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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Neurologist reference

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Neurologist reference (Read 775 times)

Dona

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Neurologist reference
Apr 20^th, 2010 at 7:30am

Hi! I am the mother of a 22 year old son who we just realized has had cluster headaches since 14. Your site has been wonderful to both him and I to know we are not alone. He is away at college in Norfolk, Virginia and I am earnestly seeking a neurologist in that area for him. I would appreciate any references someone may have. Thank you so much!
Dona

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Bob Johnson

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Re: Neurologist reference
Reply #1 - Apr 20^th, 2010 at 8:51am

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.

Bob Johnson

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Dona CH.com Newbie Offline I Love CH.com! Posts: 2	Re: Neurologist reference Reply #2 - Apr 21^st, 2010 at 9:18pm Thanks so much for the advice. We are lucky and have found a doc who already has cluster headache patients and is starting my son on imitrex. Here's to hoping it works.
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LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: Neurologist reference Reply #3 - Apr 26^th, 2010 at 12:46am OUCH recommended doctors in Virginia Nurang Gill Woodbridge Dr. Steven D. Nack Blacksburg Stuart Stark Alexandria Dr. Alan Fenderson Virginia Beach . Dr. Michael Mareska Kara Clark NP Mechanicsville/Richmond VA USA
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Guiseppi

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Re: Neurologist reference
Reply #4 - Apr 26^th, 2010 at 10:34am

Imitrex is a great abortive, but is only a piece of a whole treatment plan. A good prevent will block many of his attacks and save you a fortune on imitrex. Also, please read the oxygen info link on the left, cheap, and amazingly effective. The following is a common approach for many to treat CH, it's 2 pronged.

1: A good preventative. That's a med you take daily, while in cycle, to reduce the frequency and the intensity of your hits. I use lithium at 1200 mg a day, blocks about 70% of my hits. Don't let the Hollywood stereotype of lithium scare you, if I didn't tell you I was on it you'd never know! Verapamil is usually the prevent doc's try first, very effective for many, topomax is also used by many on the board.

2: A good abortive, the attack starts, now what? You may have heard oxygen mentioned... ...yeah...over 30 years of CH here and 02 is still my fastest and most effective abortive, generally 6-8 minutes and I'm pain free. Read the link as it needs to be used correctly ot it loses much of its effectiveness. I occasionally resort to Imitrex shots when I'm really getting creamed or find myself (foolishly) away from my oxygen.

This is what has worked well for me, hoping it gives your son some tools.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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