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Why such a backlash against narcotic treatment? (Read 6991 times)
foolclip281
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Why such a backlash against narcotic treatment?
Jun 23rd, 2010 at 12:33pm
 
I have CH and I find that narcotics are many times VERY effective in relieving the pain. Maybe not all the way, or as quick as imitrex, but they sure are cheaper... And I find they very much work. I don't see how many of you who clearly understand pain as we all know it, can seemingly get on this high horse like your some kind of MD and chastise people who are just asking questions. A pain pill may not work for you for a CH but if it works for someone else don't scream at them over the computer, tell them how ignorant they are and how smart you are, tell them how you know exactly what works and what doesn't. It's annoying and to new guys to this site like me makes you lose all credibility as someone to take advice from. I don't care if you've got 826,000 posts and have been on here for X amount of years, if you're mean to people and your way is the highway, you are not helping people. If a pain med works for someone don't tell them otherwise, remember how we all feel when we're told "Oh it's just a headache, get over it, I get those all the time." Wink
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Re: Why such a backlash against narcotic treatment?
Reply #1 - Jun 23rd, 2010 at 12:41pm
 
Mainly because if you take that much of a narcotic, you will eventually get hooked on them.

Much better options available out there....that work better.....without the nastiness of addiction.

That being said there are a couple of people on here that have used them temporarily as part of an Doctor's overall strategy to get a handle on a  particularly hard case. TEMPORARY and TRANSITIONAL are the key words.

Bill
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Re: Why such a backlash against narcotic treatment?
Reply #2 - Jun 23rd, 2010 at 12:45pm
 
foolclip281 wrote on Jun 8th, 2010 at 6:03pm:
I want to kill myself when I get CH... when i'm not having one i'm a happy go lucky guy. I've been to psych wards myself, so I understand his pain.  Basically I know many people on this site will disagree with me on my suggestion but in a circumstance where he is in HORRIBLE pain, mentally and physically, go to the ER and get some drugs, ASAP... then when the pain is under control in the moment get moving toward a non-narcotic approach until he finds something that works for him.

Your quote

foolclip281 wrote on Jun 9th, 2010 at 4:34pm:
Hello,
To tell the truth I don't know what I need, I guess I just came to this sight seeking others who "felt my pain" to use a popular cliché.  It seems maybe I just needed to vent, but I still value the advice.  I've received more advice in 2 days than the last 2 years in regards to headaches in general.  Maybe I tried to spill to much of who I am at once, to maximize my feedback results, and you view it as me being arrogant, ignorant, unable to focus, or unable set a goal to get working toward a pain free lifestyle.  I don't know, I could care less. I have found many people so far on this site willing to listen, and give loving words of encouragement... Then again I have already been crossed by many of these "online experts" that have a virtual chip on their shoulder because they have been members since 2000 b.c. and have ten billion posts to their names. They ridicule, they judge, they post like editors, and talk like doctors.  They may not mock outright, but undercover out the side of their mouths.  I know their types; I just read their replies and keep it moving.  I don't know why you say I refuse to see a headache specialist; I have in the past, and plan to again.  Did it occur to you I was gathering all the info. I could prior to making an appointment? Again, I don't know why people get so agitated so easily.  About the codeine thing, well I’m sorry but it did take away the pain.  I don't care how against it some may be, what works for one may not work for others, do I plan/seek/desire to use that as a way to treat my pain?  No... but I was in a desperate situation at the time on the frontline of a battle I am just beginning so I chose to go that route, for now. I have an addictive nature and avoid narcotics like the plague now, but as an apparent “sufferer” yourself I’d expect a bit more understanding from someone in my own shoes, as opposed to an average joe who doesn’t know the pain of these things.  I hope that clears it up for you, good luck with your endeavors and God bless.

Again your quote
foolclip281 wrote on Jun 23rd, 2010 at 12:25pm:
Opiates do help for clusters, maybe not every person, but they do for some, i take tram 50 mg 3 times a day and while it's not as effective as it use to be, it's better than nothing.

Again your quote.

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Re: Why such a backlash against narcotic treatment?
Reply #3 - Jun 23rd, 2010 at 12:50pm
 
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Re: Why such a backlash against narcotic treatment?
Reply #4 - Jun 23rd, 2010 at 1:16pm
 
Take all the narcotics you want pal....it's not helping sh!t other than getting you addicted.  Even triptans don't make you high.  The doctor that prescribed them to you is even more of a jackass. 

