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tinnitus (Read 1637 times)

anthony g

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manhattan nyc
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tinnitus
Feb 5^th, 2010 at 7:45am

hey all
just wanted some feed back if any! when i started this cycle about amonth and ahalf ago (second cycle ever) took pred taper and verap still on verap about 2 weeks into the cycle i started with ringing in my ear the right side where the beast hits! i feel it has soemething to do with it and when i mentioned the ringing i my ear to the new neuro i saw on mon who i really like who supports high flow 02

he didnt seem to think it was a major issue and said we could address it after we are off the meds and out of cycle completely oh im also on 50 mg of topomax just wanted to throw this out there for any input thanks all!!!
anthony

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Chad

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Re: tinnitus
Reply #1 - Feb 5^th, 2010 at 9:33am

Anthony,

I definitely get a bit of swelling in my right ear. It feels like little bubbles popping sometimes. I never had any ringing though. I was fortunate years ago to have a cluster in the GP's office and she looked in my ear canal and said, "my goodness it's swollen" along with the other visual signs I had with my droopy eye and the right nostril dripping like a sink. Luckily it was a low Kip HA. As much as I hate these HA's i'd be willing to have one in the neuro's office so he can observe.

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!

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Sonnie_Parker CH.com Newbie Offline Posts: 23 Luverne, AL. Gender:	Re: tinnitus Reply #2 - Feb 5^th, 2010 at 10:47am I have Tinnitus and acquired it since my clusters started in 1994, but I contribute it to loud music for 30+ years.
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Bob Johnson

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Kennett Square, PA (USA)
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Re: tinnitus
Reply #3 - Feb 5^th, 2010 at 10:51am

I don't believe tinnitus is associated with CH but it may be aroused by excessive use of OTC pain meds, perhaps some Rx meds ??? In such cases, it generally resolves when the offending med is stopped. It's not, in itself, a serious problem although it's associated with hearing loss (not a causal tie).

At this point, I'd work at getting a good treatment program for our CH working and see what happens. It's one of those conditions which often disappear without any treatment but, no uncommonly, developes into a chronic "gift" with age.

Personally, I put my bilateral tinnitus into the category of, "why is my nose draining today?"

Bob Johnson

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bejeeber

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Gnashville
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Re: tinnitus
Reply #4 - Feb 5^th, 2010 at 6:39pm

I got me some exacerbated tinnitus right after my last episode - made me wonder if it could be a Neurontin after effect, as in triggered by going off the Neurontin, which if I remember correctly, is prescribed for tinnitus sometimes...

Anyhoo, it has eased since I started taking a supplement called "Ring Stop" (would it have eased without the Ring Stop? That's tuff to know).

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Joni CH.com Old Timer Offline Knowledge is Power Posts: 476 Gender:	Re: tinnitus Reply #5 - Feb 6^th, 2010 at 1:10am I have moderate to severe ear pain in cycle. Always think I have an ear infection, but I don't.
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monty

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The Swamp, Florida

Re: tinnitus
Reply #6 - Feb 6^th, 2010 at 1:51am

There are many different types and causes of tinnitus, but there are definite links to disturbances in serotonin and melatonin as well as blood flow and muscle tension in the jaw. Not sure what is going on with your case, or if it might be a reaction to a medicine (which might indicate a side effect worth noting). The medical consensus seems to be that a little ringing in the ears is not generally serious. I have lived with tinnitus for decade or so, and I don't worry about it.

The outer boundary of what we currently believe is feasible is far short of what we actually must do.

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boxcorner

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Re: tinnitus
Reply #7 - Feb 24^th, 2010 at 2:14pm

Joni wrote on Feb 6^th, 2010 at 1:10am:

I have moderate to severe ear pain in cycle. Always think I have an ear infection, but I don't.

That's interesting. I frequently get ear pain when my CCH is at its worst. Also, I have constantly have tinnitus, possibly as a result of having taken countless courses of antibiotics for sinusitis, or possibly connected with the Gabapentin and Verapamil that I am now taking, or my age, but certainly the tinnitus always gets worse when my CCH is at its worst. I've also noticed that my tinnitus gets worse when I'm very tired. I'm sure loud music and head banging wouldn't help my ears much, but it might take my mind off the pain in my head Grin

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