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Afrin NoDrip / Anbesol Maximum Strength Liquid mix (Read 27654 times)
Potter
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #75 - May 25th, 2010 at 11:07am
 
Melissa wrote on May 25th, 2010 at 7:38am:
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Jeff Savage
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #76 - May 26th, 2010 at 7:42pm
 
jmac wrote on May 25th, 2010 at 5:52am:
Jeff,

Your question of "what comes first"  is the BEST question.  I understand that there are rhythms and cycles regulated by the hypothalamus, but the fact that I get these headaches ONLY in the spring makes me think it HAS to do with pollen and some type of sinus problem.  Perhaps there is some type of unknown blockage in there year round... and then spring hits... pollen aggravates... and bam! clusters begin... until either the pollen subsides or the "blockage" comes out.   I just have to add that my cycle started this year after I power washed my house.  There was a ton of pollen and green algae on the side of the house.... That next morning was my first hit.   A question i have is:  What comes first, the headache or the nasal drip?  Could it be that while sleeping at night fluid is being produced and gets caught up there?  I find that the more fluid I get out, the closer I am to the end of the attack.  But, then again... it could just be a result of the headache...    Either way, I think it would benefit us all to keep an open mind because no one knows 100% what is going on.  Jeff, I believe you are on to something... maybe not for all cluster heads, but I personally can't get past the fact that I only get these in the spring.  There HAS to be something there.  Something that has NOTHING to do with biological clocks or  rhythms.   I believe in daily clocks and rhythms but every spring?  That doesn't make any sense to me.



Can I get an AMEN!!!!!!!
Thank you sir
Jeff

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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #77 - May 26th, 2010 at 8:07pm
 
jmac wrote on May 25th, 2010 at 6:15am:
Also, if it is strictly the hypothalamus, then wouldn't the pain manifest on both sides of the head?  Or at least vary from side to side?  In my case it is always on the left side.  Always.


Seems fairly odd to me that a reactive center of your brain does anything other than react, Maybe to outside stimulus or something?
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Jeff Savage
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #78 - May 26th, 2010 at 8:09pm
 
Jeff Savage wrote on May 26th, 2010 at 7:42pm:
jmac wrote on May 25th, 2010 at 5:52am:
Jeff,

Your question of "what comes first"  is the BEST question.  I understand that there are rhythms and cycles regulated by the hypothalamus, but the fact that I get these headaches ONLY in the spring makes me think it HAS to do with pollen and some type of sinus problem.  Perhaps there is some type of unknown blockage in there year round... and then spring hits... pollen aggravates... and bam! clusters begin... until either the pollen subsides or the "blockage" comes out.   I just have to add that my cycle started this year after I power washed my house.  There was a ton of pollen and green algae on the side of the house.... That next morning was my first hit.   A question i have is:  What comes first, the headache or the nasal drip?  Could it be that while sleeping at night fluid is being produced and gets caught up there?  I find that the more fluid I get out, the closer I am to the end of the attack.  But, then again... it could just be a result of the headache...    Either way, I think it would benefit us all to keep an open mind because no one knows 100% what is going on.  Jeff, I believe you are on to something... maybe not for all cluster heads, but I personally can't get past the fact that I only get these in the spring.  There HAS to be something there.  Something that has NOTHING to do with biological clocks or  rhythms.   I believe in daily clocks and rhythms but every spring?  That doesn't make any sense to me.



Can I get an AMEN!!!!!!!
Thank you sir
Jeff



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Potter
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #79 - May 26th, 2010 at 8:21pm
 
You're muttering to yourself.

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Jeff Savage
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #80 - May 26th, 2010 at 8:28pm
 
Redd wrote on May 24th, 2010 at 8:41pm:
Jeff Savage wrote on May 23rd, 2010 at 1:06am:
Thank  some folks coming out to play



I'm done "playing".  Obviously Jeff has all the answers and the hundreds of years of collective professional sufferers accounts will not dissuade his know it all additude.

Plain and simple, if there is an infection at the root of the headaches, it's not "Cluster Headaches".  It's a condition that mimics clusters.

I'm outta this debate.

Edit to add:

Jeff one last thing.  You're sugar coated belligerence is not lost on us. 

Here is my assessment.

You had a sinus infection.  You don't suffer CH.   

Feel blessed, and have a great pain free life.



