I support my boyfriend who's had CH for almost 20 years. Second to himself, his lovely, gentle-souled mother must be the person who mosts wants to see him "cured." (I'll happily take 3rd place.)
The problem is that she refuses to believe that there is no known cure, and she hates doctors and drugs and medical science (and she's a nurse?) to the point where she won't even go with him to hear what the doctor says, or read any information about cluster headaches. She truly believes in the theory that all physical symptoms stem from feelings and memories within our subconscious mind that we haven't processed, dealt with, or lived up to yet. Therefore, if we pray to our own spirit/self/soul to make us conscious of whatever is causing the symptom, and then deal with the matter, the body will remove the symptom itself.
(Everyone still with me? She explains it so sweetly that you just want it to be true.) Basically she believes that if he meditates and prays to himself he will be cured, and there's just no telling her otherwise.
We've tried to tell her that any sufferer would do ANYTHING to be cured, and that if that actually worked, everyone would already be doing it. She said (this is going to sound offensive but she didn't mean it to...English isn't her first language) "Everyone just wants to run to a doctor and say give me pills, give me drugs. They are too lazy to just educate themselves and learn to fix it."
Anyway, I'm not posting this to be hard on her. And I don't want any disrespectful responses. I'm hoping that maybe someone out there, in all their desperation, has heard of this or tried it, and will post their experience/results. Maybe she's really on to something and all you C-Heads can try it! Wouldn't that be awesome! Cheaper than meds and easier than dancing all night? And permanent results?! Who wouldn't do that if it worked? (Honestly I'm trying not to sound sarcastic.) Maybe it wouldn't hurt if he tried it himself just to put her mind at ease, but he's in the middle of a wicked cycle now and as much as he knows she's trying to help, it's also stressful that she doesn't (and seemingly doesn't want to) understand.
So again, if you know anything about this stuff; if you've tried it or anything like it; if you think you have anything to say that might help a wonderful, frightened, heart-aching mother learn to truly support her son; or if you have the words for a son to share with his mother then please, PLEASE tell us your story.