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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Help, out of work, no insur and the beast returned

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Help, out of work, no insur and the beast returned (Read 9237 times)

boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Help, out of work, no insur and the beast returned Reply #25 - Sep 1^st, 2010 at 12:25pm Generic Topomax is about $16 a month for me " " Verapamil is about $12 " "
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Brew

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Re: Help, out of work, no insur and the beast returned
Reply #26 - Sep 1^st, 2010 at 12:56pm

Peter B wrote on Aug 31^st, 2010 at 10:33pm:

for what its worth - methysergide worked well for me in my last cycle and you can get it from a Canadian pharmacy relatively cheaply....not a good med if you are chronic (can't be on it for more than 6 mo) but perhaps something to discuss w/ your doc....

curious about others experiences - what is the lowest cost preventative out there? (legal, that is)

You can get methysergide maleate from any compounding pharmacy in the US with a prescription. Cost may be another matter entirely.

And since you're interested only in preventatives that are both cheap AND legal, I won't tell you what works for me.

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Help, out of work, no insur and the beast returned Reply #27 - Sep 1^st, 2010 at 3:41pm Joe's lithium runs us about $4 a month (insurance copay)
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boski

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Re: Help, out of work, no insur and the beast returned
Reply #28 - Sep 2^nd, 2010 at 12:59am

QnHeartMM wrote on Sep 1^st, 2010 at 3:41pm:

Joe's lithium runs us about $4 a month (insurance copay)

What about with no insurance? How bad is Lithium?
Doc. is thinking of a switch for me since still having hits everyday after 4 months of meds. She seem to take it more
serious than I do. Is there something I'm missing? I just
learn to live with it and still 3 is better than 7 or 8.
switching now could be messy, no?

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Brew

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Re: Help, out of work, no insur and the beast returned
Reply #29 - Sep 2^nd, 2010 at 7:40am

boski wrote on Sep 2^nd, 2010 at 12:59am:

Not if you're adding it to the verapamil instead of merely replacing it. Verapamil + lithium is known as the "chronic cocktail" for a reason. It worked very well for me.

Even at retail price, lithium carbonate is very cheap. I think a one-month supply might run you $15 or $20.

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Help, out of work, no insur and the beast returned Reply #30 - Sep 4^th, 2010 at 12:39am Can you run Lithium, Verap & Topomax? Or would the Topomax have to go? Thanks for your answer Brew. Boski
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painfulnoodle

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Re: Help, out of work, no insur and the beast returned
Reply #31 - Sep 6^th, 2010 at 9:48am

Update ... went to my Neuro last week ... he refilled all my scripts and started me on Depakote ... has anyone got any tips about this drug? Thus far, I had two hits the first night and only a few shadows since ... seems to be working. Said he'd order me some more O2 if the Depakote didn't work. Keeping fingers crossed.

Red

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Help, out of work, no insur and the beast returned Reply #32 - Sep 6^th, 2010 at 9:56am boski wrote on Sep 4^th, 2010 at 12:39am: Can you run Lithium, Verap & Topomax? Or would the Topomax have to go? Thanks for your answer Brew. Boski Don't know. I never took topomax.
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his wife

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Re: Help, out of work, no insur and the beast returned
Reply #33 - Sep 6^th, 2010 at 11:52am

Depakote didn't work for my husband. You might want to have O2 on hand all the time regardless of what meds you're on. We keep his filled year round, never know when you'll need it.

Contact your local community action agency. You can find one in your area by going to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

;

There are over 1,000 across the US that provided social services such as rent/mortgage assistance, utility payments, food, some have Rx programs and federal programs like weatherization and HEAP (home heating assistance). If they can't help you with meds they may be able to help with something else that will free up money for meds.

Good Luck

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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Help, out of work, no insur and the beast returned Reply #34 - Sep 7^th, 2010 at 3:53pm Thanks Brew! She is just upping me on everything! Just keep feeding the beast more! As it is I sit I sleep, not good on the subway. Missed a few stops that way. Red, Hope your doing well!
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chbob04

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Re: Help, out of work, no insur and the beast returned
Reply #35 - Sep 9^th, 2010 at 9:17pm

Red,

This may be slightly off topic. You might want to check and see if your former employer is on the list of companies who terminated workers due to foreign competition. I did not know it, but mine was (EDS). If so, you would be able to apply for TAA and TRA

Those who qualify may be entitled to weekly TRA (income) after their unemployment compensation is exhausted.

What happened in my case was that the work that used to be done here was "Best Shored" to cheaper labor in India, Mexico, and elsewhere.

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painfulnoodle CH.com Junior Offline I love YaBB 1G - SP1! Posts: 66 Dayton, TN Gender:	Re: Help, out of work, no insur and the beast returned Reply #36 - Sep 10^th, 2010 at 1:00am May be worth a shot ... my company was based in Montreal, CA. I'll check into it. Thanks Red
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boski

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Re: Help, out of work, no insur and the beast returned
Reply #37 - Sep 10^th, 2010 at 2:20pm

Hey Red:

How the Head?

Just had a hit and I tried taking even less imitrex. Not the
the best hit to try cause I waited too long to shoot the beast
Well, in my pain and ready to say I missed with that shot and
try again I started to feel it lighten a little, and then ever
so little more, ok it's working I think. Yeah, baby it issss,
wow, it worked! Ok, on the insulin needle i only drew up if
that's the term 5 to 6 units on a 100 unit syringe, that's not
much! It worked! Ok, it was only one test, I will repeat
test next few hits and report back. This is great news for
me as I am running to the critically low level on my Imitrex.

