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kobzar CH.com Newbie Offline cluster headaches suck! Posts: 6 new york state Gender:	new here. Jul 28^th, 2010 at 2:00pm hi, I'm 45, male, blessed with beautiful wife for 23 years. with two boys, 19 and 23. have been a cluster headache victim for 20 years now. i just found this site a week or so ago. nice to know I'm not the only one with alot of the same pains and feelings that i have. GOD Bless!
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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: new here. Reply #1 - Jul 28^th, 2010 at 2:06pm It is nice to find this place. I cried when I first started reading the stuff here. Finally some one who really understands.....
Back to top	Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&& IP Logged

feneq CH.com Junior Offline uncommented Posts: 31 germany Gender:	Re: new here. Reply #2 - Jul 28^th, 2010 at 2:35pm welcome to this huge cluster-family, i already started to love this forum because it is very dynamic, scrutinizing, sympathetic and caring (more than my family ever did)
Back to top	my cluster is my partner - loyal, laying me down often enough and can make me cry !! IP Logged

Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: new here. Reply #3 - Jul 28^th, 2010 at 2:40pm feneq wrote on Jul 28^th, 2010 at 2:35pm: it is very dynamic, scrutinizing, sympathetic and caring That's a pretty fair description.
Back to top	« Last Edit: Jul 28^th, 2010 at 2:41pm by Agostino Leyre » Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&& IP Logged

feneq CH.com Junior Offline uncommented Posts: 31 germany Gender:	Re: new here. Reply #4 - Jul 28^th, 2010 at 2:58pm thanks, it is very much how i see & feel it
Back to top	my cluster is my partner - loyal, laying me down often enough and can make me cry !! IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: new here. Reply #5 - Jul 28^th, 2010 at 3:25pm Hey Kobzar welcome to the board. Do you have an effective treatment regimen for your CH? A doc who cares? Do you have oxygen yet? Glad you found us hope we can help you out! Joe
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shellcory CH.com Junior Offline I Love CH.com! Posts: 71 Victoria, Australia Gender:	Re: new here. Reply #6 - Jul 29^th, 2010 at 2:42am Welcome! The people here, their information, experience and support are truly awesome! May your journey through life be a little easier now that you have found this wonder. Goodluck with it all and if you ever need to chat just drop us a line. Regards Shell
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kobzar

CH.com Newbie

Offline

cluster headaches suck!

Posts: 6
new york state
Gender: male

Re: new here.
Reply #7 - Jul 29^th, 2010 at 10:43am

thanks for the welcome everyone. yes i am on depakote and verelan year round. i have imitrex injections, this year doc has added imitrex pills which do work but not as quick as the injections. when it gets to where i am in the worst of the cycle i am put on prednisone also, sometimes before then. once prednisone is added they fade away and i usually am good to go for another 2 years. i did try years ago botox injections. big mistake, ended up getting 4-6 a day short time after. thanks again for the welcome. wish you all the best.

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Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: new here.
Reply #8 - Jul 29^th, 2010 at 4:22pm

Kobzar.

Please check out the following link on how to obtain a properly written prescription for oxygen inhalation therapy as an abortive for your cluster headaches:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

It contains a couple downloads that are helpful to take along when you see your doc and ask for an Rx for oxygen.

Take care and hang in there,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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bejeeber

CH.com Hall of Famer

Offline

Posts: 1359
Gnashville
Gender: male

Re: new here.
Reply #9 - Jul 29^th, 2010 at 6:46pm

Hey Kobzar, 'ol Batch and Giussepi aren't kidding around when they bring up the newer, more effective approach to O2 therapy - you'll want to look into that over at the oxygen info link to the left of this page.

Hopefully you've learned about how to stretch those imitrex injection doses? If not, this is a must read: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

People often come here for the community and camaraderie, only to end up learning some valuable new ways to fight this beast!

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: new here. Reply #10 - Jul 30^th, 2010 at 8:49am And you've read about the aborting effects of Red Bull, or Monster, or any energy drink with caffeine plus taurine? And melatonin? All good interventions when coupled with proper O2 use. lance
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: new here. Reply #11 - Jul 30^th, 2010 at 10:41am And to add to Wimsey's.....I use 02 to abort, but drink a sugar free red bull while I'm aborting. 02 knocks it down, the red bull seems to prevent the "come backer" that I'm prone to within 10-20 minutes of shutting off the 02. Been an effective 1-2 punch for me. Red Bull also works well for those annoying shadows between hits. Joe
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kobzar CH.com Newbie Offline cluster headaches suck! Posts: 6 new york state Gender:	Re: new here. Reply #12 - Aug 1^st, 2010 at 8:31am thanks everyone for the advise. i have asked doc before about oxygen, oh must have been like 15 years ago. cant remember why he didn't want to have me try it. seems to me be safer than the shots. though i would not be able to have it at work. i will look into it more. thanks again GOD Bless
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