Based on your first post, we need to get you on a better track! Does your doc have you on a decent prevent like verapamil, topomax or lithium, to reduce the number and intensity of your hits?

Do you have oxygen, the miracle elixir for many, myself included. No more 90 minute rock and roll attacks, the majority of the time I crush them in less then 10 minutes with only oxygen. Many are discovering 02 and hundreds on the board will swear by it!

Imitrex injectables and nasal spray? Expensive but when the 02 fails me a shot of trex will usually vanquish the beast.

When you get a chance give us a rundown of what you've tried, what has and hasn't worked. And welcome to the board, you become family around here pretty quick. Cuz we know EXACTLY  what you mean when you say your head REALLY hurts!

Joe

I'm in the states but we have several of you old tyranists in the old country on this board! I know they have succesfully obtained oxygen for CH and can direct you on the "how to" should the need arise. In order:

First!!: Get off the Ibuprofen! Does damn little for CH and ruins your internal organs! Then we need to get you on a 2 pronged approach.

1: A good preventative routine. That's a med you take daily, while in cycle, to reduce the frequency and the intensity of your hits. I use lithium at 1200 mg a day, will block up to 70% of my hits. Verapamil is a common first try prevent as is Topomax. Sadly it's a trial and error to see which works best for you. But well worth the effort when you find the one that works.

2: A good abortive, the damned headache is starting now what? We've already discussed 02, as you'll see from reading the board it should be your first line abortive. Close to a freaking miracle how fast it defeats the beast. Imitrex injectables are very effective for me if the 02 doesn't stop it or if I get caught away from home without 02.

Try an energy drink for now, any containing the combo of caffeine and taurine. I like sugar free Red Bull just based on taste. Chug one down at the first sign of an attack. Many can abort or really reduce a hit with just that. I use them for those annoying shadows that won't go away. If you like the nasal treatments, try 4Way Nasal Spray. I've been using it this cycle for the shadows. Snort it on the affected sides nostril.

Lastly, check out OUCHUK.com......I hope I have that right, a great source for you on that side of the pond with more specific info about how to get what you need in your system.

Do stick around, we hate when anyone's getting whooped on by the beast.

Joe

edited cuz I knew I had it wrong!!!

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Some of what you have listed are definitely triggers for so many CHs-things like cannabis and alcohol. Others are no good whatsoever for CHs-like asprin, tylenol and headbangin' (it just seems like something to do). And some are potential triggers-like sleep, rest, exertion, no exertion, so sleep...you get the picture. Each CH experience is different and you have to sort out your own triggers and responses. Still, you've been given great advice here: find an abortive that does work (O2, energy drinks, injectables) and find a preventative that works for you...for now. And for heaven's sake, find a knowledgable (or at least educable) neuro! Remember, no one knows nor is more intensely interested in your cluster than are you!

Welcome,

Youi need a big ole steak.

Coach Bill

stolerz wrote on Apr 30^th, 2010 at 12:40am:


I hate that.  Seems like I've seen the sun come up from the wrong end (a bad night) way too many times.

Hope a renewed approach yields you some good nights very soon.

Best wishes,

George