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QnHeartMM

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Unknown headache
Jun 3^rd, 2010 at 5:37pm

Has anyone ever experienced this? I know not CH, but people with other headache types

Crashing top of head pain - occurs approximately every 3-5 minutes, I would say from middle of "part" on head to back of the "part" area, sometimes spreading to the right side of the skull. Duration maybe 10-20 seconds each time. Holding head seems to help, or maybe duration is over by the time hands get in place to sort of press/squeeze.

Never any sign of migraine or serious headaches before. I'm recording them on the OUCH headache log, with intensity of 4-9 throughout the day. Been going on for 2 days now. Literally every 3-5 minutes.

Have an appt with MD tomorrow morning, but looking for ideas. Drinking water, eating normally, nothing new in my environment.

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Melissa

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Re: Unknown headache
Reply #1 - Jun 3^rd, 2010 at 5:59pm

QnHeartMM wrote on Jun 3^rd, 2010 at 5:37pm:

Has anyone ever experienced this? I know not CH, but people with other headache types

Crashing top of head pain - occurs approximately every 3-5 minutes, I would say from middle of "part" on head to back of the "part" area, sometimes spreading to the right side of the skull. Duration maybe 10-20 seconds each time. Holding head seems to help, or maybe duration is over by the time hands get in place to sort of press/squeeze.

Never any sign of migraine or serious headaches before. I'm recording them on the OUCH headache log, with intensity of 4-9 throughout the day. Been going on for 2 days now. Literally every 3-5 minutes.

Have an appt with MD tomorrow morning, but looking for ideas. Drinking water, eating normally, nothing new in my environment.

Christy, the only thing I've seen come close to that, is CPH (chronic paroxysmal hemicrania), but it's a daily occurance, so not sure if this is something that will continue for you or not. I hope not!!

Let us know how the doctor visit goes!

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« Last Edit: Jun 3^rd, 2010 at 6:05pm by Melissa »

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

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neuropath CH.com Veteran Offline Same Hit, Different Day Posts: 218	Re: Unknown headache Reply #2 - Jun 3^rd, 2010 at 11:54pm also referred to as SUNCT headache. Symptoms sound somewhat similar.
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Unknown headache Reply #3 - Jun 4^th, 2010 at 12:45am Icepick headache? Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Sorry you're having this happen, Christy. Best wishes, George
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anthony g

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Re: Unknown headache
Reply #4 - Jun 4^th, 2010 at 7:22am

Christy
I was recently diagnosed with "hermicrania continua" I went from a cluster cycle at christmas to a constant what we call"shadows" headache from my neck up the side of my head to my temple (cluster side) My specialist diagnosed me with chronic hermicrania continua. I take 150 mg's of indomethacin a day Just when i was learnig to control the "beast" a bit another one set in Undecided

hope you find relief ASAP!!
all my best
anthony

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Unknown headache Reply #5 - Jun 4^th, 2010 at 7:46am In the words of Theodore Geisel: This is not good. It is not right. My feet stick out of the bed all night. Seriously, I hope you get a solid diagnosis and treatment plan. I don't know if you've ever had sinus problems, but sometimes the pain from infected sinuses can be referred to other parts of the head. Good luck, sister.
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E-Double

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Re: Unknown headache
Reply #6 - Jun 4^th, 2010 at 8:38am

Hiya love,

what do you mean by crashing?

could you describe it in terms of
zaps as in electric OR
thuds as in a hammer or
taps?

I ask because I have icepicks or idiopathic stabbing headache and those are really like hundreds to thousands a day of being zapped on top of the head.

I also have what Dr. sheftell calls an icepick variant. It's crazy....
On my way to the OUCH 2005 convention I developed a tapping on top of head in one location. It never hurt but it feels like someone is literally doing morse code lightly on my skull.
Ive had this now for 5 yrs and it was like Chinese water torture but never hurt. It will go away and then come back. Very strange. At the Convention we called them Kajingles and I honestly think the term will be making it into the IHS guide. haha

Hope you are well otherwise and get your tushie to dr.

Good luck

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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.

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QnHeartMM

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Re: Unknown headache
Reply #7 - Jun 4^th, 2010 at 8:59am

I guess I would say crashing or maybe ice pick. not tapping. makes me suddenly cringe and tighten up til it's done. brief in duration, but all day yesterday was every 3-5 minutes.

I did take sudafed and a couple hours later it seemed to dull it some. does not seem to bother me when laying down so I got a good night sleep. Been up now about 1/2 hour and so far hasn't hit me.

Going to the doctor at 11;30 our time.

