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Are we in denial about smoking? (Read 6033 times)
neuropath
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Are we in denial about smoking?
Mar 13th, 2010 at 2:44am
 
Reading through most of the posts (albeit there are only a handfull related to smoking and CH) it appears that very few of us see a significant relationship between CH and smoking.

It occurred to me that, while flicking through the pictures of the CH.com conventions, many, if not all, pictures showed members "lighting up".

Being a smoker myself (1.5 packs a day for 15 years), I have often asked myself whether smoking is not to blame for the onset of my CH some 8 years ago, although it actually started during a period in which I had managed to temporarily kick the habit for a few years.

Regardless whether some stats imply that 70% of CH sufferers have a nicotine history (which may or may not be exaggerated) and although we probably all agree that quitting smoking after CH has started has no effect on calming the beast, I do tend to believe that smoking is partly to blame for it coming into our lives in the first place.

Being a chronic and therefore having to stay away from booze and being on a low histamine diet means that the thought of also binning cigarettes doesnt fulfill me with joy, but at the same time I am conscious that it would possibly help me make my body stronger, improve my respiratory system, improve oxygen circulation throughout my body and possibly make we more resilient against the beast.

Thoughts anyone?

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Re: Are we in denial about smoking?
Reply #1 - Mar 13th, 2010 at 4:43am
 
I don't doubt that there is a relationship between the two and never have. That said, and despite the obvious benefits to quitting, I continue to smoke. Nicotine has a powerful addictive effect. I'm a moderate drinker but I manage to give it up when a CH cycle comes around because the alternative is to drink a little and then experience a screaming headache a few minutes later. Only a fool would knowingly induce that kind of pain on purpose. Smoking with me does'nt seem to bring on a HA and in fact seems to make me relax after I've had a HA. If smoking brought on CH like alcohol does, I could probably quit it too.
                                Rich
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Re: Are we in denial about smoking?
Reply #2 - Mar 13th, 2010 at 5:48am
 
I am a smoker too and have never thought that my smoking has anything to do with C/H. In fact, I used to find that when I was at the end of an attack, I would light a ciggie and found it helped for me.

Now, if I was having a glass of red, then that would definately bring on an attack. Sad
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neuropath
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Re: Are we in denial about smoking?
Reply #3 - Mar 13th, 2010 at 6:19am
 
I am lighting up too after an attack to calm me down and dont believe it to be an immediate trigger during episodes.

At the same time I do believe that there may be a relationship between longtime heavy smoking bringing on CH in the first place.

It seems that the people who developed CH and never smoked are a minority.
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Re: Are we in denial about smoking?
Reply #4 - Mar 13th, 2010 at 6:55am
 
Interesting. We see it listed as a trigger and in many studies. Always on the list of causes. My Doc always mentions smoking every visit. My CH started after a bout of insomnia which I was only sleeping a few hours a night and I increased my normal smoking amount significantly for about a month. Just an observation. Sure wish there was more definite info about this. Thanks for the thread.
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Re: Are we in denial about smoking?
Reply #5 - Mar 13th, 2010 at 10:50am
 
This makes me wonder if my CH's were initially triggered by a closed head injury which is what all the doctors and I thought...or if it was from starting smoking cigarettes...looking back 30 yrs to age 11 Sad
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Re: Are we in denial about smoking?
Reply #6 - Mar 13th, 2010 at 12:49pm
 
I'm a smoker and while I've seen enough hard evidence to fully agree smoking isn't a healthy habit, I have also lost all patience for what passes as fact in the interest of advancing opinionated causes.

Specific to CH...

Over the years I've come to understand that not all CH sufferers smoke and many have never smoked.        My former Neurologist recommended quitting smoking for general health reasons but made it clear that doing so would not reduce or cure CH.  Notably he was also a medical researcher and unfortunately for me, left general practice to advance a research career.  I don't believe I'll find another open minded Neurologist with pure interest in understanding his patients actual experiences to work with again.

In General...   

Smoking is one variable among many that affect our health but is also the current whipping boy and money maker for the health care industry.  Conveniently overlooked are the effects of repeated and long term exposure to auto/truck/bus emissions, paints/solvents, lawn/home pesticides & herbicides, human waste, industrial chemicals/plant emissions, etc., etc., etc., in the air, water, and ground.

Most reports implicating “first hand”, “second hand”, and most recently “third hand” smoke (smoke that lingers in furniture, on walls, etc., etc.) as plagues on society's  health aren't worth the paper they are written on – let alone the billions of public and private dollars that funded them.  In our current morass, smoking has been implicated as the cause of everything from excessive body hair to pimples on your derriere.  It's a challenge to research a medical condition that doesn't include smoking as a “potential cause”.  Isn't it simple..... ban smoking and society's health issues will vanish, the economy will soar, IQ scores will increase, and the nation's impoverished will be saved.   

