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Birdebyrd CH.com Newbie Offline I Love CH.com! Posts: 2	I had 9 years pain free Jun 24^th, 2010 at 1:48pm I had nine years pain free. I took matters into my own hands (I'll never forget it, because it was on the same day the WTCs came crashing down). I'm 50 years old, and just started on yet another dance with this crap... I thought we were supposed to outgrow it... well, I haven't outgrown it.
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Birdebyrd

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Re: I had 9 years pain free
Reply #1 - Jun 24^th, 2010 at 1:53pm

I should have mentioned the treatment involved dried p. cubensis. I also used to frequent this board in the late 90s early 00s and remember some of the older folks on here but lost contact with most of them. I stockpiled some imitrex injections back then, and had some left, most of which are about 10 yrs out of date. It still works, though. I just doubt it'll last me before my alternative therapy is available

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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: I had 9 years pain free Reply #2 - Jun 24^th, 2010 at 1:54pm Birdebyrd wrote on Jun 24^th, 2010 at 1:48pm: I thought we were supposed to outgrow it... well, I haven't outgrown it. Neither have I. Welcome to CH.com. Sorry to hear you're getting beaten up again, however. Nine years is a darn good run. Best, George
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anthony g CH.com Old Timer Offline I Love CH.com! Posts: 318 manhattan nyc Gender:	Re: I had 9 years pain free Reply #3 - Jun 24^th, 2010 at 4:29pm HEy man I had 10yrs cluster free until this past christmas it came back with avengance! I too will be 50 next week,so I guess we dont outgrow it! Sorry and happy your back! Alot has changed so much more out there for help! 02 is a lifesaver! Imitrex tip help's alot too! keep strong my friend! Anthony
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jayhedges CH.com Junior Offline I Love CH.com! Posts: 55	Re: I had 9 years pain free Reply #4 - Jun 24^th, 2010 at 5:08pm I'm 56 and on day 14 of my first CH. Getting a handle on the o2 and looking for a long term plan after this cycle. I'll be prepared next time. Sorry to hear its back for you. I think the age thing is crap.nThere a lot of info here now so hopefully things will get better fast. Red Bull is new since 2001 so give that a shot.
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GrandPotentate CH.com Old Timer Offline mmmmmmmmmm Posts: 254 Michigan City, IN USA Gender:	Re: I had 9 years pain free Reply #5 - Jun 25^th, 2010 at 10:37pm I was annual for a while, then I've had a couple breaks of several years each. I guess we might outgrow it when we get old. There are still no magic cures. I hope your cycle is quick and easy.
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wimsey1

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Re: I had 9 years pain free
Reply #6 - Jun 26^th, 2010 at 8:03am

I started when I was 36, and 23 years later, there stilll heeere! The thought used to be they didn't last past 15 years. Oh well. Now, I'm chronic and have been for 3 years. But I am managing the pain. Hooray for O2 and Monster energy drinks. I particularly like Sniper...kind of like taking a shot at the beast! Sorry you're back; and glad to have you back! Prayers for another pf 9 years! lance

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: I had 9 years pain free Reply #7 - Jun 27^th, 2010 at 11:03am wimsey1 wrote on Jun 26^th, 2010 at 8:03am: The thought used to be they didn't last past 15 years. Source? I've never heard that before.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: I had 9 years pain free Reply #8 - Jun 28^th, 2010 at 10:08am There's sure a lot of old farts on this board! I'm 50...in month 7 of a cycle STILL hoping I'll outgrow the damned things! I'll continue the oxygen chant. Been a life changer for me. Read the link on the left, oxygen info" and give it a shot. Has all but eliminated my trex useage. Joe We should start an AARP CH Group!
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BobG CH.com Hall of Famer Offline Posts: 6422 St. George, UT Gender:	Re: I had 9 years pain free Reply #9 - Jun 28^th, 2010 at 12:40pm At about age 52 my clusters stopped, except for a few random attacks, until age 59. Then they came back with a January to March cluster each year for the last 4 years. The good thing is the Kip is only in the 5 to 7 range and usually only one attack each night instead of the 3, 4, 5 attacks of the past.
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wimsey1

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Re: I had 9 years pain free
Reply #10 - Jun 28^th, 2010 at 6:39pm

Brew wrote on Jun 27^th, 2010 at 11:03am:

wimsey1 wrote on Jun 26^th, 2010 at 8:03am:

The thought used to be they didn't last past 15 years.

Source? I've never heard that before.

Sorry, Brew, it's lost in my pre-CH.com days when I was getting bad info. Could have been my neuro at the time? It was wrong as so many of us old farts attest. I'll rack my brains a little bit but I'm guessin' it's gonna remain anecdotal, and worth nothing anyway. Blessings! lance

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