this point, she's on the list for a hip replacement, but back when it started making her immobile, she used to eat Goji berries and found it reduced her pain significantly.  She also recommended it to friends with Crohn's disease and migraines, and it worked for them too.  Now I know that clusters are completely different, but since this is a non-pharmaceutical, reasonably cheap experiment, and we're still waiting to get in to see the neuro for O2, we're probably gonna give it a try.  Absolute worst case scenario is it turns out to be a trigger and then we stop.  Just curious if anyone's ever tried this and if they had any results at all, good or bad.

Thanks for putting up with me, and my (probably) stupid questions.
J.

Absolutely. As Lance said, most of our best treatments were found by accident. I think the odds of success are low...but 30 years ago I might have snickered if you suggested huffing oxygen would help. Keep notes as to dosing, and any improvements in symptoms.

Joe

I've been using Kudzu for several years now as an alternative to Verap and Lithium, and have found it to be equally effective if not better, and without the side effects.  In fact, I just upped my dosage about a week ago and have been hit with nothing higher than a K4in the last four days.  (knock on the head in lieu of wood

There are several suppliers and strengths available.  I've found "Nature's Way" 613mg capsules to work best for me.  I buy them online from Swansonviatamins.com for about $6.00 a bottle of 90.  There are sources as well, but I've found Swansons to have the best service and they will price match any you find.  (No, I don't own stock in them, but wish I did! )  Watch their ads closely.  Sometimes you can get free shipping, etc.

As to the Goji berries, go for it.  I don't hold out a lot of hope for you, but they are supposed to be nutritious and good for other things.  I had them suggested to me also, but thought they were rather pricey for the benefit that was possible and never tried them.  Please pass along your results good or bad.  That is how we all learn.

Jerry

Great warning on kudzu and triptan, Garys_Girl. As to mixing verapamil and taurine...it's not that you can't, as an abortive, occasionally. It's you don't want to take both prophylatically daily. You can use the energy drinks if you're on verapamil (I know, I am and I do) it's just good to be judicious in its use. I had trouble explaining this to a well meaning friend who went out and bought me a bottle of taurine pills, and wanted to know why I wasn't using them if they helped. Even OTC additives have side effects. So does ice cream, for that matter; and chocolate...and donuts...and