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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › I just don't know...

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I just don't know... (Read 705 times)

Emma_s

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Wishing PF time for everyone
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I just don't know...
Jan 20^th, 2010 at 5:51am

This is a little rant thread I am afraid and I apologise in advance, but I am finding it very difficult to deal with CH and all of my other symptoms on a daily basis.

For the past 6 months I have shadows frequently and worse CH type pain which lasts now 5-20 minutes (before it was 20-30 minutes), facial pain and migraine type constant pain and I am finding my vision is being really effected. I have auras daily with double vision and ringing in my ears which feels like it is all just getting worse. I am feeling confused and as if my short term memory is becoming worse.

From what I read on here and also based on my neuro saying 'that is unusual for CH cycles' I am feeling rather detatched from it all because I do not feel in control anymore. Thankfully I have an emergency appointment on Thursday with my neuro.

Sorry for the thread,, thank you for reading...I am just struggling a bit x

« Last Edit: Jan 20^th, 2010 at 5:53am by Emma_s »

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lorac CH.com Old Timer Offline Imagine Posts: 433 Tennessee Gender:	Re: I just don't know... Reply #1 - Jan 21^st, 2010 at 7:17am Hang in there Emma hope that dr can sort it all out for ya. keep us posted
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: I just don't know... Reply #2 - Jan 21^st, 2010 at 7:26am Emma, What meds are you on? This could be affecting you. Just a thought. Are you using O2? Tell us more... Hugs BD
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Emma_s

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Wishing PF time for everyone
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Posts: 65
United Kingdom
Gender: female

Re: I just don't know...
Reply #3 - Jan 22^nd, 2010 at 3:26pm

Sorry for my moan.

I have been told I may have an infection in my spinal fluid or extra pressure in my head, so they think my CH aren't the 'problem' at the moment. I am now waiting for a phone call so I can be admitted into hospital for at least a week for a LP, further tests and apparently a high dose of valium for a few days.

I am on Verapamil 240mg a day and O2 when I need it. I haven't noticed change in the CH with the Verapamil really but have done so with the O2.

Thank you for reading, wishing everyone PFDAN x

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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: I just don't know... Reply #4 - Jan 22^nd, 2010 at 4:25pm I hope they get it all figured out, Emma. Thinking of you.... Jeannie
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