In this culture, truth and fact are overshadowed by the B.S.  Credibility is sacrificed in the pursuit of sociopolitical, “anti-something” agendas.    

burnt-toast
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« Last Edit: Mar 13th, 2010 at 2:48pm by burnt-toast »  

Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
 
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Re: Are we in denial about smoking?
Reply #7 - Mar 13th, 2010 at 12:51pm
 
AMEN TO THAT TOM!!!
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Re: Are we in denial about smoking?
Reply #8 - Mar 13th, 2010 at 1:56pm
 
Just to chime in with a quick antecdotal bit:

The amount of cigarettes I have smoked during the course of my 30 years so far of CH = zero.

(I did smoke smoke some as a teen, but quit a few years before my first CH attack, when my mom, rest her beautiful soul, gave me $20 if i would quit)  Smiley
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
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Re: Are we in denial about smoking?
Reply #9 - Mar 13th, 2010 at 2:06pm
 
I agree with the other posters, lighting up at the end of an attack is such a relief!
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Linda_Howell
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Re: Are we in denial about smoking?
Reply #10 - Mar 13th, 2010 at 2:30pm
 
Tom, I could kiss you.  I could not have said that any better. 

There is no evidence that smoking causes CH or makes it worse.  Nictotine is a vasoconstrictor(Which is what we need during an attac k) and I believe THAT is why so many of us smoke. 

I don't think we are in denial; at all.  Smoking IS bad for us.  No doubt about that, but to blame cigarettes for CH is absurd.
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« Last Edit: Mar 13th, 2010 at 2:44pm by Linda_Howell »  

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Re: Are we in denial about smoking?
Reply #11 - Mar 13th, 2010 at 2:52pm
 
Wow Tom!!  You nailed it with that post!!!

And BTW, for all you smokers readin this thread, I've cut my tobacco expense in half by ordering Russian Cigs from  cigdot.com 

I'm paying $22.24 per carton for Marlboro Ultra Lite Kings including the $6.90 s&h charge when I order 6 cartons at a time.  If you use a credit card they ship when they recieve your order and give an 11 biz day delivery timeframe from the Ukraine....if you do EFT it takes a bit longer...been takin about 4 1/2 to 5 weeks for me to get mine as they don't take Master Card and I don't have a Visa or Amex..still a great deal as the Doral Ultra Lights that I normally smoke are now $47.19 a carton here in Dallas so what was costin me almost $290 is now just $134!!!

Dallas Denny
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Re: Are we in denial about smoking?
Reply #12 - Mar 13th, 2010 at 6:30pm
 

Neuropath,

I sincerely hope you have not recieved the wrong impression here.  While we say it has little to do with CH....that does NOT mean that smoking is good.  It is not. 

Personally I intend to look into the E-cigarettes that Pegg and others here have tried.  It is at the bottom of her posts. The patch, and gum have done nothing for me.  Undecided
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Hurt people.....hurt people.   Think about it.
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Re: Are we in denial about smoking?
Reply #13 - Mar 13th, 2010 at 7:23pm
 

Just adding - don't smoke, never picked it up as a habit, did try a few drags as a teen but never more then that. I'm sure walking down the street in some cities I've inhaled more smoke then I did on those afternoons in suburbia. I'm relatively certain it has nothing to do with my CH and in no manner could be controlled or eliminated.
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neuropath
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Re: Are we in denial about smoking?
Reply #14 - Mar 13th, 2010 at 10:15pm
 
Not sure everyone got the point I was trying to make.

Am not suggesting that stopping smoking has any positive effect on CH...by the time CH is here the train has already left the station.

My point: just like longterm heavy smoking can cause lung cancer, can longterm heavy smoking be responsible for causing CH in the first place? We all agree that once both conditions are here stopping to smoke will make no difference, but can stopping make you body fitter to make the battle more promising? As Laotze said: The bigger army wins!

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Re: Are we in denial about smoking?
Reply #15 - Mar 13th, 2010 at 10:37pm
 
The "cluster survey" in the links on the left side of the screen shows out of 12,026 sufferers that took the survey, 48% DON'T smoke. ??

Don
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Re: Are we in denial about smoking?
Reply #16 - Mar 13th, 2010 at 10:54pm
 
I can maybe add a little to this debate. 

I'd been mis-diagnosed for many years.  It wasn't until I'd undergone hypnosis to quit smoking that I got a correct diagnosis.  Here is what my specialist at the time figured was the reason.

