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1961mom

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #25 - Jun 1^st, 2010 at 3:08pm

Quote:

I would try a cure for too little blood.

I do not read that this gentleman ever said he found a cure for CH. I read that he is educated (pharmacist) in pain (Cluster Headache diagnosed) and thoughtful/mindful of his choice of words descriptive of "his" experience.

I find it to be a grave disservice to a new fellow CHer who is also in pain, scared and frantic about the meaning of all of this to their lives to have the responses be "anger-based" with a overtone of "you're an idiot!"

I did not teach my son his ABC's the first time I recited the alphabet to him. I had to slowly and consistently inject the alphabet into our daily life. All phases of this disease and the sufferers should be safe here. Whether it is your first attack or your 32nd year of cycles.

If you act like the tenured professor who's freshmen are somehow inferior to your "perceived" advanced degree by dismissing their thoughts and ideas you are missing the opportunity of hearing "fresh thoughts and ideas". Many pooh poohed hallucinogens as a treatment until the study was approved by Harvard in 2006.

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Potter

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #26 - Jun 1^st, 2010 at 3:36pm

Headache Boy uk wrote on Jun 1^st, 2010 at 2:55pm:

Rich the Pharmacist wrote
Quote:

After suffering for a few nights, and in the middle of a doozie, I thought that headaches are usually from not enough blood or too much blood in parts of the brain. I would try a cure for too little blood.

whilst I acknowledge that that your post was with the best intentions and the only time you used the word " cure " in the line...I would try a cure for too little blood. This whole head stand thing and the theory behind it seem fundamentally flawed .

CH attacks, or at least the cause of the pain, is due to the swelling of blood vessels in the brain crushing nerves around them ( that's how I understand it from all I have read on the subject from countless medical papers on the net and posts on this board ) . and I guess that is why all the main abortive drugs and O2 are used a vascular constrictors to shrink the blood vessels and stop the pain.

So as you can see people on this board are going to be some what sceptical about a treatment method that would actually increase the blood pressure in the brain . and the way I see it that would only make it a thousand times worse.

I think if I tried to stand on my head during a cluster attack the end result would be a whole lot more pain and probably a broken neck . Grin

If this works for you then that's cool, but that being the case it doesn't sound much like you have CH , may be you've been miss diagnosed ?

Regards

Nigel

Well said.

Potter

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JHK07

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #27 - Jun 1^st, 2010 at 3:39pm

1961mom wrote on Jun 1^st, 2010 at 3:08pm:

Quote:

I would try a cure for too little blood.

I do not read that this gentleman ever said he found a cure for CH. I read that he is educated (pharmacist) in pain (Cluster Headache diagnosed) and thoughtful/mindful of his choice of words descriptive of "his" experience.

I find it to be a grave disservice to a new fellow CHer who is also in pain, scared and frantic about the meaning of all of this to their lives to have the responses be "anger-based" with a overtone of "you're an idiot!"

I did not teach my son his ABC's the first time I recited the alphabet to him. I had to slowly and consistently inject the alphabet into our daily life. All phases of this disease and the sufferers should be safe here. Whether it is your first attack or your 32nd year of cycles.

If you act like the tenured professor who's freshmen are somehow inferior to your "perceived" advanced degree by dismissing their thoughts and ideas you are missing the opportunity of hearing "fresh thoughts and ideas". Many pooh poohed hallucinogens as a treatment until the study was approved by Harvard in 2006.

Very well said.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #28 - Jun 1^st, 2010 at 4:04pm Quote: I was offered a host of drug alternatives to which I refused all. I am a pharmacist and I see what these drugs do to people. It isn't pretty and I wanted nothing to do with it. It most certainly sounds like you've chosen the wrong line of work.
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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #29 - Jun 1^st, 2010 at 4:38pm Quote: It most certainly sounds like you've chosen the wrong line of work. I'll say. Sort of like a Buddist monk working for Smith and Wesson.
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1961mom

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #30 - Jun 1^st, 2010 at 6:05pm

Brew wrote on Jun 1^st, 2010 at 4:04pm:

Quote:

I was offered a host of drug alternatives to which I refused all. I am a pharmacist and I see what these drugs do to people. It isn't pretty and I wanted nothing to do with it.

