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Ive finally found some relief after 15 years (Read 1078 times)
Marina K
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Ive finally found some relief after 15 years
Jun 20th, 2010 at 5:07am
 
Hi All.  I am a cluster headache sufferer and I know the impact it has to one's health, life, work etc.  After trying many medications and seen many doctors i have finally found what helps for me.  When i get the first sign of cluster trigger i start to take Lyrica pregablin tablets I immediately start to take 3 tablets a day, if you start on 1 a day it doesnt work as its not that effective must start on 3 a day.  The only shortfall is it makes you sleepy but who cares I get lots of rest and im headache free.  Water also helps alot, i never used to drink much water but now i do.  The 3rd secret is botex injections once a year to the head which a doctor needs to perform.  My life has changed since i have done the 3 above.  I have been well now for 3 years plus yes i get triggering and i start the 3 above and im ok.  I used to suffere every 6 months before and the pain used to break me.  All the best everyone. xx Smiley
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black
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Re: Ive finally found some relief after 15 years
Reply #1 - Jun 20th, 2010 at 8:31am
 
happy for you.Hope you stay pf.

Unfortunately for me Lyrica didn't work out.
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Oh come on!it's just water.It can't be that bad!
 
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bejeeber
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Re: Ive finally found some relief after 15 years
Reply #2 - Jun 20th, 2010 at 3:19pm
 
Hi Marina - glad to hear that the Lyrica works so good for you!

I've taken it's close cousin Neurontin (same active ingredient of pregablin), and found that it would help reduce the frequency of hits, but not knock them out altogether.
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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Lettucehead
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Re: Ive finally found some relief after 15 years
Reply #3 - Jun 20th, 2010 at 8:32pm
 
ditto to bejeeber. 
Glad it works for you though!!!!!
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Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH
 
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icepick
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Re: Ive finally found some relief after 15 years
Reply #4 - Jun 24th, 2010 at 4:36pm
 
I'm new to posting -- in the middle of a god-awful spell but doing okay until I found out today that my insurance will not authorize Lyrica (I'm currently on a two week sample that runs out in two days).  I'm fighting them now.  Did you have any problems getting this authorized?  If so, any advice you can give me?  And I've been trying to try botox but my doctor said it's incredibly difficult to locate in cluster headaches -- can you give me any specifics on that?  Thanks so much.
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