Two down, Mets and Stankees, now time for team USA to step up.

David,

Glad to see you are getting some relief.  I hope it lasts.  Keep up the fight.

Brett C.

Post dose 5 update and then I will be quiet for a little while. Friday was my second pain free day that week, it was so perfect I went and played golf again while my "cocktail" was home soaking waiting for our 10pm rendezvous. Pretty much the same reaction to the cocktail as the previous 4 times, some lightheadedness and a little tingling but no visions or visits from guides like other therapies I have read about  . I got hit three times on Saturday, all 1 to 3s and all 3 took awhile with 02 to abort. This seems to be kind of standard that the day after the dose I get more attacks and they are harder to abort but if you look back to my first day after dose #1 what a difference in kip level, frequency and duration. Today has been great, one minor attack this afternoon that I decided to try powdered ginger as an abortive because I love experimenting on myself so much LOL. I followed the directions on the Ginger post on this site and I have to say that it worked just fine for a low level attack. I still prefer 02 but to know this is out there for those times you can't get to 02 and you are not in mid-cycle was worth the experiment, the more bullets we have the better. I am going to make up a little in a water bottle and carry it in my car with me and I also bought some ginger cookies, why the hell not. I am done dosing, I am going to let this run it's course and see if the cycle gets completely broken. If nothing else I have greatly reduced both frequency and pain level of the attacks as well as enhancing the viability of 02 (and using a hell of a lot less of it). Thank you to all who have been reading this and especially thank you to all that have posted words of encouragement and advise. I am not going to post daily results again for a little bit, as I said I am going to let it run it's course and see what is what in a week or so. This past month has been an amazing experience, I have never met a more caring, selfless, and dedicated group of people, it has almost made it worthwhile to be dealing with these things (again almost). Pain Free Days and Nights to all.


David      

Best of luck to you and wishes for many pain free days ahead!!!!

I really don't know what to say at this point other than this really works!!!! I have been pain free all week, a little twinge, a little shadow here and there and I have not had to touch my 02 all week. The BIG test was passed with flying colors Wednesday night, red wine with dinner, 14 year old Oban single Malt Scotch after dinner. Since I haven't had a drink in almost two months it hit me like a ton of bricks, but NO CLUSTER ATTACK! No post night out attacks, went to a networking event last night and had a couple of rum and diets (didn't want a repeat of the previous night so I took it easy) and again NO CLUSTERS!!!! I truly believe I am in remission but as we all know the beast can do many strange things and attack when we least expect it. I will post once in awhile here just to keep this updated. I am going to begin maintenance dosing in a few weeks so any input on timing and how much would be greatly appreciated. This wasn't easy but I will tell anyone considering it, it was worth it. My cycles normally last up to 18 MONTHS with 4 to 8 full blown attacks a day and my experiment started only a little over 4 weeks ago, so I figure I cut out 16 months of my cycle and averaging 6 attacks a day that translates into about 3000 attacks I won't get, not to mention the money I am saving on oxygen, Imitrex, and energy drinks.Thank you again to all for your support and advice, you folks and this site have helped give me a large portion of my life back and hope for the future.


David

It's that damned M_ts hat. Try wearin a Yankees hat for awhile.  I'm bettin yer head would appreciate it.

          Potter

David, This is such good news.  I will be watching very closely to see how you are doing.  I am overjoyed that you have found something that works for you!!!  My hope is that soon everyone will find something that works this well.
Lynn

It has been a week since my last post so I figured an update was in order. Great week overall, still getting twinges and shadows but I did not have to use any 02............... till last night. I had my first full attack in two weeks at about 7:30 last night up to a 4Kip aborted with 02. Today has been better however, no shadows and only a twinge or two here and there. Since I haven't dosed in two weeks I figure a maintenance dose is in order so I ground up some little guys (around 40) this morning and they have been home soaking away till I see them tonight. I am a little concerned about post dose hits and also that maybe the "remission" hasn't fully taken. I will post over the weekend with my results. Wishing all PF Days and nights.

David

PS: Changed my picture for you Potter, I hope you like the new one LOL

I like the hat better. Wouldn't you just kill for a subway series?

         Potter

davidj35 wrote on Jun 28^th, 2010 at 12:00pm:


My cycles are similar.  I'm 40 now, but I first started getting CHs when I was 18.  I was typical episodic, but over the years, my cycles got longer and longer.  My last cycle was for about 24 months, then I went in remission for about 16 months, now I'm back in for 7.

I also usually switch sides at a point during the cycle.  During the 24 month one, it was about half-way through...however, for this one, I switched about 3 months in.

My attacks can come as frequently as yours, but I have had some varying success with Verapamil, Nerve Blocks and IV DHE.

I'm not sure if I can answer your question, but if you are never truly pain free, it does sound like you are at least progressing towards chronic.  Even though technically they state if you have CHs for 12 months straight w/o remission you are, I currently don't consider myself chronic (even though when I created this account I thought I was).  I do go into remission.

I've been reading up on your posts and following your experiences,  I just ordered RC seeds and am going to give them a try...thanks for keeping us updated.

Chronic

David, this has been an amazing read-kinda like a Ludlum or Clancy thriller. OK, maybe not that edge of the seat, but I mean it-fan*****tastic! Like you, I've found some relief for the past 5 weeks. They're not gone, but I do sleep (sleep so rocks!) and easily controlled with Monster and O2. My prayers are with you, man...and for everyone who is still dancin'.  lance

Chronic,

Thanks for your response, let me know how the seeds work for you and PM me if you have any questions.

David

Well the verdict is in, even though it has only been a week since dose 6 I am doing another tomorrow night. I just got off the 02 with my first multiple hit day in weeks. I am still very very much behind this therapy as my normal day would be 8 to 10 hard hits while in mid-cycle so this is working. I guess I got kind of spoiled having those wonderful Pain Free Two weeks. As I have preached now to many others starting this treatment, Patience and Persistence is the key time for me to start practicing what I preach. Happy Independence Day weekend (kinda ironic for us if you get my drift) and wishing PFDANs to all.

David