My understanding is that this is a forum for the sharing of information about cluster headaches; how and why we get them and what the current science is as to their resolution. Our new Shakespearean friend apparently knows all that and is instead looking for a shoulder to cry on; someone who understands his plight and the depth of his suffering. Well, I've got news for him. This isn't a tea party where everyone sits around with rheumy eyes, patting each others shoulders and saying how sorry we are for each others sad states of affairs. Most people here are in the same f*cking boat and some of their boats are sinking a lot faster than his.

Like most any human being who isn't totally self-obsessed, if I see someone drowning, I reach in and pull him out of the water. I don't ask why he's drowning or if he'd like someone else to save him; how much he knows about others who have drowned or even if he knows how to swim. I don't even offer him sympathy. I just pull him out of the water. His history and the specifics of his particular circumstance don't really matter until the immediate problem of his life or death has been resolved. Iago wasn't clear why he came here - even to himself. He came off like he had reached the end of his rope; that he was drowning and asking for help. I read all the posts. No one asked anything of him. No one forced anything on him. Everyone was just trying to pull him out of the water, offering suggestions about things that he didn't mention having tried, that had worked for them. Having cluster headaches isn't the worst of his problems.

Iago, if you happen to come back and read this, please know that I sincerely hope that you find your way out of this Hell, and soon. There are many of us there with you, also looking for a way out. We only differ from you in feeling that by sharing what we've learned with each other we can find our way out faster. If you ever decide to return, you'll be welcomed and you'll find us eager to share what we've learned with you.

Offers brew a kleenex.

AMEN! Brew i hate it when u have sniffles

What Jimi said.  I wish I had CH for 28 years and was episodic!  That would give me bout 6 years of my life back, and I'm grateful for all the advice I can get here.  If Iago doesn't want it he doesn't have to take it.  The same door he came in will get him back out.  I hope he will stay, but if he does he will need a serious attitude adjustment.

Jerry

I guess its time for me to throw out a long overdue thanks to all the people who have offered advice on their experiences and what has worked for them...

!!!!!!!!!!!!!!!!!! THANK YOU ALL !!!!!!!!!!!!

Thanks to you people, I have been treating my CH's for 5+ years now with absolutely ZERO prescriptions, I only use O2 for abortive and mushrooms for prophylaxis! I discovered that I can abort 95% of my HA's with 6-10LPM O2 putting the end of the hose in my mouth (I have a thick beard and non-rebreather doesnt work for me) and letting the tank inflate my lungs. The most important tip I got was from a nice lady named Roxy who informed me that it is most important to force all air out of the lungs and breathe in until completely full and repeating. I use the lower flow rate because I find it forces me to relax (is that irony or oxymoron? hehehe) and concentrate on my breathing and not the pain. And of course Jhonny mule(not here anymore?) suggesting the shrooms for a preventative.

I live on Vancouver Island, so shrooms are not hard to find...I guess I'm lucky that way.

Iago, I realize this group can seem adversarial on certain subjects, but generally are just as miserable with the CH beastly condition as you are, we all go there...but we dont all make it through...I hope you can make it through this very difficult time, I know what you are going through...I am episodic and in week 13, I am near the end and can barely wait for my remission - CH'ing out for 18 years and deperately seeking resolve to this condition that we suffer from. This is the only place I can go where people understand...I have no one near me that has this that I can talk to about it...and none of these not a very nice person doctors take my pain seriously...makes me wanna choke their dumb asses sometimes.
There is good information, good people and good intentions galore on this site...even if you only lurk and read without posting...you will NEVER find a better place with as much information dedicated to our condition.

Good luck and I hope you find resolve wherever you may find it...and if you do find something good, please come back and let us know too...we will ALL appreciate it!

Once again, thanks to ALL of your for you ideas and your support...you have saved my life!!

Best regards,
Mikey-de

Johnny said:
Quote:

I much prefer the side-effects of the shrooms...matter of fact...I quite enjoy the side-effects...heh heh as well as enjoying the pf time during and after dosing!

Sooooo...frigging woohoo!! I just got my new M tank!!! yeeeehawww!!! no more trips to the hospital so no more of the same crap with different damned fools.

I'm stoked AND stocked...figgers, almost done this cycle...lol

PF wishes to you all!

mikey-de

mikey-de - could you do us a favor and go in and update your "User CP" to reduce or eliminate the line that shows where you're from? it crosses over into the body of each of your posts and obliterates the first few words of one of the lines. look above if you don't see what i'm talking about. thanks.