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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › change in cluster

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change in cluster (Read 462 times)

anthony g

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manhattan nyc
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change in cluster
May 4^th, 2010 at 8:05am

Hey all
I wanted to ask if anyone experienced the same thing? I was recently diagnosed Hemicrania continua. (chronic migriane) I went into cycle at christmas and im still getting daily headaches that have been different than cluster's! I was under the impression that it was "shadows" but as time has been going by the "shadows" seem to be a bit different more like a headache Shocked

! 2 weeks ago when i went to a new headache specialist he diagnosed me with migraine/cluster mix. what i am experiencing now is more chronic migraine! Seems like the cluster's morphed into chronic migraine? I hope this is making sense lol I just wanted any feedback to know if anyone experienced anything like this? cluster's could be confusing enough but to now have a mix of both YIKES!!!
hope all are well look forward to any input!
thanks
anthony

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Guiseppi

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San Diego to Florida 05-16-2011

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Re: change in cluster
Reply #1 - May 4^th, 2010 at 9:45am

There are at least a couple of people on the board who have dual diagnosis of CH and something else. I think the most common one is the CH and migrain. Personally, I think that sucks! Angry

It's one of the reasons we so strongly encourage seeing a headache specialist as it's hard enough to diagnose one of these conditions.....go adding in a dual condition and you can see the nightmare it can be to get the accurate diagnosis. Here's hoping you can get a good handle on it.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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anthony g

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manhattan nyc
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Re: change in cluster
Reply #2 - May 4^th, 2010 at 10:11am

thanks joe!!!
sorry for the other folks that have both but glad to hear im not too much of a "freak" LOL! The specialist that dignosed me was in my opinion excellent! it was a 3 hour app. and so thorough!! Now im trying to see whats will be my best defense! Like cluster's takes time to know what works! thanks for the response my friend! how u been? still in cycle? I pray your not for u my friend!!
Anthony

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