Click this link to read a post I like on the clusterheadaches.com message board...

Oct 5^th, 2024 at 1:20am

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hello fellow sufferers

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

Hello fellow sufferers (Read 1408 times)

tidnee CH.com Newbie Offline I Love CH.com! Posts: 1	Hello fellow sufferers May 11^th, 2010 at 6:51pm I am sadly one of those that has cluster headache/migraines as well. I'm currently having a headache that has lasted three weeks. I am so glad to know there is somewhere to find support for this. Some people just do not understand unless you have it.
Back to top	IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Hello fellow sufferers
Reply #1 - May 11^th, 2010 at 7:29pm

We have a couple of your brothers/sisters in pain on this board who have the dual diagnosis of CH and Migrains. I thank my lucky stars I'm not one of them as either is a big enough millstone around a persons neck!

When you get a chance, give us a rundown of what you use for your CH. Maybe we can throw an idea or two your way. Do you have oxygen yet? A real life saver for a rapidly growing number of us.
Glad you found us!

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

bejeeber

CH.com Hall of Famer

Offline

Posts: 1359
Gnashville
Gender: male

Re: Hello fellow sufferers
Reply #2 - May 11^th, 2010 at 9:58pm

What Joe said.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

IP Logged

Erin

CH.com Newbie

Offline

I Love CH.com!

Posts: 13
Gender: female

Re: Hello fellow sufferers
Reply #3 - May 13^th, 2010 at 8:29pm

I tried to explain these Cluster Headaches to friends and they all looked on my like I was not even on this planet...It's hard, there is a letter I believe I found it on this board, that explained it to where my friends could understand....instead of them saying oh booohooo she has a headache, they said HOLY CRAP....how can we help!

Can someone point tidnee to the letter?? I will look for it too, when I found it was in the middle of a cycle so I am not completely sure where it saw it...

All I can say to you Tidnee, is the advice I received when I first joined here was absolutely life saving! The information given to me from these kind people is priceless....and easy to understand.... so don't be afraid to ask, someone here can point you in the right direction....I can't be a lot of help, as I haven't been here for only a few weeks, but I come every day! Just to see the information again, so that it's firmly planted in my brain! Cool

IP Logged

bejeeber

CH.com Hall of Famer

Offline

Posts: 1359
Gnashville
Gender: male

Re: Hello fellow sufferers
Reply #4 - May 14^th, 2010 at 2:17pm

Here ya go Erin:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: Hello fellow sufferers Reply #5 - May 14^th, 2010 at 9:39pm Welcome from another clusterhead. Coach Bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

wimsey1

CH.com Alumnus

Offline

I Love CH.com!

Posts: 2457
MA
Gender: male

Re: Hello fellow sufferers
Reply #6 - May 18^th, 2010 at 8:37am

Hey there, Tidnee, and welcome. You are right-most people absolutely do not understand CHs. And sometimes we make matters worse when we are unable to articulate why we want them to understand. Do we want pity or sympathy? Yes and no. I don't mind a little pity and sympathy from time to time, but ultimately, no. What I want is support. Support from colleagues, bosses, family and friends. No more chicken soup remedies, PLEASE! So I've come up with a list of things I do want from those closest to me:

1. Take a little time and read this website; I am neither crazy nor suffering from a hangnail.
2. Assist me with abortives when the pain is too great for me to be able to think straight.
3. Shield me from "unwanted" outside contacts who may not like my "dance with the beast."
4. Remind and encourage me to continuously evaluate the preventatives I am taking, and to seek out other, better ways to deal with this.
5. Talk to me; don't let me sink into a black hole pity party which so easily comes.

Curious if others have something similar to this list? To be quite honest, our loved ones really do want to help. Being helpful, however, can be very frustrating if it isn't immediately helpful.

IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Hello fellow sufferers Reply #7 - May 18^th, 2010 at 9:10am Had never done one but damn....I like that. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!