It most certainly sounds like you've chosen the wrong line of work.

Are you purposefully trying to alienate this fellow CH sufferer? Wow, it's risky enough to share thoughts with family members, doctors and specialists who don't have a clue as to the roller coaster ride we are living but to a fellow sufferer.....you too had your first attack and went through a myriad of "could this help, could that help" trials.

Now you are (incredibly) attacking his profession, which to me would be extremely informational and helpful to have access to a trained pharmacist's perspective on the traditional medications. He clearly stated that he went into the hospital a month ago for the head pain and was diagnosed with CH's. He also stated that he has seen "first hand" what these medications have done to his clients. Going into his profession and later being diagnosed with CH, joining a forum online for ALL CH sufferers and sharing his comments in NO WAY makes him out to be a "Buddhist Monk advocating firearms". It makes him a valuable, educated resource!

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Thanking the Airline Industry for my borrowed quote
"Put your Oxygen mask on first, then assist others"

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1961mom

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #31 - Jun 1^st, 2010 at 6:26pm

Potter wrote on Jun 1^st, 2010 at 3:36pm:

Headache Boy uk wrote on Jun 1^st, 2010 at 2:55pm:

Rich the Pharmacist wrote
Quote:

After suffering for a few nights, and in the middle of a doozie, I thought that headaches are usually from not enough blood or too much blood in parts of the brain. I would try a cure for too little blood.

whilst I acknowledge that that your post was with the best intentions and the only time you used the word " cure " in the line...I would try a cure for too little blood. This whole head stand thing and the theory behind it seem fundamentally flawed .

CH attacks, or at least the cause of the pain, is due to the swelling of blood vessels in the brain crushing nerves around them ( that's how I understand it from all I have read on the subject from countless medical papers on the net and posts on this board ) . and I guess that is why all the main abortive drugs and O2 are used a vascular constrictors to shrink the blood vessels and stop the pain.

So as you can see people on this board are going to be some what sceptical about a treatment method that would actually increase the blood pressure in the brain . and the way I see it that would only make it a thousand times worse.

I think if I tried to stand on my head during a cluster attack the end result would be a whole lot more pain and probably a broken neck . Grin

If this works for you then that's cool, but that being the case it doesn't sound much like you have CH , may be you've been miss diagnosed ?

Regards

Nigel

Well said.

Potter

Yes!

I hope our pharmacist friend comes back, skips over the snipes and is willing to share more of his training and knowledge with us all

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Thanking the Airline Industry for my borrowed quote
"Put your Oxygen mask on first, then assist others"

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Potter

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #32 - Jun 1^st, 2010 at 6:33pm

If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.
Watch this video. Do you think standing on your head would be an option?
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Potter

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Guiseppi

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #33 - Jun 1^st, 2010 at 6:47pm

A polite warning to the well intentioned newer people on this board, concerned with our treatment of head stand boy. This happens a lot.

A person will show up, post something guaranteed to raise a ruckus, act angry when it does, and then leave in a huff. NEWSFLASH!!!!!! They're not for real. They go to forums such as ours specifically to raise hell and then leave. I affectionately call them 2 and done posters. One post to start trouble...one for his or her grand exit.

Please don't cry tears about how now they'll never get any help. If they really want help, they can read to their hearts content. We specifically DO NOT require membership to visit and access all the info on our board. He can always re register under a whole new name and start again....if he is for real.....which I still very much doubt.

That being said, those of us who have been here a while will always call BS when these 2 and done posters show up with their off the wall remedies. The one in a million chane it will work is not worth the number of people it will send down the wrong road. To further relieve your worry, our "pharmacist" has been regularly visiting the board to keep an eye on all the rukus he caused.....they like to do that, it's like how arsonists always come back to watch the fire they set!

