I thought I'd take a shot at starting this thread and see where it goes. CHs come with so many frustrations its difficult to say which is more annoying, but at the top of my list are the "well wishers" who just have to tell us about their newest idea on what is wrong with us and how to fix it. It's like gramma's chicken soup-does the trick for lunch but isn't a cure-all.  The flip side of this are the supporters and loved ones who really want to support and love but aren't sure what to do. So...this list.

I've come up with a list of things I do want from those closest to me:

1.  Take a little time and read this website; I am neither crazy nor suffering from a hangnail.
2.  Assist me with abortives when the pain is too great for me to be able to think straight.
3.  Shield me from "unwanted" outside contacts who may not like my "dance with the beast."
4.  Remind and encourage me to continuously evaluate the preventatives I am taking, and to seek out other, better ways to deal with this.
5.  Talk to me; don't let me sink into a black hole pity party which so easily comes.

Curious if others have something similar to this list?  To be quite honest, our loved ones really do want to help. Being helpful, however, can be very frustrating if it isn't immediately helpful. Blessings!