Normal, artificial, in vitro, and in one case immaculate.

4 causes

same diagnosis

pregnant.

The cause of these is yet unknown. The diagnosis is made from the symptoms.
I have been clinically diagnosed with CH. If you want to call and straighten him out:

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If you need me to get you a HIPPA release let me know.

As far as my sugar coated belligerence goes, If it's any consolation it drives my wife up the wall too, bless her heart. Oddly her irritation seems to escalate in proportion with the amount of logic applied to the argument. Funny how that works
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #81 - May 26th, 2010 at 8:45pm
 
Well no wonder...you have faulty logic, and any reasonable person would certainly find you belligerent.

The fact that you have confused regulatory and reactionary in regard to the function of the hypothalamus is but one of your down falls.

Quote:
The main function of the hypothalamus is homeostasis, or maintaining the body's status quo.What Is The Hypothalamus?
The Hypothalamus is the control center of all autonomic regulatory activities of the body. It has been said that the hypothalamus is the brain of the brain.  It is the hub for  automatic and endocrine homeostatic systems such as cardiovascular, temperature, and abdominal visceral regulation. It manages all endocrine hormonal levels, sensory processing, and organizing body metabolism, as well as ingestive behaviors. It appears that almost everything the Hypothalamus does is related in some way to the management of brain and body connection, linking the psyche (mind) to the body .


Unless English is not your first language, this is clearly definitive as a regulatory function.

Now PLEASE...you don't have to go home, but most of us don't want you here.

Edit to add:  Additional definitions to illustrate.

Ok..yes I'm done. 

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« Last Edit: May 26th, 2010 at 8:56pm by Redd »  

"The goal of life living in agreement with Nature."  ~Zeno
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Linda_Howell
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #82 - May 26th, 2010 at 8:57pm
 
But Pegg...he Soooo loves to hear himself talk.

  This is getting too ridiculous for words.  Can we all just stop posting to this inane-ness?  He seems to have to have the last word..lets let him.  And move on to more intelligent discussions.   Roll Eyes Roll Eyes

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Hurt people.....hurt people.   Think about it.
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #83 - May 26th, 2010 at 9:00pm
 
One cause (sperm cell enters egg), one diagnosis: pregnant.

Four different methodologies.

There's your flaw.
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #84 - May 26th, 2010 at 9:05pm
 
jmac wrote on May 25th, 2010 at 6:18am:
Sorry.. wish i had posted this all together.  Jeff, I also have been using Afrin when an attack hits because I feel like it "opens" the passage up and allows the clear fluid to come out faster.  No idea if it is actually working, but its part of my "dance"  I am going to try the anbesol tonight.


Careful on the Afrin. Studies show that over use can actually have the reverse effect.

Also, my first post said that "it worked for me" because it had done just that . Later on I asked someone how, if this is solely a neurological malady a topical anesthetic possibly work to relieve the pain. The more logic applied the more things fall into place. Odds are that unless you are in exactly the same place in this sequence of events as I was when it worked for me, it probably won't work for you. In my case, had I tried the same concoction even a week earlier it probably wouldn't have worked  because the mass would have prevented the anesthetic from reaching the affected tissue. I hope you are lucky and it does give you some relief. Either way I STRONGLY suggest that you go see a Rhinologist to have a thorough exam of the tissue at the highest point within your nasal passage. They are specialist in this small area. They have the tools and expertise to do this type of exam.

If you make the appointment I STRONGLY urge you to refrain from acknowledging up front that you have cluster headaches or you'll likely get referred to a neurologist.
Regards,
Jeff
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #85 - May 26th, 2010 at 9:07pm
 
Linda_Howell wrote on May 26th, 2010 at 8:57pm:
But Pegg...he Soooo loves to hear himself talk.

  This is getting too ridiculous for words.  Can we all just stop posting to this inane-ness?  He seems to have to have the last word..lets let him.  And move on to more intelligent discussions.   Roll Eyes Roll Eyes



OK.  I am sad because I was going to ask for the HIPPA release so I could talk to his doctor. 

There goes my fun.

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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #86 - May 26th, 2010 at 9:13pm
 
FramCire wrote on May 26th, 2010 at 9:07pm:
Linda_Howell wrote on May 26th, 2010 at 8:57pm:
But Pegg...he Soooo loves to hear himself talk.