Regards,

Boski

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Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: Help, out of work, no insur and the beast returned Reply #38 - Sep 10^th, 2010 at 2:38pm Clusterbusters + Oxygen = success for me & many more! Not to mention, the cheapest way to go when uninsured. It's kind of sad that natural remedies like these work better than the pharmaceutical stuff. It all comes down to money. End of my babble!
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Help, out of work, no insur and the beast returned Reply #39 - Sep 10^th, 2010 at 7:05pm Yes, Chad: I will try the maintenance magic tour cycles in the future. But, for those unwilling to go that route for what ever the reason. I put up the info about imitrex dose. Dam, if eating some dam plants will stop this from coming I'll eat my Arse off....
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painfulnoodle CH.com Junior Offline I love YaBB 1G - SP1! Posts: 66 Dayton, TN Gender:	Re: Help, out of work, no insur and the beast returned Reply #40 - Sep 10^th, 2010 at 9:04pm AMEN! Depakote not working like I had hoped.
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painfulnoodle

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Re: Help, out of work, no insur and the beast returned
Reply #41 - Sep 12^th, 2010 at 6:49pm

Ok ... this may sound like a silly question, as I've been using Imitrex for 10 years .. but I'm trying the insulin syringes and hating that I waited so long to do so ... duh!

My question is this, since I have no directions for use with all of my outdated injector packs ... do you have to shoot into a muscle or is it just as effective in fatty tissue?

My sis helped with my first syringe injection last night and said "this is going to hurt like hell in a muscle" ... to which I told her "that's where I always do it" ... it was hardly even a prick compared to the injector. Just wondering if it's even less painful but still effective in the stomach .. as I have plenty of "fatty tissue there"! That's where she takes her insulin.

Thanks,

Red

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bejeeber

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Re: Help, out of work, no insur and the beast returned
Reply #42 - Sep 13^th, 2010 at 1:03am

Go for the belly fat! Absolutely. Practically painless there and very easy to manage injecting yourself.

Many of us inject this way - I found out about it here myself.

It's just supposed to be sub cutaneous.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Help, out of work, no insur and the beast returned Reply #43 - Sep 13^th, 2010 at 2:25am You just want to shoot it under the skin 1/4" needle If you shoot muscle 1" it will hurt later, I did that no fun! Leg got very sensitive to the touch of pants not good.
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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Help, out of work, no insur and the beast returned Reply #44 - Sep 16^th, 2010 at 11:19am Red: You hanging in?? Hope you doing ok! Peace, Boski
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painfulnoodle

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Re: Help, out of work, no insur and the beast returned
Reply #45 - Sep 16^th, 2010 at 10:00pm

Had a weird few days ... seemed to be easing up ... then I got three hits yesterday and one today. I don't think the Depakote is working, but they gave me 6 boxes (120 pills) for free to try, so giving it a chance.

I'm really hoping I've peeked in this cycle and I'm just tapering off. I am sleeping at least.

How are you? Trex stretching?

Red

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boski

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Re: Help, out of work, no insur and the beast returned
Reply #46 - Sep 17^th, 2010 at 2:24am

Hey Red:

Glad to see your doing. Sorry to hear your taking hits still!
It has been so long since I had tried Depokote I don't
remember how they did it for me, but I think they used it
together with something else.
Yes, I am using 1/2 of what I did before and it's still kills
the beasterd!!!!! Hahaha May take a bit longer so I try and take
the shot as early as I can otherwise I just wait it out
hoping no one hears me.....

I have 7 vials and I can get 15 more on the 29 I think I'll
make it. Each vial is killing 6 or 7 so not bad, then ad a few
more with O2.

Have you figured it all out with the needle and all? Never
called so I assumed you figured it out or got help some
where. If not feel free to jingle me Red offer still on table.

Hang in there hope it will all end soon and we will get a
vacation from this again!

Peace,

Boski

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painfulnoodle

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Re: Help, out of work, no insur and the beast returned
Reply #47 - Sep 20^th, 2010 at 8:04am

Hey Bo ... sorry I never called. I got to Memphis and things sort of went south. I have a sis battling Lukemia and she ended up back in the hospital while I was there visiting, so I stayed over for a bit to help my Mother out. Back in GA now.

Sis helped me set up my syringes and gave me a shot ... piece of cake. Now I just have to do one myself! Hopefully I don't get a bad enough hit to merit one. I really think I'm coming off the backside of my cycle. It's been almost two months now, so I should be if this thing holds true to a normal pattern ... like there's anything normal about any of this!

Sorry you're still getting hits. Are you using the generic Trex? My Dr had no samples of any kind of sumatriptan, injections or pills, but did give me a lot of Depakote samples. Don't know if it's working or now, but I'm giving it a chance.

Ok, going to go try and be productive. Have a great day!

Red

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jeffh

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Re: Help, out of work, no insur and the beast returned
Reply #48 - Sep 23^rd, 2010 at 8:06am

I too have no insurance. Once upon a time when I did have insurance many tests, medications, and therapies were tried.I have had success at preventing and, or lessening the frequency and severity of my cluster headaches with the use of the herb feverfew. My headaches usually come in cooler weather, winter months. I take feverfew everyday during this time and take extra doses when I begin to feel one coming on. It is a harmless herb with no side effects that I have experienced except the relief and prevention of custer headaches. I would like to hope I never have another one, but get that knowing, unbearable onset of pain from time to time.

Good luck,
Jeffh

« Last Edit: Sep 23^rd, 2010 at 8:07am by jeffh »

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Re: Help, out of work, no insur and the beast returned
Reply #49 - Sep 27^th, 2010 at 8:54pm

Hi, sorry about the new cycle. My boyfriend has suffered for twenty-some years. I am a new member to the site but have been reading the board for several years.

I am a nurse and have signed several patients up with different patient assistance programs. go to Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

for info about getting free supplies of imitrex.

Hope this helps

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