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bcsanders

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Old to clusters, new to diagnosis
Jun 10^th, 2010 at 10:07pm

Hello, this is my first post. Glad to see so many people helping out here. I have had cluster headaches since 1986, my sophomore year in college. I always suffered from sinus infections and with the teary eye and the runny nose I just thought they were sinus related. My doctor did not diagnose me until 2006. (Allergists gave me nasal sprays, doctors gave me decongentents, of course it did not work). Seems like a long time for a diagnosis, but my cluster's don't seem to be as severe (timewise) as some of the posts I see here. By the time my dr. diagnosed me in 2006 my clusters had gone away so I did not really research anything and the diagnosis was so new. Every four years for about 1 month I get them. My month is just about up now and the headaches have gotten less and less severe in the past three days. Today was almost pain free so I am thinking I am coming out of this cluster. I know the pain of these things, I am ready to jump out of my skin after a month so I can sympathize with anyone who has these chronically or multiple times a year. I have never tried anything more than Imitrex and it did help. I always get my headaches in the morning, about 7:15 am. The Imitrex helps but then the clusters came in the middle of the night and the night headaches, as some of you know, are worse then the day time. I am hoping I won't need any advice now, because I am still new to the treatments, but I am definately going to stay tuned in so I can see my doctor immediately when the clusters come back. (hopefully not for another 4 years). I am so grateful for reading this site knowing that there are meds and other therapies to help with the pain and for no longer thinking that this was just a bad sinus attack every four years.

Hope everyone reading this gets the relief they need.

Brett C.

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bejeeber

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Re: Old to clusters, new to diagnosis
Reply #1 - Jun 10^th, 2010 at 11:09pm

Hey Brett,

Welcome, and here's to you being able to abort 100% of your attacks if you get hit again 4 years from now (not an unattainable goal for a case like yours, as long as you have your arsenal all prepped, and contingency plans in place).

Heck, 4 years from now we should all finally have hover cars, jet packs and electronic instant cluster killer buttons to push. Cheesy

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« Last Edit: Jun 11^th, 2010 at 2:52am by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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davidj35 CH.com Veteran Offline 02 is my best friend Posts: 151 x0\|LaGrange\|USA\|\|0\|0\|NY,New_York Gender:	Re: Old to clusters, new to diagnosis Reply #2 - Jun 10^th, 2010 at 11:57pm Hi Brett, Glad to hear your cycle is almost over, keep in touch with the site as new information on our condition is always coming in. David.
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bcsanders CH.com Junior Offline I Love CH.com! Posts: 49	Re: Old to clusters, new to diagnosis Reply #3 - Jun 11^th, 2010 at 5:41am Thanks All, Definately keeping in touch in or out of cycle. Seems to be alot of nice people sharing an (unfortunately painful) common affliction. When these headaches hit you need as much support as possible. No fair weather friends here. Thanks. Brett C.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Old to clusters, new to diagnosis Reply #4 - Jun 11^th, 2010 at 9:34am Welcome to the board Bret, glad you found us. You'll find knowledge is your best ally. Whether it's a new prevent to try, a new way to use the oxygen, another quick tip like the energy drinks...there's always new stuff people are bringing to the board. Wishing you a lifetime remission. Joe
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bcsanders CH.com Junior Offline I Love CH.com! Posts: 49	Re: Old to clusters, new to diagnosis Reply #5 - Jun 11^th, 2010 at 11:51am Thanks to all. Last couple of days the pain has been about a 1 or maybe a 2 on the Kip scale and only lasts about 20 minutes at a time, so I have been dealing. Hoping they are on their way out. I might try some red bull, which I have never had before, to try to take the edge off of the 2's. Regards, Brett C.
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davidj35 CH.com Veteran Offline 02 is my best friend Posts: 151 x0\|LaGrange\|USA\|\|0\|0\|NY,New_York Gender:	Re: Old to clusters, new to diagnosis Reply #6 - Jun 11^th, 2010 at 12:02pm Brett, I have found the Red Bulls and also for me coffee helpful with shadows and low level attacks, I still go for the 02 however on anything approaching a 2 or more. David
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bejeeber

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Re: Old to clusters, new to diagnosis
Reply #7 - Jun 11^th, 2010 at 1:14pm

bcsanders wrote on Jun 11^th, 2010 at 5:41am:

No fair weather friends here.

Hmmm....maybe the regular responders here oughta form a gang called the Foul Weather Friends. Grin

Matching jackets and caps would be nice. We could wear them while at the computer. Cool

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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bcsanders CH.com Junior Offline I Love CH.com! Posts: 49	Re: Old to clusters, new to diagnosis Reply #8 - Jun 11^th, 2010 at 6:29pm Jacket sounds cool, or even a t-shirt would do. Always looking for t-shirts. Brett C.
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davidj35 CH.com Veteran Offline 02 is my best friend Posts: 151 x0\|LaGrange\|USA\|\|0\|0\|NY,New_York Gender:	Re: Old to clusters, new to diagnosis Reply #9 - Jun 11^th, 2010 at 7:01pm I have too many caps according to my bride, but put me down for a jacket.
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