Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Can anyone help, plsss! (Read 1250 times)
chrisn24
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 4
Can anyone help, plsss!
Apr 5th, 2010 at 4:14pm
 
Hi,

Thanks for taking the time to read and reply if you can in advance.

Im in my mid 30's, I do have somewhat of a stressful life, career wise, but I don't believe what I have is stress related only. Here's my dilema. As far as I can remember, I have mild headaches on a regular basis, I would say on average once a month. Most of the time, I can already blame myself for the headache because I either slept late, didnt eat well or bad sleeping habits while Im sleeping, such as arching my neck, back, etc... When I have these headaches, they normally last from 1 to 4 hours as I can endure the pain and if I really want to get rid of it quickly, I either take a nap or take an aspirin, tylenol or panadol. I don't consume alcohol during the week and most of my headaches occur on weekdays, not weekends, so I know the pain isn't from a hangover but I do smoke and often times I feel when I have a headache in the morning, I remember that I smoked a little too much the night before (but again no alcohol), so I blame it on smoking.

However, 6 days ago, I suffered from an unbearable headache which I can only describe as a huge amount of pain on the right side of my head, around the temple area, and felt very sensitive behind my right eye. To the point where if I pressed lightly on my eye lid towards the back of my head, it actually provided me with a little relief, but the head pain was still there. As I normally do for all headaches, I tried to go to sleep, this time I took two panadols, put a cold towel on my right eye and over my forehead, and the result was nothing, just pain, pain and more pain. Finally at some point I managed to fall asleep in the early hours of the morning. The pain stayed with me the whole day but not as strong as it was in the evening and early hours. At mid day, the pain came back strong, so I went to the pharmacy on my way home. The pharmacist recommended Excedrin or Voltaren but both were out of stock, so she gave me Advil. I took two and the excruciating pain has never returned since, but....

Now the pain comes and goes, from the right side to the left side, not strong pain though, but enough to remind me that its there. The same with the eye pain, it now sometimes happens on the right and at times on the left. When I compare the past week to my past headaches, this is very unsual not only because the pain is overwhelming but because its not pain all around the head, but only on either sides and most of the time combined with behind the eye pain.

Am I suffering from cluster headaches?

Is there anything I can do at this stage just to self-diagnose myself until I can pin-point and say yes I suffer from cluster headaches or should I be rushing to the hospital and expect the worst?

Thank you again for those who take the time to reply.
Back to top
  
 
IP Logged
 
Bob Johnson
CH.com Alumnus
***
Offline


"Only the educated are
free." -Epictetus


Posts: 5965
Kennett Square, PA (USA)
Gender: male
Re: Can anyone help, plsss!
Reply #1 - Apr 5th, 2010 at 4:28pm
 
That you get relief from OTC pain products suggests NOT Cluster but other symptoms are suggestive. OVERALL, even if an emerging CLuster picture, it's not uncommon for it to take weeks, months, sometimes a couple of years, for a stable picture of Cluster to develop. So, bit premature to make a final call, I think.

Hospitals are not the place to go for headache treatment--long history here that they are not a source of good treatment. Would suggest talking to your primary care about a referral to a headache specialist. There are dozens of headache types  and it really requires special skill and training to get a good Dx and treatment.
----------

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.





Back to top
« Last Edit: Apr 5th, 2010 at 4:30pm by Bob Johnson »  

Bob Johnson
 
IP Logged
 
chrisn24
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 4
Re: Can anyone help, plsss!
Reply #2 - Apr 5th, 2010 at 4:41pm
 
Hi,

Thanks for the prompt response and recommendation.

Will do the needful as far as sourcing the right specialist. Unfortunately the list provided through the links will be of no use to me as I live in Middle East where healthcare is not at its best nor is it easy to find specialty care as I am use to in the states or canada but will have to try and find one before my next trip back home in a few months...

Thanks again, much appreciate it!

Back to top
  
 
IP Logged
 
shaggyparasol
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 192
Portland, OR
Gender: male
Re: Can anyone help, plsss!
Reply #3 - Apr 5th, 2010 at 7:14pm
 
Hey Chrisn.  I agree with BobJ.  I am no expert, but have had clusters for 25 years and read a lot of people's stories on this site. 

If I were you I would find a headache specialist and figure out what type of medication, foods, techniques alleviate the pain.  You don't sound like a typical clusterhead to me.  If you think you are, between now and the appointment read more on this site and see if our pain techniques alleviate your pain. 

People use caffeine or red bull fairly successfully, lots written here about it.  Maybe a doc can prescribe oxygen as noted all throughout this site.  Aspirin, ibuprofen not so good for most of us. 

Hope you are not one of us and hope you find out what it is.

--Shaggy
Back to top
  
 
IP Logged
 
neuropath
CH.com Veteran
***
Offline


Same Hit, Different Day


Posts: 218
Re: Can anyone help, plsss!
Reply #4 - Apr 5th, 2010 at 10:10pm
 
Hi Chris,

As Bob mentioned, it can take some time for hallmark symptoms of CH to crystalize.