I'd been a non-smoker for only a couple weeks, but during that time my attacks were were becomming more frequent.  I was middle of the night sufferer almost exclusively for oh so many years.  Chronic by definition but with an odd pattern,  2 or 3 days of attacks and 3 to 4 days without, and no longer than a couple weeks break when I did get extended time off from hits.

But when I quit smoking cold turkey back in late February 2004, I started getting hit not only at night, but during the day too. 

One thing that is known is that CH also has a connection to serotonin levels, and it's also known that cigarette smoke contains MAIO's.  So in addition to nicotine there are properties that alter the serotonin levels when a person smokes and ultimately quits smoking.

I had started smoking again, but the cold turkey alteration of serotonin levels morphed "MY" beast..well lets just say the damage was done.  Starting smoking again didn't change the new pattern.  (but quitting was the catalyst to a proper diagnosis)

Now it could also be said, that the connection between CH and smoking is the serotonin connection.  Possibly it's a combination between the nicotine vascoconstriction and the MAOI's in tobacco smoke that help keep a more comfortable balance.  If the theory you present is valid, the opposite could be just as valid.
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« Last Edit: Mar 13th, 2010 at 10:56pm by Redd »  

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Re: Are we in denial about smoking?
Reply #17 - Mar 14th, 2010 at 3:16am
 
If 48% said that they didn't smoke, that leaves 52% who said they did, which is more than twice the rate of smoking compared to the general population. I think that the percentage of smokers in the U.S. is around 20-22% of the adult population. I don't know if that number only includes those who could be termed regular smokers or if it also includes those who only indulge occasionally.
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Re: Are we in denial about smoking?
Reply #18 - Mar 14th, 2010 at 4:10am
 
Even if it is true that more CH sufferers are smokers than the general population, smoking must only be a partial factor since about half of the sufferers say they've never smoked.
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Re: Are we in denial about smoking?
Reply #19 - Mar 14th, 2010 at 6:41pm
 
I think we all have those times we wish we could know why we have CH.  Even if it blames us, the knowledge would be great to have for other people and even for a nice piece of mind.

I don't smoke, never have smoked an entire cigarette.   Have had a few cigars, but less then 1 a year.

I doubt smoking has any negative effect on CH nor do I believe it is a cause.  Just my opinion.
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Re: Are we in denial about smoking?
Reply #20 - Mar 15th, 2010 at 8:18am
 
Ahhh, the chicken/egg debate.

I believe that the same malfunction in the hypo that cause ch also causes us to have addictive personalities and thus be smokers.  Most clusterheads are pretty good drinkers also!  Smoking and ch are both caused by the same thing but have no effect on each other.
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Re: Are we in denial about smoking?
Reply #21 - Mar 15th, 2010 at 11:15am
 
Rich wrote on Mar 13th, 2010 at 4:43am:
I don't doubt that there is a relationship between the two and never have.
                                Rich

Let me put it to you this way, when I smoked 5 years ago and during cycle, it was almost 5 minutes or less that a cluster was following after a cig.  I still have an occassional cigar and the same thing happens there.  Needless to say, cigars and the other triggers are put to rest during cycle.  If that's not a trigger I don't what it is.  We must remember though everybody has different triggers.  Since I quit smoking the cycles are shorter and the intensity or Kip scale is lower.  Maybe it's just a coincidence.
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Re: Are we in denial about smoking?
Reply #22 - Mar 15th, 2010 at 12:01pm
 
Ive been having clusters for nearly a year. But have only been smoking properly for erm... about 3 years? do you think this is the reason i get clusters? even though i have only been smoking for a short while?
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Re: Are we in denial about smoking?
Reply #23 - Mar 15th, 2010 at 12:09pm
 
As a smoker and a sufferer of chronic cluster headaches i will agree with this.  Smoking restricts the flow of oxygen to the brain.  I've researched all this, but my memory is not what it used to be. 

When we have headaches (i think it the hypathalimis gland) or veins in the brain are basically pinched, like a hose and the blood is trying to flow through, thus producing pain/headache.  Oxygen is such a great treatment because it opens those "pinched" hoses thus releaving the pressure/headache/pain. 

I wish i never smoked.  I feel this was a big reason why i have these.  I used to think it was the red in my tattoos. 

I don't know i can quit smoking.  Its a release from the hell.
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Re: Are we in denial about smoking?
Reply #24 - Mar 15th, 2010 at 12:55pm
 
SET•ME•FREE wrote on Mar 15th, 2010 at 12:09pm:


I don't know i can quit smoking.  Its a release from the hell.
IMHO, this is the hardest reason for quitting.
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When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!
 
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