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stoney CH.com Newbie Offline I Love CH.com! Posts: 3	oxycontin and percocet Sep 17^th, 2009 at 7:22pm My grandson's neurologist prescribed Oxycontin and Percocet to prevent CH's. This sounds fishy. Any comments would be greatly appreciated.
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Marc Ex Member Gender:	Re: oxycontin and percocet Reply #1 - Sep 17^th, 2009 at 7:26pm Find a new doctor who actually knows something about CH's. Seriously.
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Bob Johnson

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Re: oxycontin and percocet
Reply #2 - Sep 17^th, 2009 at 7:40pm

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Look for "Physician Finder" search box. Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

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Bob Johnson

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stoney CH.com Newbie Offline I Love CH.com! Posts: 3	Re: oxycontin and percocet Reply #3 - Sep 17^th, 2009 at 7:41pm Thanks for your comment, Mark. I really do need a better answer. Has anyone heard of these meds being prescribed for CH's?
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stoney CH.com Newbie Offline I Love CH.com! Posts: 3	Re: oxycontin and percocet Reply #4 - Sep 17^th, 2009 at 7:42pm Thank you, Bob.
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Joni

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Re: oxycontin and percocet
Reply #5 - Sep 17^th, 2009 at 7:59pm

stoney wrote on Sep 17^th, 2009 at 7:22pm:

My grandson's neurologist prescribed Oxycontin and Percocet to prevent CH's. This sounds fishy. Any comments would be greatly appreciated.

I am not a doctor or diagnostician, but this is one subject I am passionate about. Oxycontin! You've got to be kidding! Not only does it not help Cluster Headaches, it is very addictive! An addiction to Oxycontin would be worse than Cluster Headaches in my humble opinion! Marc is right...find another doctor!

Joni Smiley

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deltadarlin

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Re: oxycontin and percocet
Reply #6 - Sep 17^th, 2009 at 8:04pm

Stoney,
Yes, those drugs have been prescribed, but they are not the first line of treatment (actually, they aren't even in the ballpark). Not only can they cause rebound headaches, they are addictive. There are far better drugs out there. Lucky for your grandson, you will be able to help educate him. How old is your grandson?

A link of the OUCH website.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: oxycontin and percocet Reply #7 - Sep 17^th, 2009 at 8:10pm A doctor who prescribes narcotics for CH is merely creating another regular customer for himself. JMHO.
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Kim P CH.com Newbie Offline I Love CH.com! Posts: 10 Clinton MA	Re: oxycontin and percocet Reply #8 - Sep 17^th, 2009 at 8:59pm I agree with Joni...an addiction to oxycontin would be worse than cluster headaches. Especially since it often times leads to even worse drugs. Besides I think most everyone here would agree, narcotics don't help, they just add a complication people with cluster headaches don't need...
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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: oxycontin and percocet Reply #9 - Sep 17^th, 2009 at 9:42pm stoney wrote on Sep 17^th, 2009 at 7:41pm: Thanks for your comment, Mark. I really do need a better answer. Has anyone heard of these meds being prescribed for CH's? What more do ya want? Narcotics don't work for clusters. Potter
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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: oxycontin and percocet Reply #10 - Sep 17^th, 2009 at 10:15pm Quote: Has anyone heard of these meds being prescribed for CH's? Yes we have heard of that, but only from doctors who know very little about the mechanics behind a cluster headache. Mark was right on. Find another doctor. This one will not help you.
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Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: oxycontin and percocet Reply #11 - Sep 17^th, 2009 at 10:23pm Opiates/narcotics = NO relief for clusters
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George

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Re: oxycontin and percocet
Reply #12 - Sep 18^th, 2009 at 2:15am

Have to agree with Marc.

I was given narcotics early on for CH, but they never did me a lick of good. In fact, when I was taking them, I had more attacks, and the attacks were more severe.

YMMV, of course, but I'll never use them again. And I'd run from any doctor who wanted to prescribe narcotics for CH.

JMO. Take it for what it's worth.