In the meantime (hoping that it isn't CH), I would keep a detailed diary of your headaches, become conscious of any triggers and do some more reading on this site.

If it is CH, this is the site to understand all about it and to get prepared for an appointment with a qualified neurologist, or better still, a headache specialist.

Good luck.


Back to top
  
 
IP Logged
 
chrisn24
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 4
Re: Can anyone help, plsss!
Reply #5 - Apr 6th, 2010 at 7:40am
 
Hi Bob, Shaggy and Neuropath,

Thanks very much for your assistance and advice.

Ill try all the options made available to me and see where that leads. Sure I hope its not CH but at the same time, I hope its not something worse either!

Thanks again!

Regards

Chris
Back to top
  
 
IP Logged
 
Bob Johnson
CH.com Alumnus
***
Offline


"Only the educated are
free." -Epictetus


Posts: 5965
Kennett Square, PA (USA)
Gender: male
Re: Can anyone help, plsss!
Reply #6 - Apr 6th, 2010 at 8:52am
 
FIRST, go to your personal page and add info about your location. We have a significant # of folks outside the U.S. and it helps, in offering infor/sources, to know where you live.
========
So, some basic information which you may be able to use in discussions with your present doc.
----
 
Cluster headache.
From: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register (Orphanet Journal of Rare Diseases)
[Easy to read; one of the better overview articles I've seen. Suggest printing the full length article--link, line above--if you are serious about keeping a good medical library on the subject.]

Leroux E, Ducros A.

ABSTRACT: Cluster headache (CH) is a primary headache disease characterized by recurrent short-lasting attacks (15 to 180 minutes) of excruciating unilateral periorbital pain accompanied by ipsilateral autonomic signs (lacrimation, nasal congestion, ptosis, miosis, lid edema, redness of the eye). It affects young adults, predominantly males. Prevalence is estimated at 0.5-1.0/1,000. CH has a circannual and circadian periodicity, attacks being clustered (hence the name) in bouts that can occur during specific months of the year. ALCOHOL IS THE ONLY DIETARY TRIGGER OF CH, STRONG ODORS (MAINLY SOLVENTS AND CIGARETTE SMOKE) AND NAPPING MAY ALSO TRIGGER CH ATTACKS. During bouts, attacks may happen at precise hours, especially during the night. During the attacks, patients tend to be restless. CH may be episodic or chronic, depending on the presence of remission periods. CH IS ASSOCIATED WITH TRIGEMINOVASCULAR ACTIVATION AND NEUROENDOCRINE AND VEGETATIVE DISTURBANCES, HOWEVER, THE PRECISE CAUSATIVE MECHANISMS REMAIN UNKNOWN. Involvement of the hypothalamus (a structure regulating endocrine function and sleep-wake rhythms) has been confirmed, explaining, at least in part, the cyclic aspects of CH. The disease is familial in about 10% of cases. Genetic factors play a role in CH susceptibility, and a causative role has been suggested for the hypocretin receptor gene. Diagnosis is clinical. Differential diagnoses include other primary headache diseases such as migraine, paroxysmal hemicrania and SUNCT syndrome. At present, there is no curative treatment. There are efficient treatments to shorten the painful attacks (acute treatments) and to reduce the number of daily attacks (prophylactic treatments). Acute treatment is based on subcutaneous administration of sumatriptan and high-flow oxygen. Verapamil, lithium, methysergide, prednisone, greater occipital nerve blocks and topiramate may be used for prophylaxis. In refractory cases, deep-brain stimulation of the hypothalamus and greater occipital nerve stimulators have been tried in experimental settings.THE DISEASE COURSE OVER A LIFETIME IS UNPREDICTABLE. Some patients have only one period of attacks, while in others the disease evolves from episodic to chronic form.

PMID: 18651939 [PubMed]
------
HERE ARE TWO MAJOR DOCUMENTS WITH RECOMMENDED TREATMENTS FOR CLUSTER HEADACHE, ONE FROM A U.S. PHYSICIAN, THE SECOND FROM EUROPE.
_________________________________________
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002. Rozen)
================
Treatment guidelines from Europe

------
A. May, M. Leone, J. Áfra, M. Linde, P. S. Sándor, S. Evers, P. J. Goadsby:
EFNS guidelines on the treatment of cluster headache and other
trigeminalautonomic cephalalgias.
European Journal of Neurology. 2006; 13: 1066–1077.

Download free full text:
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
(Thanks to "cluster" for link.)
====

See the PDF file, below.
Back to top
  
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register (144 KB | 27 )

Bob Johnson
 
IP Logged
 
chrisn24
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 4
Re: Can anyone help, plsss!
Reply #7 - Apr 6th, 2010 at 2:48pm
 
Thanks Bob,

Now the pain alternates from the right to left temple and also pain behind the left eye, not just the right like it did a week ago.

The pain is nowhere near last Tuesday, not on the temple nor behind the eye, but its there... Its annoying more than anything else...

Will continue to read through information on this till I find the right specialist. Will update profile as well!

Thanks again!
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!