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?'s re: r.c. seeds (Read 14294 times)
Pinkfloyd
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Re: ?'s r.c. seeds
Reply #50 - Oct 25th, 2009 at 12:31am
 
bonkers wrote on Oct 24th, 2009 at 11:42pm:
I think Michael's Doctor has all his "pathy" parts pretty well intact - they just need a little lubrication to keep them running smoothly and free from ego.


Hey, if you and Michael are happy with the guy, thats cool. Its tough to find someone you can trust and that will work with you.
There are plenty of MDs that have put their stamp of approval on 02 therapy for clusters.
And, yep its fine (and good) that he wants to check into it before prescribing it, but then to want to *mail* the script? Maybe he can research the latest document sending techniques......fax or email.

Maybe its just me and my mood. Don't mind me.
Sorry but I guess the older I get, the less patience I have.

Hope things continue to go well,
Bob

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bonkers
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Re: ?'s r.c. seeds
Reply #51 - Oct 25th, 2009 at 2:01am
 
Pinkfloyd, please don't think I disagree with your estimation of Michael's doctor, given my description of his care thus far. I appreciate that you're obviously looking out for us. I clearly, though subconsciously, conveyed that I'm kinda pissed off at him. And I am. He should have given us the Rx. If he was ONLY looking out for Michael's best interests, he would have. I think what happened was, that when I told him of our success with the LSD, and subsequently with the r.c. seeds, I did it with a "see, I was right and you were wrong; I fixed him when you weren't able to" attitude. I then asked for the O2 Rx, maybe sorta triumphantly; and I think gave the impression that we would probably use it however we saw fit, considering our obvious previous success. My bad. He was, I think, just being defensive and exercising his power to prescribe to regain control. His bad. Michael's loss. My fault as much as the Doctor's. I need to put my ego aside and do whatever is necessary in order to help my son get his life back. It's just so hard not to grin when I think of all the drugs that have failed, along with all their horrible side effects; then along came these cheap, funky, little seeds.
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MJ
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Re: ?'s r.c. seeds
Reply #52 - Oct 25th, 2009 at 2:14am
 
bonkers wrote on Oct 25th, 2009 at 2:01am:
  It's just so hard not to grin when I think of all the drugs that have failed, along with all their horrible side effects; then along came these cheap, funky, little seeds.


Theres a lot of us with that same grin Bonkers.

Great to see the positive results.

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bejeeber
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Re: ?'s r.c. seeds
Reply #53 - Oct 25th, 2009 at 11:24am
 
9! 9! 9!

Grinning from ear to ear about those 9 incredible days relatively PF. Grin Smiley
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
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Pinkfloyd
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Re: ?'s r.c. seeds
Reply #54 - Oct 25th, 2009 at 4:30pm
 
bonkers wrote on Oct 25th, 2009 at 2:01am:
I need to put my ego aside and do whatever is necessary in order to help my son get his life back. .


I think you're doing a great job looking out for your son's best interests, and you should reward yourself with a grin now and then. This is not an easy battleground to navigate and each victory should be humbly appreciated and enjoyed. It helps getting thru the tough times, knowing that there are victories to be won in the future.

Bob
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bonkers
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Re: ?'s r.c. seeds
Reply #55 - Oct 26th, 2009 at 6:06pm
 
Thanks everyone. I'm humbled by the level of support you've so generously offered my son and me. We don't know any of you except through your written words. The amount of honest, loving heart conveyed through those words - from strangers - is a new experience for me. I guess it's like being in war; the folks who are shoulder-to-shoulder with one another, while the bullets are flying overhead, they come to love each other; to see in each other themselves and with that identification comes, I think, a desire to protect and shelter the other as oneself. Those who suffer this affliction experience a level of pain and devastation to their lives almost unique in medical science. Michael's case is, I think, especially severe. Like mother hens, you guys have spread your wings and come a-runnin.' It's really cool.
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Re: ?'s r.c. seeds
Reply #56 - Oct 26th, 2009 at 10:32pm
 
A question please, if anyone's listening. It's been 5 days since the last dose of seeds. Early afternoon we ground up the seeds and set them to soak. Michael took his methadone early A.M. with plan to wait as long as possible b4 taking seeds and as long as possible after seeds b4 taking methadone. He takes methadone twice/day and has withdrawn from 12/day to 10/day over the last few days. He forgot to take the seeds b4 we went to town this afternoon (we live a long way from town so that's 3 hrs. b4 we got back). Now it's too late to take seeds and be able to wait any length of time afterwards b4 taking methadone. So, we'll have to wait till tomorrow. My question is: will the seed slurry retain its potency till tomorrow afternoon? - the ground-up seeds will have been soaking in water for about 24 hrs. - or, shall I not take the chance and just toss 'em out and soak a new batch tomorrow? (Sorry for the length).
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Re: ?'s r.c. seeds
Reply #57 - Oct 26th, 2009 at 10:43pm
 