So with that being said, let's get back to helping REAL people, in REAL pain with REAL solutions. It's what we do between dealing with people like head stand boy.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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George

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #34 - Jun 1^st, 2010 at 7:35pm

Guiseppi wrote on Jun 1^st, 2010 at 6:47pm:

A polite warning to the well intentioned newer people on this board, concerned with our treatment of head stand boy. This happens a lot.

A person will show up, post something guaranteed to raise a ruckus, act angry when it does, and then leave in a huff. NEWSFLASH!!!!!! They're not for real. They go to forums such as ours specifically to raise hell and then leave. I affectionately call them 2 and done posters. One post to start trouble...one for his or her grand exit.

Please don't cry tears about how now they'll never get any help. If they really want help, they can read to their hearts content. We specifically DO NOT require membership to visit and access all the info on our board. He can always re register under a whole new name and start again....if he is for real.....which I still very much doubt.

That being said, those of us who have been here a while will always call BS when these 2 and done posters show up with their off the wall remedies. The one in a million chane it will work is not worth the number of people it will send down the wrong road. To further relieve your worry, our "pharmacist" has been regularly visiting the board to keep an eye on all the rukus he caused.....they like to do that, it's like how arsonists always come back to watch the fire they set!

So with that being said, let's get back to helping REAL people, in REAL pain with REAL solutions. It's what we do between dealing with people like head stand boy.

Joe

Now THAT was well said.

Best,

George

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jon019

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #35 - Jun 1^st, 2010 at 8:01pm

Amen Brother Joe...AMEN!

There's a BIG difference between a cynic and a skeptic. A cynic will find the "bad" in every situation...a skeptic will weigh the pros and cons and make a reasoned decision. I don't see any cynics here...I do see any number of skeptics....me among them. A clusterhead who is not a skeptic...hasn't been a clusterhead long enough.

Best,

Jon

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The LARGE print giveth....and the small print taketh away. Tom Waits

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Brew

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #36 - Jun 1^st, 2010 at 8:13pm

1961mom wrote on Jun 1^st, 2010 at 6:05pm:

It most certainly sounds like you've chosen the wrong line of work.Are you purposefully trying to alienate this fellow CH sufferer? Wow, it's risky enough to share thoughts with family members, doctors and specialists who don't have a clue as to the roller coaster ride we are living but to a fellow sufferer.....you too had your first attack and went through a myriad of "could this help, could that help" trials.

Now you are (incredibly) attacking his profession, which to me would be extremely informational and helpful to have access to a trained pharmacist's perspective on the traditional medications. He clearly stated that he went into the hospital a month ago for the head pain and was diagnosed with CH's. He also stated that he has seen "first hand" what these medications have done to his clients. Going into his profession and later being diagnosed with CH, joining a forum online for ALL CH sufferers and sharing his comments in NO WAY makes him out to be a "Buddhist Monk advocating firearms". It makes him a valuable, educated resource!

Put the gun down and back away slowly. Have you no sense of humor? Do you not see the irony of a pharmacist who wants nothing to do with drugs? Sheesh.

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Headache Boy uk CH.com Old Timer Offline Matthew ch 11 v 28 Posts: 373 Mersea Island nr Colchester Gender:	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #37 - Jun 1^st, 2010 at 8:13pm I would like to echo Jon's amen. cos lets face it, it dose sound a bit like e-mailing BP saying that a cork will cure there leek. All the best Nigel
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jon019

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #38 - Jun 1^st, 2010 at 8:34pm

Brew wrote on Jun 1^st, 2010 at 8:13pm:

1961mom wrote on Jun 1^st, 2010 at 6:05pm:

It most certainly sounds like you've chosen the wrong line of work.Are you purposefully trying to alienate this fellow CH sufferer? Wow, it's risky enough to share thoughts with family members, doctors and specialists who don't have a clue as to the roller coaster ride we are living but to a fellow sufferer.....you too had your first attack and went through a myriad of "could this help, could that help" trials.