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E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Unknown headache Reply #8 - Jun 4^th, 2010 at 10:15am Sounds like Ice picks to me. Hurts then gone. Enough to make you cringe and lock up but not like a migraine or CH in that it's not incapacitating. Hurts like hell briefly but then poof gone. Indomethacin got rid of them. Good luck
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Unknown headache Reply #9 - Jun 4^th, 2010 at 11:21am Fudge, forgot about ice picks, thanks George! Christy, good luck today!
Back to top	« Last Edit: Jun 4^th, 2010 at 11:22am by Melissa » Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Unknown headache Reply #10 - Jun 4^th, 2010 at 11:25am Hi Christy, I'm sorry you are in pain. What you are describing sounds like my ice pick pains too. I hope you find some answers and relief soon. Hugs, Jeannie
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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Unknown headache Reply #11 - Jun 4^th, 2010 at 11:39am Eric and Jeannie - yes - stabs me, I cringe and lock up, then it's over. Joe was teasing me saying GET O2 but seriously by the time I would reach for it - it's over.
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E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Unknown headache Reply #12 - Jun 4^th, 2010 at 11:53am Indomethacin/indocin!!! Kicked it's arse! The only thing with indocin is if on it for a long time, it can be hard to come off of. Crazy rebound ha. If icepicks then IT WILL be responsive to indocin
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Unknown headache Reply #13 - Jun 4^th, 2010 at 2:54pm Thank you all...I HATED not having clever answers for her on this one......I fear my headache knowledge is a little bit one faceted! Joe
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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: Unknown headache Reply #14 - Jun 4^th, 2010 at 3:34pm Sounds like ice picks to me too. I haven't experienced them in years. The name describes them well. I hope the headaches end soon, Christy!
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E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Unknown headache Reply #15 - Jun 4^th, 2010 at 3:43pm Guiseppi wrote on Jun 4^th, 2010 at 2:54pm: Thank you all...I HATED not having clever answers for her on this one......I fear my headache knowledge is a little bit one faceted! Joe Some are blessed with the party in the brain. Puhleeez I guess you only have CH Hope you're well my brother
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Unknown headache Reply #16 - Jun 4^th, 2010 at 3:46pm Days away from officially declaring my latest cycle OVER!!!! Thanks. Joe
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QnHeartMM

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Re: Unknown headache
Reply #17 - Jun 4^th, 2010 at 4:16pm

So as I described the headaches and showed the log of the last 2 days the PNP asked me if I had ever heard of Cluster Headaches. LOL, no never.

Anyways, told her I knew alot about them and felt what I was experiencing was different. Mentioned "ice pick" and the indomethacin. She gave me a Rx for that and also asked for blood work just to c heck all the chemical balances. My BP was good, best it's been in years over the last 3 days. Just had lunch and took my pill.

So Eric - once you start the Indo how long before they stop and when you stop taking it do they come back? She only gave me enough for 10 days, no refills.

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E-Double

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Re: Unknown headache
Reply #18 - Jun 4^th, 2010 at 5:18pm

I was on it for over a month but they stopped within days.

I had to come off of it when I was going on Lithium for the clusters.

They pretty much disappeared.
I will get them ever so often but they are not pervasive. They certainly do not affect my life what so ever.

Indomethacin is like the mother of all NSAID's it's like taking mass amounts of advil. I don't understand why the headaches are responsive to that and not others but it is. go figure.

You will know soon.
also you may have some tummy problems with it so just be aware

Hugs

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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.

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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: Unknown headache Reply #19 - Jun 4^th, 2010 at 7:31pm Well just damn. I don't check in here for a day or two and look who's gotten the contagion . . . . LOL. If Christy got contagious CH from Joe, then Joe got menopause from Christy! Hope the meds work for you, Christy. Now I can wish YOU PF days!
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Unknown headache Reply #20 - Jun 4^th, 2010 at 8:10pm Christy, Awesome! You have a great doctor. I truely hope the indo helps, please keep us updated as to how you're doing. hugs mel
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Unknown headache Reply #21 - Jun 4^th, 2010 at 8:38pm Cool. Joe gets to be a supporter. Put on your big boy pants.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Unknown headache Reply #22 - Jun 5^th, 2010 at 12:13am Damnit Brew...I left those at Jimi's!
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Unknown headache Reply #23 - Jun 5^th, 2010 at 5:20pm I hope you're doing better already, Christy! Hugs to you! Jeannie
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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Unknown headache Reply #24 - Jun 5^th, 2010 at 5:42pm Have to say that 24 hours since I started the meds, no headaches since late yesterday afternoon.
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