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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Tpoamax

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Tpoamax (Read 1473 times)

Suzanne Panaro CH.com Newbie Offline I Love CH.com! Posts: 3	Tpoamax Jul 24^th, 2010 at 3:17am Going on 32 years suffering from CH. First time prednisone has not worked in breaking the cluster. Verapamil never worked. Anybody had any success with Topamax?
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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Tpoamax Reply #1 - Jul 24^th, 2010 at 4:01am I'm on Verap at 600mg and Topomax Dopo 125mg getting 1-2 a day. also had 2 nerve bloc shots. was getting 7-8 so much better Worth a try, unless you really need brain for work! Have a look at clusterbuster.com
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Tpoamax Reply #2 - Jul 24^th, 2010 at 6:04pm Some call it "Dopey Max" because of potential side effects, several on the board swear by it. Worth a trial run. Joe
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Suzanne Panaro CH.com Newbie Offline I Love CH.com! Posts: 3	Re: Tpoamax Reply #3 - Jul 24^th, 2010 at 8:31pm I'm already a little "dopey" so maybe now I'll have an excuse! Drank a glass of wine today to celebrate a birthday and NO headache! Felt like it was MY birthday. Trying melatonin tonight for the first time. Thanks for advise from the two of you on the topomax.
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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Tpoamax Reply #4 - Jul 25^th, 2010 at 9:58am Oh, wine is a no no for most, now I don't drink so I have no Idea if it triggers, but most say it does. Again good luck finding a solution. Peace.
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Brew

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Re: Tpoamax
Reply #5 - Jul 25^th, 2010 at 10:38am

Suzanne Panaro wrote on Jul 24^th, 2010 at 8:31pm:

I'm already a little "dopey" so maybe now I'll have an excuse! Drank a glass of wine today to celebrate a birthday and NO headache! Felt like it was MY birthday. Trying melatonin tonight for the first time. Thanks for advise from the two of you on the topomax.

Don't sell the melatonin short if it doesn't work right away. Many people don't report success until they've been on it for up to a week. Keep at it!

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Jim L CH.com Sponsor Offline I Love CH.com! Posts: 84	Re: Tpoamax Reply #6 - Jul 27^th, 2010 at 10:38am Ah, I long for a glass of wine! I tried topamax for about three weeks and, as some have mentioned, I stared to get to the middle of a sentence and forget what I was saying. Not too cool in the workplace! As many have and will say, oxygen is an amazing abortive solution. Jim
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boski

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CH'S Suck for all that
Suffer / The Pain The
Pain

Posts: 208
NYC
Gender: male

Re: Tpoamax
Reply #7 - Jul 30^th, 2010 at 2:17am

Yes I agree but abortive!

I want no pain! I would rather be a dope!

I'm out of work at the moment and if I can forget that who cares. Wink

~

Just saying I would prefer not to have to abort rather not have one, cause even aborting can be really painful.

But if you can deal with the pain, the side effects are much
less with O2 no question. Everyone has the way that works
best for them and are refining it to match changes in the
times and their life. Doppie-to-the-max!

One side I do Not like:

I was learning how to play Guitar:
Lost total interest over the last 4 weeks. Haven't touched
it! Used to sit here playing for hours since not working.
Hope it comes back. Anyone else have some sides like this?

Have a great day,

« Last Edit: Aug 4^th, 2010 at 11:13am by boski »

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