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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Trigeminal Nerve Block/Gamma Knife Radiosurgery

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Trigeminal Nerve Block/Gamma Knife Radiosurgery (Read 2477 times)

zoieeliz

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Trigeminal Nerve Block/Gamma Knife Radiosurgery
Jun 7^th, 2010 at 11:18pm

My son suffers horribly from the BEAST! He is 36 years old. The BEAST has been with him for over 10 years. He has been taking Imitrex & O2. Topamax has been prescribed but he does not want to take it due to the weight loss, as he cannot afford to lose anymore weight. Has anyone tried the trigeminal nerve block or the gamma knife radiosurgery to permanently block the trigeminal nerve? If so, please let me know how it went.......Thanks for your input.....and/or suggestions.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Trigeminal Nerve Block/Gamma Knife Radiosurgery Reply #1 - Jun 8^th, 2010 at 9:05am Surgery is a last resort. I think I'd maybe consider letting them cut into my head if I had tried every other alternative. And I mean every single one of them. Poo-pooing Topamax tells me that he's not even close to having tried every alternative.
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Guiseppi

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Re: Trigeminal Nerve Block/Gamma Knife Radiosurgery
Reply #2 - Jun 8^th, 2010 at 9:25am

I don't know of any success stories with that technique. There may be, I just don't know of them. The risks...as I'm sure the docs told ya, are extreme.

Your story sounds eerily similar to a father who recently came to the board and his son was getting slammed, nothing was working for them. He went to an alternative site clusterbusters.com and they have had tremendous success! Might be worth a shot.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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davidj35 CH.com Veteran Offline 02 is my best friend Posts: 151 x0\|LaGrange\|USA\|\|0\|0\|NY,New_York Gender:	Re: Trigeminal Nerve Block/Gamma Knife Radiosurgery Reply #3 - Jun 10^th, 2010 at 12:02pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ; Please check it out before any surgery, it can be a god send! David
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shaggyparasol

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Re: Trigeminal Nerve Block/Gamma Knife Radiosurgery
Reply #4 - Jun 10^th, 2010 at 1:32pm

I second that emotion Wink

clusterbusters it is good sir! Turned my life around. They advocate for cluster pain relief through the use of plants and fungus. Some of these have a stigma attached to them, but after reading tales of traditional Shaman/medicine people throughout the hemisphere I was willing to try.

It is not 100% for everyone, but very effective for most.

--Shaggy

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