You'll never find a quicker and MOST natural abort method as oxygen.  Once you try it, you'll be hooked.  Now, why haven't you mentioned anything about it yet?
It's a hell of lot cheaper and safer.

Do whatever you want to treat your clusters.  When you quadruple your opiate doses due to your tolerance level, i'll still be aborting my hits in 5 minutes or less with no wait using pure O2.
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Re: Why such a backlash against narcotic treatment?
Reply #5 - Jun 23rd, 2010 at 1:21pm
 
foolclip281 wrote on Jun 23rd, 2010 at 12:33pm:
If a pain med works for someone don't tell them otherwise, remember how we all feel when we're told "Oh it's just a headache, get over it, I get those all the time." Wink


I don't see the parallel.  I've seen no one dismiss your pain, just your chosen treatment for it.  And make no mistake--this is what you have chosen to do.  There are other ways to treat this condition.  Ways that are more effective, for more people.

We talk about experiences--what has worked, and what has not.  Most people here, at one time or another, have been prescribed narcotics for CH.  In the majority of cases, narcotics simply don't work.  At all.  Narcotics, in general, are ineffective for neuropathic pain, and CH is a neuropathic event.  It's experience you're running into, over and over again, not someone pontificating at you from a high horse.

When you say something that is counter to the experience most people have, do you expect no one to disagree with you?  I can't think of any place, anywhere where that might happen.

Best,

George 
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Re: Why such a backlash against narcotic treatment?
Reply #6 - Jun 23rd, 2010 at 1:22pm
 
All you're looking for is validation. Nobody's being mean - it's just that many of us have been down that road, and are here to tell you that it leads nowhere. It's a Nowhere Road.

It's also quite apparent that nobody here is going to change your mind. Fine. Just don't try to drag any other newbies down that Nowhere Road with you, cuz we'll jump in the middle of your shit for it.
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Re: Why such a backlash against narcotic treatment?
Reply #7 - Jun 23rd, 2010 at 1:27pm
 
Brew wrote on Jun 23rd, 2010 at 1:22pm:
, cuz we'll jump in the middle of your shit for it.

I just bought new shoes, I think I'll just point out how incorrect his statements are. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
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Re: Why such a backlash against narcotic treatment?
Reply #8 - Jun 23rd, 2010 at 1:36pm
 
Just found this quote of yours in the thread below this one:

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foolclip281 wrote on Jun 7th, 2010 at 12:37pm:
I take tramadol 50 mg. 3 times a day... it worked for a while but now they are back... when i get a ch at full force tramadol is like throwing a pebble in the ocean....


What's the deal, here?  Or are we not supposed to ask any questions?

Best,

George
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« Last Edit: Jun 23rd, 2010 at 1:40pm by George » 
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Re: Why such a backlash against narcotic treatment?
Reply #9 - Jun 23rd, 2010 at 1:42pm
 
if they help you take them, there are others on this board who take fentanyl or other opioids and have some results with them.

Though some people here had really bad experience with opioids and just drasticaly warn others before they have to travel same bumpy and dangerous road.

Hope this helped somehow.
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Re: Why such a backlash against narcotic treatment?
Reply #10 - Jun 23rd, 2010 at 2:20pm
 
You are free to do what you wish, but we who have been there and have paid the price for using opioids will do all we can to keep others from them.  I was put on several years ago when there was diddly known about this disease and getting off of them was pure torment.  I'd rather have the CH than go through that again.  In fact I went for almost 20 years totally med free because all anyone wanted to give me was pain meds and I WILL NOT GO THAT ROUTE AGAIN!!!  You do what you want.  Please have your family forward your address so we can send flowers when you OD finally.

Jerry
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Re: Why such a backlash against narcotic treatment?
Reply #11 - Jun 23rd, 2010 at 4:34pm
 
"if they help you take them, there are others on this board who take fentanyl or other opioids and have some results with them."