Now you are (incredibly) attacking his profession, which to me would be extremely informational and helpful to have access to a trained pharmacist's perspective on the traditional medications. He clearly stated that he went into the hospital a month ago for the head pain and was diagnosed with CH's. He also stated that he has seen "first hand" what these medications have done to his clients. Going into his profession and later being diagnosed with CH, joining a forum online for ALL CH sufferers and sharing his comments in NO WAY makes him out to be a "Buddhist Monk advocating firearms". It makes him a valuable, educated resource!

Put the gun down and back away slowly. Have you no sense of humor? Do you not see the irony of a pharmacist who wants nothing to do with drugs? Sheesh.

Sheesh indeed Brew...I find irony hilarious...thanks man!

Best,

Jon

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The LARGE print giveth....and the small print taketh away. Tom Waits

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DJ

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #39 - Jun 1^st, 2010 at 11:06pm

Potter wrote on Jun 1^st, 2010 at 6:33pm:

If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.
Watch this video. Do you think standing on your head would be an option?
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Potter

Let me repeat what Mr. Potter just stated...

If you folks that think standing on your head is in any way beneficial for the relief of clusters,

you don't have cluster headaches
.

This site was not built for the typical headache sufferer. This is not tensionheadache.com, stressheadache.com, tiredheadache.com, migraine.com, myheadhurtsithinki'llgolaydownforawhile.com.

This is CLUSTERHEADACHES.COM. This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches!

If you normally take Excedrin, or stand on your head to relieve your headache pain I will GUARANTEE you don't have cluster headaches. Find another community somewhere else that will sympathize with your "pain".

If your headaches somewhat resemble the attack Anthony suffers through in the link Potter provided... welcome to the clusterheadaches.com family.

DJ

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I NEVER could have imagined! (April 11th, 1998 - present). Adversity does not build character... it reveals it.

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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #40 - Jun 1^st, 2010 at 11:47pm This place is a hoot! Next time I get bad shadowing (not a full blown hit) I'm going to try standing on my head whilst eating a donut. That oughta fix it
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Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #41 - Jun 2^nd, 2010 at 6:26am Linda_Howell wrote on May 30^th, 2010 at 3:24pm: A kinder gentler Potter. I love it!!!!!!!!!!!!! How about it, i'm shocked
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jmac

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #42 - Jun 2^nd, 2010 at 6:29am

I just have to comment on the person that mentioned running around the neighborhood at 3 am. Am I the only person that has done this? (2) weeks ago i was doing this a couple times a week. I swear it would abort the headache for me. Yesterday I woke with one that lasted 3 hours. I chose not to go for a run thinking I could "get through it" and that the running wasn't working. Every time I have gone for a run the headache is gone within 30 minutes. But for me it has to be at least 3 miles. I tried running a mile and then the headache lasted for 3 hours. Crazy I know.

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Bob P

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #43 - Jun 2^nd, 2010 at 7:45am

jmac, not crazy. At one time I aborted attacks by doing as many squats as I could. My friend Marc would ride his bike. The guy who posted right before me on the Welcome board would run up a hill behind his house. I think these work due to the hyperventilation aspect. So much easier to just huff O2.

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JHK07

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #44 - Jun 2^nd, 2010 at 8:09am

DJ wrote on Jun 1^st, 2010 at 11:06pm:

Potter wrote on Jun 1^st, 2010 at 6:33pm:

If you folks that think standing on your head is in any way beneficial for the relief of clusters, you don't have cluster headaches.
Watch this video. Do you think standing on your head would be an option?
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Potter

Let me repeat what Mr. Potter just stated...

If you folks that think standing on your head is in any way beneficial for the relief of clusters,

you don't have cluster headaches
.

