Hi, and welcome.
I get lots of neck pain, but no knots, and it usually is in the back/side, then creeps up to the base of the skull. All this takes place within 5 min or so before the ch hits hard. Not sure if this is what you are asking, but thought I'd let you know.

Quote:
At the Vancouver OUCH convention, Dr. Robinson informed us that this is the result of an inflamed nerve ganglion in that location.

does this picture looks any familiar to you?
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i just found it and i can say this is how it feelsin the back (except the hand and more red to the x spot)
at least for me

Its a common feature of a CH attack. During episodes this gets compounded because of overall stiffness of your back and shoulders in anticipation of the next hit. You may want to try regular massages just to try and relieve some of the general tenseness during episode periods.

During hits you may also want to try turning your head so that you stretch and pull the muscle in question. This can lead to 2-3 PF seconds. Not much, but during a 8 KIP that can be a real beauty.

Oh and something else that has crossed my mind.
In the past i had a carotid dopler test as i thought that this pain in front of the neck might has something to do with this.
The results where clear so if this idea crosses your mind too don't do it.
we are perfectly healthy

I have neck pain too and have had several tests done including a neck mri. every test came back negative. Today I went to a new nuerolagist , a very experieced doc in his early 80's he assured me that the neck pain was a result of the ch's not the cause. He changed my meds up some and he told me of a treatment called Gamma knife treatment,which is a pinpoint type of microwave. He wasn't trying to sell me on it but if nothing else works I'd be willing tl try it . Most of the patients had good or fair results.this might be an option for the more chronic suferers. hope this helps someone.