Those will work. Use new ones if you like as well.
IMHO Wink
the bb
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Re: ?'s r.c. seeds
Reply #58 - Oct 27th, 2009 at 1:01am
 
I'm no expert on the subject as you know Bonkers, but from what I've heard around here, I believe that brewski oughta be just fine. If it was me I think I might just refrigerate it.
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
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bonkers
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Re: ?'s r.c. seeds
Reply #59 - Oct 27th, 2009 at 10:03pm
 
Just got back from the mailbox. In it I found an O2 Rx for Michael from his Dr. I think I'm going to have to not be mad at him anymore. The Rx states:

       Rx
       Oxygen portable gaseous system w/ non-rebreathing apparatus at 15 L/min

       Dx: Chronic, severe cephagia w/ cluster phenomena (307.81)

Cool, huh?
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Chad
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Re: ?'s r.c. seeds
Reply #60 - Oct 28th, 2009 at 2:01pm
 
bonkers wrote on Oct 27th, 2009 at 10:03pm:
Just got back from the mailbox. In it I found an O2 Rx for Michael from his Dr. I think I'm going to have to not be mad at him anymore. The Rx states:

       Rx
       Oxygen portable gaseous system w/ non-rebreathing apparatus at 15 L/min

       Dx: Chronic, severe cephagia w/ cluster phenomena (307.81)

Cool, huh?

Any doc that prescribes O2 in my mind is good enough in my book.  My old neuro prescribed it to me, however with not being in cycle at that time I never pursued it since my insurance doesn't cover.  I was being cheap.  It really isn't that bad out of your pock with buying your own regulator and mask.  Well, my script ran out last December.  I made it through a short 14 day cycle a month ago and I owe that to the seeds.  I guess what i'm getting at is if the doc gives you the script for O2, take it and keep your mouth closed about the hallucinogens because most of the docs will shake their heads as mine did and I walked out of his office furious.  I have a new neuro who is a headache pain management specialist and i'm just going to him for the O2.  I won't even consider bringing up the seeds.  It's sad we have to be quiet about this to our "close" minded neuros when a lot of using it have more success using seeds rather than preventative drugs. 
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« Last Edit: Oct 28th, 2009 at 2:03pm by Chad »  

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!
 
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bejeeber
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Re: ?'s r.c. seeds
Reply #61 - Oct 28th, 2009 at 2:50pm
 
Chad wrote on Oct 28th, 2009 at 2:01pm:
It's sad we have to be quiet about this to our "close" minded neuros when a lot of using it have more success using seeds rather than preventative drugs. 


It's sad alright. it's thoroughly twisted and insane when you really stop to think about it.

When people have a knee jerk dismissive reaction upon coming across a claim of any sort of therapeutic benefits of  hallucinogens, especially LSD, it would be hypocritical of me to rail against them all holier than thou though, because I can remember scoffing myself when I first saw the subject broached.

Reality is, there's a HUGE stigma attached to LSD, and I'm wishing we had a term without stigma we could use to refer to this class of therapeutics. When the terms "hallucinogens", or "psychedelics" are uttered, they are sure to immediately get a lot of hackles up and close a lot of minds.

Regarding the Bonkers doctor: He's back to being an unusually good guy/doc in my book too now that he actually wrote the non-rebreather 15 LPM prescription (!!!!!).  Grin

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« Last Edit: Oct 28th, 2009 at 5:15pm by bejeeber »  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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thebbz
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Re: ?'s r.c. seeds
Reply #62 - Oct 28th, 2009 at 5:06pm
 
Quote:
Reality is, there's a HUGE stigma attached to LSD,
Alternatives in general.
14 states now have legal marijuana for medicinal purposes. I like herbal abortive. I never trip, I dose.
These social barriers, stigma's, labels, and stereotypes are impeding sensible medicine and causing much needless pain and suffering .
all the best
the bb
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Re: ?'s r.c. seeds
Reply #63 - Oct 28th, 2009 at 7:23pm
 
The first time we tried the seeds, their effect was most pronounced the day after they were taken. They continued to be effective for almost 2 weeks, while we continued to take them every 5 days. Michael's headaches returned - though not in "full force" - day b4 yesterday. He took the seeds yesterday. Today is the day after and Michael's headaches are worse than they were yesterday. Should we take them again tomorrow or wait the usual 5 days? Or, are we still experimenting here and we can take 'em whenever we want?
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Re: ?'s r.c. seeds
Reply #64 - Oct 28th, 2009 at 8:05pm
 
Until you can find a reliable source of "bigger guns" like shrooms or LSD, try experimenting with the seeds to see what works for him. They are dirt cheap in comparison to anything except oxygen therapy.

The conventional thinking is the 5-7 day spacing, but there have been people reporting good results with much closer spacing.

Remember that it's largely uncharted territory.