This site was not built for the typical headache sufferer. This is not tensionheadache.com, stressheadache.com, tiredheadache.com, migraine.com, myheadhurtsithinki'llgolaydownforawhile.com.

This is CLUSTERHEADACHES.COM. This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches!

If you normally take Excedrin, or stand on your head to relieve your headache pain I will GUARANTEE you don't have cluster headaches. Find another community somewhere else that will sympathize with your "pain".

If your headaches somewhat resemble the attack Anthony suffers through in the link Potter provided... welcome to the clusterheadaches.com family.

DJ

Sir....
Are you a doctor? I've seen the videos. I've been in enough pain 1x to go to the emergency room. I turned around 1 block away before going.

We don't all feel like "the video " and pray for those that do.
I dont need to tell you the story, they are called cluster headaches. Obviously some more painful than others. This is not a contest.

I was a the supper table last night talking to my better half about this very post and "the pharmacist" and the headstand. (Her dad is a pharmacist) we discuss blood to brain and O2 and what not. As we are talking I feel the beast approaching. Could the celery be a trigger?

Anyway she slips off to grocery and I proceed to bed to do headstands. And after 4 rounds of headstands CH was gone. It was gone in a poof. Scientific... NO......

true story....

I let you know how it goes next time.

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FramCire

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #45 - Jun 2^nd, 2010 at 9:59am

I do think people ought to know who they are talking to.

They might also figure out things better before they go off on people.

JHK, I am directing this to you.

A few things you might want to know:

1. This place doesn't exist without DJ. He isn't a doctor, he isn't perfect, BUT you should consider treating him with a bit more respect since this place doesn't exist without him. If I was at your house and dinner didn't taste very good I wouldn't say "You call that a meal? Are you even able to cook?"

2. If you stick around long enough you will find all sorts of idiots coming here claiming everything "cures" or works "100%" on CH. Some of these people believe what they are saying. Others are screwing with us. Either way, it ticks many people off.

3. Alternative methods presented well with a positive attitude are usually given the respect deserved. People who post then dramatically run when questioned get the lack of respect they deserve.

Just my thoughts, I speak for noone but myself, and sometimes I don't even speak for myself.

2.

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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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JHK07

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #46 - Jun 2^nd, 2010 at 10:14am

hey Fram..... He is the administrator.... I called him "sir"

do you think I went off ?

I know there a numnuts around here who "2 post" and leave.

I am just kinda curious to the whole blood to the head thing.. I am not that technical. I dont know.

Like I said, I will let you know if it works again. And trust me, if it doesn't work... you will know too...

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FramCire

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Re: I stopped my CHs in their tracks, no drugs, no oxy
Reply #47 - Jun 2^nd, 2010 at 10:24am

JHK07 wrote on Jun 2^nd, 2010 at 10:14am:

hey Fram..... He is the administrator.... I called him "sir"

do you think I went off ?

I know there a numnuts around here who "2 post" and leave.

I am just kinda curious to the whole blood to the head thing.. I am not that technical. I dont know.

Like I said, I will let you know if it works again. And trust me, if it doesn't work... you will know too...

The "Are you a doctor?" line read as disrespectful to me. I would have just said something like the following:

I am going to give it a try. I already tried once and after 4 rounds, it was gone. I'll try again and report it here.

As I said, just my opinion.

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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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JHK07 CH.com Junior Offline I Love CH.com! Posts: 98 Gender:	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #48 - Jun 2^nd, 2010 at 10:42am Fram, Asking him if he is a doctor is a legit question. I might respect his replies more if he was. It may have came across disrespectful, but really, I just wanted to know.
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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: I stopped my CHs in their tracks, no drugs, no oxy Reply #49 - Jun 2^nd, 2010 at 10:48am JHK07 wrote on Jun 2^nd, 2010 at 10:42am: Fram, Asking him if he is a doctor is a legit question. I might respect his replies more if he was. It may have came across disrespectful, but really, I just wanted to know. I'm at a loss for words. Potter
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