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Pixie-elf

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I've tried the rest, and
busting is the best!

Posts: 517
Beaumont,Tx
Gender: female

Little update from me
Oct 21^st, 2009 at 2:09am

Well, I haven't been on in a while, I haven't been doing too good health-wise.

I made it through my Grandfather's funeral services okay. It was after that problems began. Throat closing up due to my histamine intolerance and the stress triggering problems with it.

I began feeling pretty bad immidiately after, but it wasn't until about 2 weeks ago that I noticed something was really wrong. I thought my stomach where the tube my shunt leads to was swollen. Mom didn't really see it.

That Saturday, the pain in my back got so bad I had to go to the ER. Turns out, the tubing came out of place, moved underneath my skin, then pocketed itself off. The pain was due to the fluid backing up into my spine.

So, I have surgery on Friday to go in and fix this. I had been put on Diamox, a diuretic/anticonvulsant that was helping drain off the fluid. Weird side effect? I still had my clusters, same amount each day, same intensity, only my eye didn't shut.

I'll be stopping the Diamox after surgery so I'm expecting to go back to being one-eyed anytime I have a hit. It was nice to actually have the ability to use BOTH eyes during a hit.

We also got a puppy on Monday. She's a boxer / golden retriever mix. We named her Bella, and she's going to keep my aunt from going nuts while I have the surgery.

I hope you're all doing well, much love to you all.

PFDAN
Mystina

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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
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It's saved my life.

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Brew

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Re: Little update from me
Reply #1 - Oct 21^st, 2009 at 7:31am

Mystina - Been wondering how you've been faring. Now we know. Sure don't sound like a lot of fun. Encouraged that you had the energy to write, though.

You will be in my thoughts and prayers, now, in the time leading up to Friday, and beyond for a quick and full recovery.

"Dear ____________, Could the powers that be see to it to cut our sister a break? Please? We're not asking this for ourselves, we're asking it for her."

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: Little update from me Reply #2 - Oct 21^st, 2009 at 9:20am Sorry to hear you are going through a rough spell, Mystina. You will be in my thoughts and prayers. Congrats on the puppy. We want pics! Take care, Beth
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Little update from me Reply #3 - Oct 21^st, 2009 at 9:37am I hope things go well with your surgery on Fri. Sorry you are having a rough time. Thanks for checking in. We'll be thinking of you! And yes....we need pics of the puppy! Jeannie
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cash5542 CH.com Hall of Famer Offline I love YaBB 1G - SP1! Posts: 1243 x1\|Ocean Pines\|USA\|usa\|498\|141\|MD,Maryland Gender:	Re: Little update from me Reply #4 - Oct 21^st, 2009 at 10:00am Best of luck with your surgery. I want puppy pictures too!!! I have a golden and Tony has a boxer. I'd love to see what the combination is like, long or short hair?? I hope the coming days are easier for you. Charlotte
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LadyLuv CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1495 Champaign, IL Gender:	Re: Little update from me Reply #5 - Oct 21^st, 2009 at 10:53am Sorry to hear that you're going through so much Sweetie... I will keep you up lifted in Prayers... I know that every thing will be okay... Luv & Hugs LadyLuv
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Little update from me Reply #6 - Oct 21^st, 2009 at 11:06am Good to hear from you Mystina...been wondering. Glad they know what the problem is...and now they can fix it! My brother just got pound puppy Golden Lab named....Bella. Only he calls her Bella Lugosi because she is totally undisciplined... Best, Jon
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cynjeep89 CH.com Alumnus Offline Posts: 1626 Delaware\| Gender:	Re: Little update from me Reply #7 - Oct 21^st, 2009 at 2:52pm Will be thinking of you on Friday and sending wishes across the miles that your recovery is a speedy one. Give your new puppy a big hug for me, k? Gotta love those little fur faces and their puppy breath.
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Little update from me Reply #8 - Oct 21^st, 2009 at 2:54pm Like Brew said, if there's anyone who deserves a break it's you! All the luck in the world for your upcoming surgery and for your new furry friend. Charlie
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Carl D CH.com Hall of Famer Offline 25+ years CH Veteran Posts: 640 \|St. Louis\|MO, USA Gender:	Re: Little update from me Reply #9 - Oct 22^nd, 2009 at 4:38pm Sorry it's been so rough. Will be keeping you in my thoughts and hope the surgery goes like clockwork. Peace, Carl D
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purpleydog CH.com Alumnus Offline Posts: 2732	Re: Little update from me Reply #10 - Oct 22^nd, 2009 at 9:50pm Mystina, you are in our thoughts. I'm sorry you haven't been well, your surgery will go fine. Let us know how you are, and post some pics of your adorable puppy!
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Little update from me Reply #11 - Oct 22^nd, 2009 at 9:57pm Our prayers are on the way to you. All will be good tomorrow.
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Pixie-elf

CH.com Hall of Famer

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I've tried the rest, and
busting is the best!

Posts: 517
Beaumont,Tx
Gender: female

Re: Little update from me
Reply #12 - Oct 28^th, 2009 at 2:49am

Thank you all so much for your prayers and support!

The surgery actually went fine, for once. My doctor got in, and found no infection, fixed me up, then got me out of there.

The only bad part of it was the pain afterwards, and when I woke up, I'm assuming due to the anesthesia I was crying for Papa. It took them giving me 4 shots of morphine to make the pain finally ease up.

Only problem I have now is it looks like the Diamox was actually helping the CH hits, and I stopped it after the surgery. So I'm waiting to hear from my headache specialist on what she wants me to do. If she wants me to re-start it, or if she'd like to try me on something else. I'm just glad that for now, the shunt problems are under control.

Bella has made this easier. Having her to look foreward to has helped me with this. I've got some pictures of her, but she's already grown since I've taken them! She gets into everything, but she's made me laugh and kept me company through this. She's curled up beside me right now to sleep.

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I've given her a big hug from you, Cyn. Cheesy

Thank you all again, I appriciate all of the good thoughts and prayers.

Mystina

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As far as I'm concerned, cluster busting has been the best treatment I've tried. No migraines since I started it, and my hits have gotten so much better. Wanna know more?
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

It's saved my life.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Little update from me Reply #13 - Oct 28^th, 2009 at 7:06am So relieved to hear the surgery went well, Mystina. And Bella - OMG - what a sweetheart! Keep us posted as to what your headache specialist says.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Little update from me Reply #14 - Oct 28^th, 2009 at 7:51am THAT is a sweet pup!! Glad you have it for companionship. Glad to hear the surgery went well also. Hope more things get better for you Mystina as the days go on! mel
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Little update from me Reply #15 - Oct 28^th, 2009 at 12:41pm So glad you're doing better... That cute pooch is surely good therapy...
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Little update from me Reply #16 - Oct 28^th, 2009 at 4:15pm So glad that you're doing better and what a sweet little friend you have. Charlie
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cash5542 CH.com Hall of Famer Offline I love YaBB 1G - SP1! Posts: 1243 x1\|Ocean Pines\|USA\|usa\|498\|141\|MD,Maryland Gender:	Re: Little update from me Reply #17 - Oct 29^th, 2009 at 9:47pm What a sweetie!!! I'm so glad you have her companionship now. Charlotte
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