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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › CH on Facebook

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CH on Facebook (Read 4068 times)

LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: CH on Facebook Reply #25 - Apr 1^st, 2010 at 11:47am Because they are each unique, I go to that FB group page and this website everyday to be supportive of others while in a 4 & 1/2 yr remission. I value both internet tools for their own purposes.
Back to top	Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019 IP Logged

krojo CH.com Junior Offline What did CH'ers do before the Internet?! Posts: 29 New York, NY Gender:	Re: CH on Facebook Reply #26 - Apr 1^st, 2010 at 11:50am That's awesome. I hope I can keep it a priority to do the same. Last year I became sort of dormant on CH.com while out-of-cycle, but I am committed to staying involved year-round. -Rob
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: CH on Facebook Reply #27 - Apr 2^nd, 2010 at 7:15am krojo wrote on Apr 1^st, 2010 at 11:50am: That's awesome. I hope I can keep it a priority to do the same. Last year I became sort of dormant on CH.com while out-of-cycle, but I am committed to staying involved year-round. -Rob Thank you!
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: CH on Facebook Reply #28 - Apr 2^nd, 2010 at 9:23am WE'd love seeing yer smiling face year round Rob! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

E-Double

CH.com Alumnus

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Are we ourselves?

Posts: 6948
Commack,New_York
Gender: male

Re: CH on Facebook
Reply #29 - Apr 2^nd, 2010 at 9:48am

krojo wrote on Mar 29^th, 2010 at 10:38am:

Good tip. I just did a more complete search and found the "Cluster Headache Avoison Society" but also a much more popular group called just "Cluster headaches"
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Admins:
* Gregg Wieser
* Margi Storey
* Laura Lombard (creator)

Cool!

This group seems totally legit. It mentions this site (CH.com) and ouch-us. It has almost 1500 members. I think I wrote my big rant for nothing. I encourage you all to join this group if you haven't already.

I'll shut up about facebook now.

-Rob

I think it's a mispelling of the french word avoision.
it means neighbor or friend if I recall

I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: CH on Facebook Reply #30 - Apr 2^nd, 2010 at 10:05am Quote: Margi Storey If this is "OUR" Margi...it's legit.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

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