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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Looking for a high flow regulator

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Looking for a high flow regulator (Read 1357 times)

godsjoy777

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x0|Grand Prairie, TX|USA||0|0|
Gender: female

Looking for a high flow regulator
Mar 6^th, 2010 at 12:03pm

Hi everybody.....
I'm 56 and had clusters for approx 18 years or so....(I don't like counting). Last cycle was a full 16 weeks with one ER visit....I try to stay as med free as possible....Have tried many prevents in the past that only extended my cycle ( 9 months on year )....and made me feel like crap! I am very careful not to use too many triptons as well....only once per week so I get at least one full night's sleep....Too many tripton's also seem to give me more hits....All that to say I keep an O2 tank of my own and rent several per week during cycle.....My regulator only goes up to 12-15 and my bag got a rip in it last cycle which sent me to the ER...

I would like to find a very high flow regulator like some of you have tried to hyperventalate and maybe get quicker and better relief. My cycle isn't due to start for a few months yet...so I am being proactive here.

Blessings!
Karen

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Looking for a high flow regulator Reply #1 - Mar 6^th, 2010 at 12:11pm Good for you! Is there a question in there somewhere? How can we help? Many different types of regulators are sold on e-Bay.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Skyhawk5

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I love YaBB 1G - SP1!

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Ypsilanti, Mi. USA
Gender: male

Re: Looking for a high flow regulator
Reply #2 - Mar 6^th, 2010 at 6:05pm

Hi Karen,
In a pinch you could duct tape the rip on the bag. I strongly suggest you get one of the O2pti masks from this site. $27.50. It's made just for CH and has a bigger bag. I have 2.

For higher flow I have a 25lpm on my E-tank from Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

, about $35. On my M-tank I have a big gun that goes to 60lpm from Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

, they make many sizes and make them to order. About $137.

The better (best) mask makes a huge difference because it holds more O2. Higher flow is so we don't empty the bag between breaths.

Good Luck, Don

« Last Edit: Mar 6^th, 2010 at 6:26pm by Skyhawk5 »

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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godsjoy777

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Gender: female

Re: Looking for a high flow regulator
Reply #3 - Mar 9^th, 2010 at 8:20am

Thank you Brew and Skyhawk....You figured out my questions in the midst of all that....

I will give those places a call so I get the right kind of regulator...I only have an e-tank so far and rent several per week when the beast hits. Might have to check into the M tank.

I had a couple of good bubble masks...One I purchased from this website a few years back....but they have kind of hardened....Time to get all my weapons back in the arsenal for the next go around....unless the Lord heals...Still waiting for that.

Blessings!
Karen

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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Looking for a high flow regulator Reply #4 - Mar 9^th, 2010 at 4:26pm Just an FYI about the regulator links I posted. The Medline is made in China, the Flotec is made in USA, Indianapolis, In. Don
Back to top	Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not. IP Logged

bejeeber

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Gnashville
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Re: Looking for a high flow regulator
Reply #5 - Mar 9^th, 2010 at 5:07pm

godsjoy777 wrote on Mar 6^th, 2010 at 12:03pm:

.... I am very careful not to use too many triptons as well....only once per week so I get at least one full night's sleep....Too many tripton's also seem to give me more hits....

While you're being very careful I hope you've seen the imtrex tip: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

If you're using injections I bet this approach could go a nice ways towards reducing your side effects/rebound concerns.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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zimbax CH.com Newbie Offline I Love CH.com! Posts: 1	Re: Looking for a high flow regulator Reply #6 - Mar 14^th, 2010 at 3:14am Hi I have found that doing away with the mask altogether and just breathing straight through the tube in your mouth works wonders and saves O2. Careful not to inflate yourself like a balloon. Good luck. George
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Skyhawk5

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I love YaBB 1G - SP1!

Posts: 1320
Ypsilanti, Mi. USA
Gender: male

Re: Looking for a high flow regulator
Reply #7 - Mar 14^th, 2010 at 8:48pm

Zimbax, glad to hear the tube works for you but, the reason we use a mask with a bag is so there is enough O2 available to take a full breath.

It's like, if you drink from that same tube you get whatever volume that size tube can supply. If you put the tube in a glass and let the glass fill you have more available.

So the O2 you get is restricted by the size of the tube even at higher flow.

The O2pti mask available here comes with a mouthpiece. Regular non-rebreathers masks don't.

Don

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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