Chris,

We completed the largest and most comprehensive cluster headache surveys of it's kind in December of last year.  Royce Fishman and Dr. Todd Rozen, MD, one of the top neurologists in the US specializing in our disorder led the survey design team.  Several members of CH.com also took part in it's development and preliminary testing.   Dr. Rozen and Royce Fishman analyzed the results and they will be published in two articles in the International Headache Congress Cephalalgia journal in September in time for the 14th International Headache Congress convention in Philadelphia.

As soon as we receive word that the Cephalalgia journal has gone to press and is mailing, we will be allowed to post the results.  The IHC has first rights to publication of the survey results and that prevents me from posting them in print at this time.  We had hoped to present the survey results in St. Louis but that was overtaken by events.

What I can say at this point is the survey consisted of 187 multiple choice questions covering virtually every aspect of cluster headaches from time to diagnose to demographics and epidemiology as well as efficacy of preventatives and abortives.  There are several questions dealing specifically with the use of oxygen therapy from obtaining a prescription, to it's efficacy and economics.  The survey was placed on an Internet website by a company specializing in surveys from October 12, 2008 through December 12, 2008. 1134 individuals completed the survey.

The shear number of survey participants and the survey design have produced data with a very high confidence level.  With an estimated 214,000 cluster headache sufferers in the US, a sample size of 1134 gives the compiled data a 99% confidence level with less than a 4% margin of error.  In short, the survey results will reflect the rest of the population of cluster headache sufferers accurately.

Take care,

V/R, Batch