Maybe anxiety.

My equation is also seeds = sleep as in baby. 

Good ideas you guys, but I think it more likely that he's so used to having a constant headache that feeling even moderately well is almost a new experience for him. Makes him kinda hyper and happy and unsleepy. Just my opinion.

I've recently been experimenting with the seeds and so far, it's too early to tell.

1st dose was 30 seeds, 2nd was 35, 3rd was 42, and last night was dose #4, which was 52 seeds.

I've been getting blasted for the past few weeks s far as numbers of hits. However, the past week has lightened up a bit. Like I said though, too early to tell, but have hope.

No side effects really. Lights get a bit brighter but that is it. Ater a few hours, I have no problems sleeping. Been dosing 5-8 days apart. I use a pepper mill grinder to crush them up, then pour room temp distilled water. Have let them steep as little as 4 hours or as long as 27 hours.

I'll know they're working if I suddenly stop getting CH's. 

Peace & good luck,
Carl D

Brew wrote on Oct 22^nd, 2009 at 4:31pm:


Off of all triptans, but some meds I cannot go more than a day without, other wise It'll cause more problems.
The day I dose though, I don't take any meds from the time I wake up, don't eat & just drink water, then go for as long as I possibly can before dosing.

I've been told that either  a) my other meds will block the medicinal effects of the rc,  or   b) the other meds shouldn't be of consequence if not taken before the dose.

I look at it this way: I don't have anything to lose by trying.

bonkers wrote on Oct 21^st, 2009 at 9:24pm:


Yeah I would imagine that feeling moderately well would be  like a revelation for Michael - I sure hope that continues.

bonkers wrote on Oct 23^rd, 2009 at 2:13pm:

One way to find out - start backing him down from the methadone.

That's just what we're doing, Brew. This is the 8th day and counting, relatively PF. Down from 12/day to 10. He doesn't care much for the withdrawal. Tough shit. Sure beats the hell out of C.H's!! I'm curious to see if O2 helps with the withdrawal. Anybody have any experience with that?

Bonkers, if necessary, get welders O2.  Buy the NON rebreather mask,(can be bought here and on e-bay, and buy a regulator that can go to a minimum of 15 lpm also available here on maybe e-bay (not sure).

Welder's 02 is the same stuff as medical 02.  I use it.  I have a lovely tanks, standing about 4' high in my living room that I rent for about $56 per year.  It costs me roughly $17 for a refill.  Get it.

To Coach Bill.  When you first begin dosing with the seeds, it is really common to have several days and nights of pretty heavy hits.  Do a re-dose, wait, dose again.  It takes several days to even a few weeks before you might see a positive change.

Do not give up.

Sandy

Hi Marc. Would you please tell us where you buy your regulators, and maybe a recommendation as to model? Thanks.

Marc,

In my post I said a MINIMUM of 15 lpm.  When I bought my regulator over three years ago, 15 lpm was considered what was needed to help, and I found a regulator that went that high. 

Since that time, a regulator that can go to 25 lpm minimum, has become the recommended choice.

Fortunately, because I consider myself to be one of the very lucky ones having CH, my little 15 lpm has done the job for me, along with the seeds.  If it wasn't doing it's job, I too would immediately get a regulator with the highest flow rate I could find, but, if it ain't broke, I don't need to fix it.   

Anything I post with regard to my use of seeds, or to O2 is only what I know from my own personal experience.  I can't post about anything that I've never personally tried, and never will,  but can only give information on those things that I have tried.



Sandy

Hi Pinkfloyd. Mike and I both feel that his Doctor, while neither a Neurologist nor a Headache Specialist (he's a neck/back pain specialist), has an extraordinarily good heart and really cares about Michael. He's even told Michael's story at several pain specialist seminars and asked for suggestions. I shouldn't judge, but I don't think that he believes that there's any value to be found in any medical treatments or ideas unless they emanate from the brains of people that have either an MD or a PhD following their names. I'm sure he doesn't appreciate medical suggestions offered by his patients.

bejeeber, Sandy_C, Brew, Marc, thanks for your support and suggestions. They are appreciated and will be followed.

BTW, 9 days and still counting. Michael is confident enough that he planned an evening out with a friend tonight - the first in a REALLY long time. Something came up . . . but, still.