Just ask Athos,oh wait,you can't,fentanyl killed him.A good man and my friend,may he rest in peace.
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Re: Why such a backlash against narcotic treatment?
Reply #12 - Jun 23rd, 2010 at 5:06pm
 
What set you off this time, dude? Last time you jumped all over everybody it was something like this. But, sometimes negative attention is better than no attention at all...? I said it before, I'll say it again: you're trying too hard.  Roll Eyes
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Re: Why such a backlash against narcotic treatment?
Reply #13 - Jun 23rd, 2010 at 7:21pm
 
Quote:
foolclip281


Appropriate
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Re: Why such a backlash against narcotic treatment?
Reply #14 - Jun 23rd, 2010 at 7:54pm
 
I fail to see why someone would choose an illegal addictive narcotic to treat CH rather than Non illegal, non addictive oxygen, imitrex or verapamil; if the Non Addictive, non illegal stuff works! 

Not to mention that narcotics eventually cause diminished mental capacity and more often than not tend to worsen the already horrendous affects of CH.

Nuff said...   Roll Eyes
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Re: Why such a backlash against narcotic treatment?
Reply #15 - Jun 23rd, 2010 at 8:01pm
 
I was prescribed a couple narcotics during one of my first cycles almost 20 years ago and they did absolutely nothing to cool that lightning.  My GP warned against using them as it appears they can contribute to rebound headaches (ioccassionally use some for disc problems).  O2 is the nectar.  I use Imitrex when necessary and occassionally Zomig, but O2 does the job cleanly and effectively.  It's a relief to have found the info here after 20 years.
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Re: Why such a backlash against narcotic treatment?
Reply #16 - Jun 23rd, 2010 at 8:20pm
 
JustNotRight wrote on Jun 23rd, 2010 at 7:54pm:
I fail to see why someone would choose an illegal addictive narcotic to treat CH rather than Non illegal, non addictive oxygen, imitrex or verapamil; if the Non Addictive, non illegal stuff works! 

Not to mention that narcotics eventually cause diminished mental capacity and more often than not tend to worsen the already horrendous affects of CH.

Nuff said...   Roll Eyes

I don't think he was talking about heroin. Tramadol is perfectly legal with a prescription. It's just a supremely bad idea for CH.
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Re: Why such a backlash against narcotic treatment?
Reply #17 - Jun 23rd, 2010 at 8:23pm
 
Brew wrote on Jun 23rd, 2010 at 8:20pm:
JustNotRight wrote on Jun 23rd, 2010 at 7:54pm:
I fail to see why someone would choose an illegal addictive narcotic to treat CH rather than Non illegal, non addictive oxygen, imitrex or verapamil; if the Non Addictive, non illegal stuff works! 

Not to mention that narcotics eventually cause diminished mental capacity and more often than not tend to worsen the already horrendous affects of CH.

Nuff said...   Roll Eyes

I don't think he was talking about heroin. Tramadol is perfectly legal with a prescription. It's just a supremely bad idea for CH.


Um... maybe I should have clarified I was speaking to the initial post here...and too Narcotics

foolclip281 wrote on Jun 23rd, 2010 at 12:33pm:
I have CH and I find that narcotics are many times VERY effective in relieving the pain. Maybe not all the way, or as quick as imitrex, but they sure are cheaper... And I find they very much work. I don't see how many of you who clearly understand pain as we all know it, can seemingly get on this high horse like your some kind of MD and chastise people who are just asking questions. A pain pill may not work for you for a CH but if it works for someone else don't scream at them over the computer, tell them how ignorant they are and how smart you are, tell them how you know exactly what works and what doesn't. It's annoying and to new guys to this site like me makes you lose all credibility as someone to take advice from. I don't care if you've got 826,000 posts and have been on here for X amount of years, if you're mean to people and your way is the highway, you are not helping people. If a pain med works for someone don't tell them otherwise, remember how we all feel when we're told "Oh it's just a headache, get over it, I get those all the time." Wink

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Re: Why such a backlash against narcotic treatment?
Reply #18 - Jun 23rd, 2010 at 8:49pm
 
It's okay Ginger, if you read back through his posts it's hard to determine if he is genuinely pro or con narcotics.......or just enjoys the ruckus he causes here each time he phrases things in such an antagonistic and argumentative fashion.

Joe
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Re: Why such a backlash against narcotic treatment?
Reply #19 - Jun 23rd, 2010 at 8:51pm
 
To answer the initial question...in MY experience (and LOTS of others on a site dedicated to the condition)...it turned this clusterhead in extreme pain, into a sleepy clusterhead...in extreme pain.

Stuck with it as long as I could manage...then sought something better. Enough problems here without ALL the negatives of long term opiate use....if it works for you...fine..just realize it aint a long term "fix"....