Best of luck to you two.
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Re: ?'s r.c. seeds
Reply #65 - Oct 28th, 2009 at 8:42pm
 
bonkers wrote on Oct 28th, 2009 at 7:23pm:
The first time we tried the seeds, their effect was most pronounced the day after they were taken. They continued to be effective for almost 2 weeks, while we continued to take them every 5 days. Michael's headaches returned - though not in "full force" - day b4 yesterday. He took the seeds yesterday. Today is the day after and Michael's headaches are worse than they were yesterday. Should we take them again tomorrow or wait the usual 5 days? Or, are we still experimenting here and we can take 'em whenever we want?

Current thought is that any dosing done sooner than the 5-7 day spacing will simply be wasted - not that it'll hurt you. It has something to do with the way the indole ring molecules "latch" into the neural cells. Apparently if they're locked in place, other new ones cannot make their way in. That's why so many LSD users from days gone by report tripping their @$$e$ off on Friday night, then want to repeat the fun on Saturday and, bada-bing bada-boom, nothing. They eventually learn that it's a "once a weekend" thing.
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Re: ?'s r.c. seeds
Reply #66 - Oct 28th, 2009 at 8:46pm
 
Thanks you guys. We'll wait and see what tomorrow brings.
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Re: ?'s r.c. seeds
Reply #67 - Oct 28th, 2009 at 10:03pm
 
Just throwing ideas around here - wouldn't upping the dose potentially provide some benefit? Like a full 100 or more seeds?

I would imagine that would still be like nothing compared to the 1/2 hit of LSD that Michael tried. Granted, not all 1/2 hits of LSD are created equal, mileage can vary so wildly there.
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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MJ
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Re: ?'s r.c. seeds
Reply #68 - Oct 29th, 2009 at 12:22am
 
The higher doses  following a single dose appear to follow the the multi day rules/quidelines and in my opinion have no more value than the single smallest (effective) dose that had some effect on the CH. with RC seeds.

Bonkers your son and I may be similar in the strength and frequency of the hits I experienced for 30 some years before the seeds came over 4 years ago.

I approach the dosing a bit different and see it as a chemical balance thing vs a knock em out fight and this works well for me.

Due to extreme work loads recently I let my control of CH with the seeds slip, as I felt they were causing some concentration issues, and lo and behold with no seeds taken over 3 months the ch has returned in a mild but increasing state. At night they were pacers and the days fairly constant. Its ruined my power napping abilities for sure.

I dosed with a larger dose of fresh RC seeds. The following 2 days were fairly rough. I dosed again with just 5 seeds in the morning and again in the late evening. I am now consuming just 4-5 seeds on a daily basis for the past 2 weeks and keeping the CH at bay, though I feel them lurking waiting to break out. Tommorrow I will give it a break.

If no adverse effects from the seeds to date dont be afraid to experiment to find what works for you. The worst outcome would possibly be no affect at all.
The RC seeds and the dosage are not a one size fits all thing.
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« Last Edit: Oct 29th, 2009 at 12:37am by MJ »  

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Re: ?'s r.c. seeds
Reply #69 - Oct 29th, 2009 at 12:54am
 
Thanks. I think we'll experiment but keep track and post. Maybe learn something.

BTW, yesterday's dose was 45 seeds, same as the last time. Michael had a bad but not horrible day today and no spikes that knocked him out.
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Re: ?'s r.c. seeds
Reply #70 - Oct 29th, 2009 at 1:06am
 
hi MJ/others... I am awaiting my seeds (& O2), heading into my 5th week of cycle and should've been on to this much sooner but stupidly was optimistic this time!  No meds, just water water water and Im getting hammered.
My question is, should I start with 10 seeds or what?  I am sensitive to drugs, eg used to smoke dope 25 years ago but it began to disagree with me, have tried it maybe 4 or 5 times since, last time only a couple of puffs had me trippy for 12 hours + ! I just want an effective dose, not a trip!
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Re: ?'s r.c. seeds
Reply #71 - Oct 29th, 2009 at 1:21am
 
CC its recomended to start with a lower dose of say 10-12 seeds to see if you would have any adverse effects.
Read the clusterbusters.com site and all the warnings there.

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Most end up after a trial using anywhere from 15 to 30 seeds. But remember the strength of the seeds can and will vary from batch to batch and even seed to seed. There is no way to track potency without a laboratory analysis.
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Re: ?'s r.c. seeds
Reply #72 - Oct 29th, 2009 at 2:02am
 
thanks MJ, 10 it is then.
I did read all the CB info but will check the post link also ta.  Just being paranoid I guess & havent even taken anything yet  Roll Eyes
CC
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Re: ?'s r.c. seeds
Reply #73 - Oct 29th, 2009 at 8:39pm
 
Today's about the same as yesterday, maybe a little worse; but still no blackouts. I guess, like my mom said, we should be thankful for small favors.
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Re: ?'s r.c. seeds
Reply #74 - Oct 29th, 2009 at 8:47pm
 
Might be the Methadone conflicting with the seeds, but on the other hand without Methadone it is unbearable... would be really hellish week of detoxing...

I guess time to pull put bigger guns, Psylocybin or the LSD that worked for Michael.
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