i think the problem was i didn't see my neurologist i saw his secretary which was a bit of a pain realy and didn't help to be honest, id rather see the doctor. they say they will be there and help you but they don't realy it took me a week to get an appointment and Ive had to book an appointment at the doctors to get the meds so that's like what 10-15days. and when your having clusters this is too long!!

Well, since I am on a roll this morning thought I would jump in and say that all ya'll have way more faith in the medical profession than I do.  Certain things they are essential for, heart attacks, broken bones etc etc.  I understand why people would seek a headache specialist for diagnosis to make sure nothing more life threatening was going on.

But once I am clear about my medical diagnosis, I'll take my chances with my 25 years of CH's and the combined millennia of experience on this and the clusterbusters website.  I always read the doctor stories in shock as ya'll try to talk them into the most universally successful treatment, oxygen.  All of the healthcare professionals I have casually spoken to about clusters have no real idea what I am talking about (not headache specialists). 

Once while about to get crushed in a lock (in a Canadian dam) by a big boom of logs I was asked, "what would you do if you thought no one was looking out for you right now?"

I'll tell you one thing, I didn't get crushed because the dam operators weren't watching.  I sought what we called in my labor union days, "self help".  Find a way to get what you need!  The dam operator is probably interested and concerned, but I was the one who was going to pay the consequences.

Call that "Shaggy's rant #1" on taking the bull by the horns and beating the beast.  Diatribe over you can all return to your morning coffee.

--Shaggy (way too caffinated right now sorry about the excessive verbage and cynicism of portions of the medical community.)

Hi haylz,

It's important that you learn how to properly administer and at least try high-intake oxygen therapy as soon as you possibly can. More CHrs have gotten more relief from its use than probably all the other CH treatments combined. If you don't get relief from either the oxygen or the various other therapies advised here, as a last resort go to:

                                                       Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Read as much as you will on the site and then go to their message board in the middle, near the top of the page where the word "NEW" is spinning around. Read, learn and ask questions.

If you learn as much as you can on these two sites and intelligently apply what you have learned to your own condition, I promise you will find your way out of this Hell!

Good luck and God speed,

Ron

Good advice i think i might try this! most the time I'm in work and people think oh shes got a bloody headache again and they no how stressed out i can get during an attack so i cant look any more strange than i already do. haha.