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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Newbie from Wisconsin. So glad I found this site

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Newbie from Wisconsin. So glad I found this site (Read 790 times)

atosh

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Newbie from Wisconsin. So glad I found this site
Apr 17^th, 2010 at 11:25pm

My name is Angela and I have been suffering from clusters since I was about 7, I am now almost 21. I fist started noticing these when I got a trampoline, I would jump on it and BANG headache that wouldn't go away completely for weeks on end. I went to a nuerologist and they put me on at least 20 different drugs before setteling on nuerontin which messed me up pretty bad. I was on that till I was 12 when they switched me to Zongran, which wasn't much better. I took that till I was 17 and then gave up, no matter what I told them they kept telling me it was migraines and I kept telling them I've had migraines and these ARE NOT migraines. I was off drugs completly for 3 years until I recently had 2 horrific attacks. One lasted 2 weeks with absolutly no breaks, the most recent one is on it's 7th day and still going, I get breaks in this one though every now and again. I went in last week and even though I gave them EVERY symptom of clusters he still didn't listen and rushed me out of the office with a prescription for some new drug. I have now transferred out of that town to a new neurologist who actually listens to what I have to say and is helping me cope with this.

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bejeeber

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Re: Newbie from Wisconsin. So glad I found this site
Reply #1 - Apr 18^th, 2010 at 10:44pm

Hi Angela,

Glad to hear that at least the new Neurologist is listening and helping.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Newbie from Wisconsin. So glad I found this site Reply #2 - Apr 18^th, 2010 at 10:55pm Have you taken the "cluster quiz"? You can see it at the link below. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Read all you can on this site and Good Luck. Don
Back to top	Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not. IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: Newbie from Wisconsin. So glad I found this site Reply #3 - Apr 19^th, 2010 at 9:40pm Welcome, Im glad we found you!!! Coach Bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

clusterica CH.com Junior Offline Posts: 30 Israel Gender:	Re: Newbie from Wisconsin. So glad I found this site Reply #4 - Apr 20^th, 2010 at 12:03pm Hey Angela... i was told that energy drinks are helpful and i tried to drink the minute that i feel that attack is comming.. i must say - it really helped me... next week i'm gonna start acupuncture and i'll tell you how it will go.. feel good.. Anna
Back to top	Don't take life too serious. You'll never escape it alive anyway IP Logged

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