Best wishes,

George

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"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535)

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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3708 Bremerton, WA Gender:	Re: oxycontin and percocet Reply #13 - Sep 18^th, 2009 at 9:31am Read Svenn's post on "Dancing with the Devil." Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Take care, and help your grandson find another neurologist.
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buckfoston

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Re: oxycontin and percocet
Reply #14 - Sep 21^st, 2009 at 9:47pm

Narcotics have helped me, but like everyone else said, not recommended. While I was on them (taken when CH set in) I never had a headache last more than 1 hour. Now, the problem is, it could have just been the headache, not the meds working since mine usually last 15 min-3.5 hrs.

It's 3 hrs into the 3.5 hr ones now when I wish I had them, then again who knows!

So...that probably didnt help at all huh!?!?!

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Callico

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Re: oxycontin and percocet
Reply #15 - Sep 22^nd, 2009 at 2:22am

I cannot speak to oxycontin directly, but percocet gives you a nice high, and you might not care so much about it, but it does not take away the pain of CH.

Marc told you right. Find another Dr. I wouldn't hurry any. Yesterday would be soon enough.

I didn't get hooked on Percocet, but I did on Fiorinol 3. It didn't help either.

Read the oxygen info to the left. FAR more effective, and it's not addictive (other than in the natural form. Withdrawal from that is fatal), and it doesn't have any side effects. At 25 LPM I can kill an attack in 5-8 mins.

Jerry

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bran4on

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Re: oxycontin and percocet
Reply #16 - Sep 30^th, 2009 at 10:16pm

ya'll are crazy narcotic pain relievers are the only ones that work well for me. i have chronic cluster headaches. given that doctor probably didn't choose the best medicines but don't knock opiates as a form of relief. it is the best relief i have taken. ive had mine for 15 years and only recently started opiates for relief but it has changed my life. i can actually function. don't knock it just because it wasn't for you

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Potter

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Re: oxycontin and percocet
Reply #17 - Sep 30^th, 2009 at 10:30pm

bran4on wrote on Sep 30^th, 2009 at 10:16pm:

ya'll are crazy narcotic pain relievers are the only ones that work well for me. i have chronic cluster headaches. given that doctor probably didn't choose the best medicines but don't knock opiates as a form of relief. it is the best relief i have taken. ive had mine for 15 years and only recently started opiates for relief but it has changed my life. i can actually function. don't knock it just because it wasn't for you

I'll bet it changed your life. Try oxygen,

Potter

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Jimi

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Re: oxycontin and percocet
Reply #18 - Sep 30^th, 2009 at 11:15pm

Quote:

ya'll are crazy narcotic pain relievers are the only ones that work well for me. i have chronic cluster headaches. given that doctor probably didn't choose the best medicines but don't knock opiates as a form of relief. it is the best relief i have taken. ive had mine for 15 years and only recently started opiates for relief but it has changed my life.

On the other thread you said that indomethacin was the drug that you had just started, not opiates.
Which is it?

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« Last Edit: Sep 30^th, 2009 at 11:16pm by Jimi »

I am convinced that life is 10% what happens to me and 90% how I react to it.

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Skyhawk5

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Re: oxycontin and percocet
Reply #19 - Sep 30^th, 2009 at 11:22pm

CAUTION!! Narcotics unless given IV take upwards of 30 minutes to become effective. If they are working now, wait a month or two and your body WILL build up a tolerance. Then you will need more to get the same effect and the spiral begins.

21 years ago before I was diagnosed I was given Tylenol 3-4's and Fiorinal. I found I had to take 2 every four hours 24 hours a day. I set my alarm for 4 hours after going to bed. Well after 3 months this was not stopping the hits......

Be aware, what's being said here is from 'been there, done that.' We all do what we have to do and right now that is pointing out the facts.

Also, being under the influence of pain meds almost cost me my job. An incident ocurred and I was told don't come back to work until the pain meds are gone.

Good luck, Don

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Joni CH.com Old Timer Offline Knowledge is Power Posts: 476 Gender:	Re: oxycontin and percocet Reply #20 - Oct 1^st, 2009 at 12:52am Bran4on- Are you sure you have cluster headaches? If so, and you are using opiates, you may soon have an additional problem before you know it...addiction.
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