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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Episode Over?

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Episode Over? (Read 825 times)

Joshua

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x0|New York|USA||0|0|NY,New_York
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Episode Over?
Oct 28^th, 2009 at 4:57pm

So-for the past year I've been getting hits. I believed I had become chronic. Bear with me. I've gone from just verapamil, more verapamil to topamax and nerurontin and verapamil and SO much imitrex as to kill horses. I have managed to get them under control with Neruontin and verapamil, and have tapered off the neurontin and am now ONLY on 240mg of verap a day.

I've been going strong like this for 3 weeks, no hits. Do I dare taper off the verap? how long should I wait before I know I'm in the clear (or IF i am in the clear?)

Joshua

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Marc Ex Member Gender:	Re: Episode Over? Reply #1 - Oct 28^th, 2009 at 7:20pm Joshua, No one here can answer that for you. It's your call - and always will be You didn't mention high flow oxygen therapy, so I can't pass up this opportunity to tell you that it rocks. In fact, some of us consider it the "front line" abortive over Imitrex. Marc Edit to add: "If you do it right"
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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: Episode Over? Reply #2 - Oct 29^th, 2009 at 6:57am I use 720 mg of verap a day . Two weeks with no shadows or hits and I begin to taper.
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Joshua CH.com Alumnus Offline Posts: 264 x0\|New York\|USA\|\|0\|0\|NY,New_York Gender:	Re: Episode Over? Reply #3 - Oct 29^th, 2009 at 8:01am Hey..High flow o2 - definitely in the arsenal for when I'm home. Total lifesaver. I'll probably kick around on this dose for a while - and taper down after Thanksgiving. Thanks all.
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