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Live with clusters, or lose family? (Read 1562 times)
foolclip281
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Live with clusters, or lose family?
Jun 8th, 2010 at 2:39pm
 
I'm so frustrated... In the midst of being young and dumb with CH I became hooked on prescription pain killers, yeah it brought relief, but the hell of addiction soon followed. I was diagnosed "bi-polar" (whatever that means) tossed in a looney house for a few weeks, battled for a couple of years and came out the other end clean as a whistle, but now my family (and wife) monitor my medications very carefuly.  (I love them for it) I put them through hell, but now I'm at a turning point. I'm at a point in my life where I am prepared to pursue with absolute fervor as pain free a life as possible. However I know that when I start making doctors appointments, etc. I will be confronted, they will think i'm "doctor shopping" no doubt. I'm sick, and I'm tired of playing the role anymore. I want this fixed. Would you guys as a CH sufferer continue on with no relief for the sake of your families thinking everything is on the up and up, or say screw what everyone thinks, i'm going to the doctor and let the chips fall where they may, even if relationships are lost?
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Potter
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Re: Live with clusters, or lose family?
Reply #1 - Jun 8th, 2010 at 2:56pm
 
Maybe you should see a headache specialist instead of self diagnosing.

              Potter

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foolclip281
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Re: Live with clusters, or lose family?
Reply #2 - Jun 8th, 2010 at 3:09pm
 
I totally agree with what you are saying, and trust me I plan too... I've seen them in the past but not armed with the information as I have now.  Again I know i'm no doctor, but if i tripped in a hole and my ankle snapped and was turned totally around facing the opposite direction, I think I could say for fairly certain that I had a "broken ankle" based on my observation of the situation at hand, and by past knowledge of the symptoms of an ankle break... I would indeed go to the E.R. but i'd know the answer before I got there. I'm fairly certain I have CH by the data provided as well.
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"Everybody has a plan, till' they get punched in the mouth."  Mike Tyson
 
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Potter
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Re: Live with clusters, or lose family?
Reply #3 - Jun 8th, 2010 at 3:24pm
 
foolclip281 wrote on Jun 8th, 2010 at 3:09pm:
I totally agree with what you are saying, and trust me I plan too... I've seen them in the past but not armed with the information as I have now.  Again I know i'm no doctor, but if i tripped in a hole and my ankle snapped and was turned totally around facing the opposite direction, I think I could say for fairly certain that I had a "broken ankle" based on my observation of the situation at hand, and by past knowledge of the symptoms of an ankle break... I would indeed go to the E.R. but i'd know the answer before I got there. I'm fairly certain I have CH by the data provided as well.

That's a piss poor analogy.  Go see a headache specialist.  Ya might save your life.


                 Potter

                Potter
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Brew
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Re: Live with clusters, or lose family?
Reply #4 - Jun 8th, 2010 at 3:58pm
 
The best preventatives AND the best abortives for CH are non-narcotic. If you're convinced that you won't be seeking narcotics anymore, what's the problem? No headache specialist worth his salt would prescribe narcs for this condition.
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bonkers
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Re: Live with clusters, or lose family?
Reply #5 - Jun 8th, 2010 at 4:03pm
 
Hi foolclip281,

There're a variety of things that can be done to treat your headaches, but until you get an accurate diagnosis of your particular headaches, whatever you do could just as easily make them worse. Like Potter has repeatedly counseled you to do, make an appointment to see a Neurologist who specializes in treating headaches. He'll perform a variety of tests to rule out tumors or other structural abnormalities and then start you on a drug regimen which he will probably alter along the way until he's found a combination that works best for you. In the meantime, read as much as you can from the list of topics in the column on the left side of the home page so that you will be well-informed for your visit to the Neurologist.

Good luck,

Ron
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bejeeber
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Re: Live with clusters, or lose family?
Reply #6 - Jun 8th, 2010 at 4:56pm
 
I think you just need to declare right off that you will under no circumstances accept any pain meds for CH.

Those aren't good for CH anyway, and this should put everyone at ease.

There's no way that I, or most other successful CH battlers here, would accept any pain meds for CH.
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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Bob Johnson
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Re: Live with clusters, or lose family?
Reply #7 - Jun 8th, 2010 at 7:59pm
 
LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
===

Your choice is not between caring for your health and losing your family. IF you don't care for your health, as the first order of business, they will have a hard time living with your pain, etc. and the stress will get to them.

Care for our pain, get it under control, and you will be able to give the full you to them.

We have all been thru this business for a long time and we know that it's possible to have both our family and relief.





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Bob Johnson
 
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E-Double
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Re: Live with clusters, or lose family?
Reply #8 - Jun 9th, 2010 at 6:21am
 
Brew wrote on Jun 8th, 2010 at 3:58pm:
The best preventatives AND the best abortives for CH are non-narcotic. If you're convinced that you won't be seeking narcotics anymore, what's the problem? No headache specialist worth his salt would prescribe narcs for this condition.



Bingo
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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.
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Skyhawk5
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Re: Live with clusters, or lose family?
Reply #9 - Jun 9th, 2010 at 2:22pm
 
Please listen to these good people, they know what they're talking about.

Don
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