  This is getting too ridiculous for words.  Can we all just stop posting to this inane-ness?  He seems to have to have the last word..lets let him.  And move on to more intelligent discussions.   Roll Eyes Roll Eyes



OK.  I am sad because I was going to ask for the HIPPA release so I could talk to his doctor. 

There goes my fun.

Lips Sealed


And an allergist is THE final authority on CH....
Just like Fiengold the allergist was convinced food and environmental allergies were the root of all cases of ADHD.  PET scans proved that theory wrong 30 years ago, but people still want to believe it.
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #87 - May 27th, 2010 at 12:03am
 
Redd wrote on May 26th, 2010 at 9:13pm:
FramCire wrote on May 26th, 2010 at 9:07pm:
Linda_Howell wrote on May 26th, 2010 at 8:57pm:
But Pegg...he Soooo loves to hear himself talk.

  This is getting too ridiculous for words.  Can we all just stop posting to this inane-ness?  He seems to have to have the last word..lets let him.  And move on to more intelligent discussions.   Roll Eyes Roll Eyes



OK.  I am sad because I was going to ask for the HIPPA release so I could talk to his doctor. 

There goes my fun.

Lips Sealed


And an allergist is THE final authority on CH....
Just like Fiengold the allergist was convinced food and environmental allergies were the root of all cases of ADHD.  PET scans proved that theory wrong 30 years ago, but people still want to believe it.


He is entirely qualified to make the diagnosis and refer a patient to a neurolgist. Who, I might add have been doing a bangup job of solving the mystery.

This is getting too ridiculous for words.  Can we all just stop posting to this inane-ness?  He seems to have to have the last word..lets let him.  And move on to more intelligent discussions.

I agree 100%. All I stated in my first post was that I had found something that worked for me to relieve my headaches. I even referenced events in detail that led me to that observation. All for the sole purpose of inquiring whether or not anyone else that had also been diagnosed with CH had observed anything similar.
Not exactly sinister in my opinion.
If you read the post without reading the factual events that led to that statement available via the link and formed an opinion about me because of me that’s not my problem.
What is curious to me is the ire that I have sparked. Why is it so important to you to set me straight?
I had a physical event that led to the reduction of my headaches by 95% and getting better every day. That would imply that in my case, although diagnosed with CH based on my symptoms, mine wasn’t neurological.
I thought that it would inhumane not to offer that on the outside chance that someone would recognize anything in the chain of events that I described and at least go eliminate that POSSIBILTY.
Damn me for that. I can’t believe I had the nerve to be so bold to post fact.

Since that time, with a few exceptions, I’ve been hammered by an elitist bunch of patients trying to set me straight.

Until someone asks the question
“Is it “POSSIBLE” that the noted deviations in the Hypothalamus of chronic CH patients are acquired? Is it possible that they are merely a byproduct of years of the higher brain associating incredible internal pain with normally busy but quiet part of the brain that controls mood, anger, and violence while in not only a hypersensitive state but also exhausted? Could this patterned ABNORMAL association POSSIBLY cause this portion of the brain to be so incredibly over stimulated hit after hit, night after night, year after year that it might actually be mutated due to heat or electrical impulses?
Someone ought to ask that question.

To many folks relief, this will be my final post.
As moderators it should concern you that a member would make a comment like angela40 did:

Jeff,
I am new to this board and avoid posting much (I'm sure you can figure out why).


Hope everyone has a great life including the antagonistic. Mine is much more pleasant these days without ever stepping foot into a neurologist’s office.

Potter: Thanks for what you gave back then x 2. You gave more than I’ve probably got. Hope like hell something over there didn’t cause what led you to this board. You have my utmost respect. Thank you.


Later
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #88 - May 27th, 2010 at 12:19am
 
To many folks relief, this will be my final post.

Smiley
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #89 - May 27th, 2010 at 12:24am
 
And all God's children said Amen.
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #90 - May 27th, 2010 at 12:30am
 
Bye.

Best,

George
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Re: Afrin NoDrip / Anbesol Maximum Strength Liquid mix
Reply #91 - May 27th, 2010 at 7:11am
 
Quote:
Why is it so important to you to set me straight?

Because, believe it or not, you are not the last newbie that will come here. It's kind of a big deal to us that newbies get the real scoop on what this condition is and is not.

Have a PF life.
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