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Danny A

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You're real
Apr 17^th, 2010 at 9:56pm

Thank you for being here. I needed you to be. Everything feels different now. You wont judge me for being weakened by this thing. I felt so victimized but now I feel like I have a place to go. I don't know who you are, but I do know enough about you that I start crying. You are real. I'm not crazy or weak. It's not just me. Thank you so much. My name is Danny.

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: You're real Reply #1 - Apr 17^th, 2010 at 9:58pm Yeah....we are real alright. Welcome....pull up a chair and tell us about yourself.
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bejeeber

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Re: You're real
Reply #2 - Apr 17^th, 2010 at 10:11pm

Hey Danny, glad you're here now.

The more you read here, I think the more you'll sense that for many of us (the lucky ones) this CH thing can be dealt with, and that there are many ways of doing so that you won't likely be advised about (or at least won't be correctly advised about) at the doctors office.

You might want to read through some of the other "Getting To Know Ya" topics - I wish I woulda thought of doing that when I first got here - there are some common threads running through the replies in them that can give you a quick idea of what has most commonly helped others.

Yep this a good spot for comparing notes and getting advice about how to get some real relief.

What treatments/meds etc.have you been on so far?

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Danny A

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Re: You're real
Reply #3 - Apr 17^th, 2010 at 10:31pm

I am 34 years old. I work in sales and pretty good at it when I can be. I have never been diagnosed with Cluster Headaches. Which is really making me mad the more I identify with the symptoms and sufferers. This has been happening to me since I was about 20. I have tried: Imitrex, Ibuprofen, Acetaminophen, Vicodin, cloth bags filled with hot rice (my lulu), scalding hot showers, blunt force trauma, and sex. They all help sometimes. Lately nothing does. I was fine for about two years. But now the pain is back and is worse then ever before. The part that hurts the most is the way my family looks at me. Nothing seems to help that but ... then there is you. I am going to log for the night I have a guest coming over later on I need to prepare for. Thank you for the welcoming community. I really needed someone else to relate to.

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Guiseppi

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Re: You're real
Reply #4 - Apr 17^th, 2010 at 10:56pm

Well it's quite possible you are crazy! Wink

But welcome to the board. In order:

1: Get yourself to a neuro who specializes in headaches.

2: If it turns out it is CH you must take a 2 pronged approach towards dealing with it.

A: A good prevent, that's a med we take daily while on cycle to reduce the number and the intensity of your hits. I use lithium, Verapamil is a typical first round try which enjoys a high rate of success. Topomax is also effective for many.

B: An abortive strategy.....first line abortive should be oxygen. I can halt the beast in his tracks in less then 10 minutes. Read the oxygen info link on the left as it must be used correctly or it's useless.

For now try chugging an energy drink at the first sign of an attack. I use sugar free red bull cuz the taste isn't too awful, but any containing the combo of caffeine and taurine wil work. I've been having great luck this cycle quelling smaller attacks that way.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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neuropath CH.com Veteran Offline Same Hit, Different Day Posts: 218	Re: You're real Reply #5 - Apr 17^th, 2010 at 11:25pm Joe hits the nail on the head. Since it looks like you are working mainly with abortives you should definitely add O2 to your arsenal and discuss the recommended prevent options with your doc.
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: You're real Reply #6 - Apr 18^th, 2010 at 1:46pm Yeah Danny boy we are definitely real... I'm nearly sure we have all felt like you at some stage untill we found this site. As racer said tell us a little more about yourself... Lefty
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coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: You're real Reply #7 - Apr 18^th, 2010 at 5:53pm welcome, Yep im as real as they come. Just got 1 question? you put cooked rice in your clothes for the treatment of clusters?? Coach Bill
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angela.lambert CH.com Veteran Offline Support Alaska Commercial Fisherman Posts: 182 petersburg,alaska Gender:	Re: You're real Reply #8 - Apr 18^th, 2010 at 9:33pm Hi Danny, I'm really from Alaska, born and raised... still here and a sufferer. GET ON THE O2 ASAP!!! PFDN!! Angela
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bejeeber

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Re: You're real
Reply #9 - Apr 18^th, 2010 at 10:27pm

Danny A wrote on Apr 17^th, 2010 at 10:31pm:

....... I have tried: Imitrex......

Was your imitrex in the injectible form, or at least inhaler?

I'm asking because dufus doctors constantly, erroneously, prescribe pill form for CH, and it is generally too slow to work very well..

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« Last Edit: Apr 18^th, 2010 at 10:40pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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shaggyparasol

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Re: You're real
Reply #10 - Apr 19^th, 2010 at 1:01pm

Welcome to the club Danny! Nobody wants to be in our club, but whatever, you are here you might as well enjoy it.

Counter attack! In your pain free moments read all you can on this site and counter attack! There are many things we all do to ease the pain and live mostly pain free. Oxygen and caffeine/taurine seem to top the list and then your choice of meds.

After a diagnosis some get on the prescription meds and some use the natural meds presented well at clusterbusters.com. You choice of course, but don't let this thing victimize you! There are options for you, not cures, but good options to alleviate most of the pain most of the time. It is all here, just keep reading.

Good luck daddy-o! Cool

(and a sunglass guy for you).

--Shaggy

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Danny A

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Re: You're real
Reply #11 - Apr 20^th, 2010 at 2:41am

I have read all the side bar topics and did the quizzes/polls. I haven't felt this good in awhile. I read "the devil" and woke up my wife laughing. Sorry for saying so but, it feels pretty good knowing that you guys are going through the same thing. And it really does hurt that bad. Not my imagination or lack of strength. You guys are AWESOME!

Oh and for the record...

Quote:

..you put cooked rice in your clothes for the treatment of clusters??

LOL. I had a cloth "pillow" that had uncooked rice in it. I would throw it in the microwave to heat it up and try and burn/sooth away the pain.

Quote:

Was your imitrex in the injectible form, or at least inhaler?

No just pills. They stopped working for me too. I was only supposed to take one pill per day. I ended up taking three a few times and my doctor freaked out.

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lorac CH.com Old Timer Offline Imagine Posts: 433 Tennessee Gender:	Re: You're real Reply #12 - Apr 23^rd, 2010 at 6:43pm welcome Danny
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