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jayrobinson

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Tacoma Wa
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I'm lost
May 2^nd, 2010 at 6:57pm

Hello all,
This is Jay again. (clusters every 5 years)
I have good news and bad news. The good news is that my insurance came through with some medicine. I have imitrex injectibles and a 40 lb liquid o2 tank high flo setup. The cycle I was "supposed" to have over the holidays did not come. The pain anticipation and the fear has subsided. The bad news is that I will surely be blindsided when the beast reappears and sent into a new cycle of pain and repeat.
The good/bad news is that I have saved up 1600mg of imitrex and have an o2 setup that I have never used. I am still unsure of it's effectiveness and compatibility with my physiology/affliction. The imitrex has a shelf life of about a year. I feel guilty about having it and not using it.
Though I am pain free the beast lurks within me and were it dead I would still fear it's dead body. Is there no relief from this anxiety? Thank you listening and my tears and prayers go out to all of you.
Jay

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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: I'm lost Reply #1 - May 2^nd, 2010 at 7:24pm I've used imitrex 3 years past the shelf life. Worked just fine
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Linda_Howell

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Re: I'm lost
Reply #2 - May 2^nd, 2010 at 7:28pm

Hi Jay,

Why are you lost? Sounds to me that you have your arsenal at the ready (and a good one at that) and are ready if and when he should reappear.

The anxiety you speak of is relative. Go out and live your life. Tomorrow isn't here yet. Do NOT let this beast win. If you live in fear, then that is all your life will consist of. Live for the moment. Live for the day. Then live for the week, month, year, etc.

What hobbies or interests do you have? If you are not doing them then you are letting "HIM" win.

Linda

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Hurt people.....hurt people. Think about it.

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jayrobinson CH.com Newbie Offline I Love CH.com! Posts: 13 Tacoma Wa Gender:	Re: I'm lost Reply #3 - May 2^nd, 2010 at 8:21pm Thanks for the reply Linda. You are right of course. I just needed to hear it.
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: I'm lost Reply #4 - May 2^nd, 2010 at 8:49pm What Linda said! Now you've heard it twice! Never give up and never give in! Carol
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Dallas Denny 62 CH.com Old Timer Offline Semper Fi !!!! Posts: 295 Island Bayou Mushroom Farm Gender:	Re: I'm lost Reply #5 - May 2^nd, 2010 at 10:09pm And I had good results with Trex last year that expired in 2004.... DD
Back to top	I am lost and have gone to find myself....if you should see me before I get back....please ask me to wait until I return!! IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: I'm lost Reply #6 - May 2^nd, 2010 at 11:00pm I've used expired trex too, worked great. Understand that you now have some serious weapons in this fight. The days of hunkering down in your fox hole waiting to get your ass kicked are over!!! Live your life between the hits, and beat his butt if he shows his ugly face! Joe
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shaggyparasol

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Re: I'm lost
Reply #7 - May 3^rd, 2010 at 3:10pm

Hi Jay! My philosophy is to get your arsenal ready, live your life and when your cluster friend attacks, counterattack! you are ready, go have some fun. The first one might sneak in, but not the second.

Now, on to the shadow period before the attacks. I definitely get them and I have read that many (most) others do too?? maybe you do too and already know what I am going to say. It took me a long time to get in touch with this: a few weeks before the attacks I get the light pressure/super small kips in the same location as my full blown attacks. Not much pain, just an annoyance and.......A HUGE WARNING THAT YOUR CLUSTER CYCLE IS SOON ON ITS WAY!!!

If this is true for you then you will have a week or 2 to try out your O2 and make sure you are carrying your trex or whatever. For the 'busting' crowd, this is a great time to dose and it doesn't have to be big at all.

Point being: the series of shadows gives the warning (stray shadows don't mean anything). Might all be different for you, but mine runs that pattern and it took a long time for me to figure it out. Good luck! Cluster are not a death sentence! Cheesy

(googly eye guy says live your life and enjoy it.)

--Shaggy

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OneEyeBlind

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Re: I'm lost
Reply #8 - May 3^rd, 2010 at 4:50pm

Yup, what the others guys said. I used trex that was 5 years old and it worked like a charm. I'm so glad I never threw it away. I also had the warning headaches for a week before I finally admitted I was back in cycle .... too late, cause I hadn't called the doc and re-filled any of my old scripts. By week 2 I was in agony. Next time, the beast is not gonna get the better of me. I'm stocking up my arsenal, and I'll be ready. If he don't come knocking for another 5 years, I'm just gonna be doing the happy dance for quite a while !

I'm saving my verapamil this time as well, cause that did wonders for getting them under control.

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One cannot step twice in the same river, for fresh waters are forever flowing around us.

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bejeeber

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Re: I'm lost
Reply #9 - May 3^rd, 2010 at 9:51pm

Me too...I've used trex many many years past it's "expiration", it was always still good.

And why not use the 'ol imitrex tip which allows you to use lower doses just as effectively, and not have to worry as much about taking too much?

Or maybe you're already doing that.......if not, here's the link of goodness:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Congrats, you have one seriously powerful beast bashing arsenal with which you may even be able to abort each and every attack!

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« Last Edit: May 3^rd, 2010 at 9:53pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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