Personally, I would say...no O2...no Jon............

Best,

Jon
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Re: Why such a backlash against narcotic treatment?
Reply #20 - Jun 23rd, 2010 at 9:01pm
 
Racer1_NC wrote on Jun 23rd, 2010 at 12:41pm:
Much better options available out there....that work better.....without the nastiness of addiction.

That being said there are a couple of people on here that have used them temporarily as part of an Doctor's overall strategy to get a handle on a  particularly hard case. TEMPORARY and TRANSITIONAL are the key words.

Bill


I couldn't agree more, Bill. 
Make that the mantra when dealing with narcotics and CH - Temporary and Transitional.
They should NEVER be the mainstay of treatment. 
Shall I say it again? 
They should NEVER be the mainstay of treatment.

That being said, if you are transitioning to a more appropriate prophylactic treatment and temporarily need some narcotics to help deal with the pain - well, then...  However, once on appropriate treatment you are cut off from narcotics!!!! 

The other issue with narcotics is that they are reactive to pain - not proactive against the pain occurring in the first place.  Your life will still be interrupted by pain and sleep awakening thereby the CH will still be having a severe negative effect on your quality of life even if the pain gets controlled with narcotics...

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Re: Why such a backlash against narcotic treatment?
Reply #21 - Jun 23rd, 2010 at 9:56pm
 
Guiseppi wrote on Jun 23rd, 2010 at 8:49pm:
It's okay Ginger, if you read back through his posts it's hard to determine if he is genuinely pro or con narcotics.......or just enjoys the ruckus he causes here each time he phrases things in such an antagonistic and argumentative fashion.

Joe

LOL
Hey, I'm fine  Wink  ...and thanks Joe.

I thought I was pretty clear in my opinion and I didn't mention Tram at all which speaks loud and clear since I did mention narcotics. 

I am a pretty frank person as most of you already know and generally pull no punches, I wouldn't have anyone else be any different with me than I am with them.  If you believe in something or don't be as clear as possible about it and keep true to yourself.

The Beast doesn't mince words why should we ?   Cheesy

PF nights to you Joe and Brew and all the rest too !
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Re: Why such a backlash against narcotic treatment?
Reply #22 - Jun 23rd, 2010 at 11:11pm
 
I'm not someone who has been here years with thousands of posts, but I've had experience of the problems that opiates on perscription and used exactly as per the doctors instructions can cause. The first time, with a back problem, tramadol seemed to help at first, but it soon gave relatively little relief as I soon got to tolerate it and the withdrawal was a few days of hell. There is no way I want to touch tramadol again, ever.

Before my CHs were diagnosed I was given codeine for the pain. They seemed to help a bit, but with hindsight I realise that all they were doing was knocking me out and causing me a lot of other issues, that along with post concussion sydrome and the CHs were just resulting in me going backwards. Again I had to go through a withdrawal which luckily wasn't as bad as tramadol.

The last neurologist I saw had a good chat with me about opiates. She thought that for people with terminal conditions they aren't used enough as there the problems of things like addiction pale into insignificance with the terminal effects of the illness, but for non-terminal issues they are totally overused.

I now no longer want to touch any pain medication. CHs have given me a crash course in pain management and I am learning to deal with the pain (not always too easy with a kipp 10). Given how little ipmact any pain medication has on a CH, it's my choice (and a common one here) to not use pain medication.

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Re: Why such a backlash against narcotic treatment?
Reply #23 - Jun 24th, 2010 at 1:31am
 
Some of the issue is that we (speaking of the US culture) have grown so intolerant to pain - no matter the severity.  Pain is considered to be not just a symptom of an underlying condition but a condition to be treated in and of itself. 
Interestingly enough, I read a statistic some time ago that has stuck with me - I don't remember the exact numbers but it's something on the order of that Americans as a whole take around 75% of the world's yearly narcotic intake....

As for end of life pain, oh yes yes yes - very very undertreated issue at just a time when pain needs fairly aggressive treatment...
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Re: Why such a backlash against narcotic treatment?
Reply #24 - Jun 24th, 2010 at 8:15am
 
I'm guessing that Mr. Foolclip is sitting back watching all of these posts and possibly laughing at the uproar he caused.  He has yet to respond.  The word "troll" comes to mind.

The bottom line Mr. Foolclip...and for your own health sake, ditch the narcotics and suck on the tank.  It might save your life.
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