Click this link to read a post I like on the clusterheadaches.com message board...

barry_sword

CH.com Alumnus

Offline

Mountain Biking Keeps
Me Sane

Posts: 3947
Bracebridge, Canada
Gender: male

Got My Script For A 25 LPM Regulator. (UPDATE)
Jun 17^th, 2009 at 7:04am

It was not easy as my neuro was hesitant on scripting me anything higher than a 15 LPM reg. but thanks to the documentation sent to me by Batch and me convincing him that I know what I am doing he said ok Wink

I was his first CH patient to ask for o2 to abort CH's so I can see why he was hesitant on doing this. I told him I would keep him posted regularly on how I am making out with the higher flow rate. He has scripted o2 to a couple other of his CH patients after my success with o2 aborting my Ch's. so that is a very good thing. It is also so great to have a doc who is willing to listen and work with me on this.

I have a Clustermasx but have ordered the o2ptimask which just cleared customs and should have it in the next day or so.

Once again I want to thank Batch for all he did and I will pay forward for anyone one else I can help.

Barry

Back to top

« Last Edit: Jul 7^th, 2009 at 7:59pm by barry_sword »

QUIT SMOKING SEPT. 03 2005
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

IP Logged

Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Got My Script For A 25 LPM Regulator.. Reply #1 - Jun 17^th, 2009 at 9:04am Great news Barry. Love how this family works together. Hugs Carol
Back to top	IP Logged

barry_sword

CH.com Alumnus

Offline

Mountain Biking Keeps
Me Sane

Posts: 3947
Bracebridge, Canada
Gender: male

Re: Got My Script For A 25 LPM Regulator..
Reply #2 - Jul 7^th, 2009 at 6:57pm

I wanted to wait to update this thread until I actually got the 25LPM regulators in my hands and here they are.
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

I have not used them yet as the Verapamil is keeping the beast away for now. I am actually tapering off and am still in high cycle. This is to help my neuro understand why the 25LPM is better than 15LPM for some people as he was hesitant on scripting me the higher flow.
I know the hits will start but I have the o2 and Imitrex inject kit if need be, but will only do this for a short period before I slowly ramp back up to my 480mg daily dose.

I also bought the o2ptimask and it is awesome. Here is a pic of my two regulators. One is for my portable "E" tank and home "M" tank and my new mask.
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

I just want to say I am not trying to be the "tough guy" just want to help my young neuro understand how well the o2 knocks this bastard down and want him "educated" for the next one that comes to him and has CH's, that's all.
I was helped so much by so many I am just paying forward.

Barry

Back to top

QUIT SMOKING SEPT. 03 2005
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

IP Logged

Brew

CH.com Sponsor
CH.com Alumnus

Offline

Posts: 14163

Re: Got My Script For A 25 LPM Regulator. (UPDATE)
Reply #3 - Jul 7^th, 2009 at 8:25pm

Quote:

This is to help my neuro understand why the 25LPM is better than 15LPM for some people as he was hesitant on scripting me the higher flow.

Barry,

Noble cause, but does he really need to know immediately? Can't it wait until the next cycle? How many CH patients does the guy have?

Plus, is he going to be witnessing you aborting with O2? I guess I'm just not seeing the pressing need for you to suffer needlessly.

Back to top

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

IP Logged

barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #4 - Jul 7^th, 2009 at 8:52pm Good point Brew. My neuro I think has about 5 CH patients(guessing) and I am the one telling him what I need to help control my CH's and with the o2 and Verapamil it is working! I need to do this! I am ok.
Back to top	QUIT SMOKING SEPT. 03 2005 Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #5 - Jul 7^th, 2009 at 8:56pm It's your head, dude.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #6 - Jul 7^th, 2009 at 9:08pm I did have a hard hit to the head by a fellow rider on Sunday but I am thinking clearly, I think! I thank you Bill.
Back to top	QUIT SMOKING SEPT. 03 2005 Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #7 - Jul 7^th, 2009 at 9:13pm I don't know that I could be as magnanimous. Cooperative, sure. But if it meant plunging myself back into agony....well, I just don't know.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #8 - Jul 7^th, 2009 at 9:22pm I know the o2 will knock the hits down within a few minutes, then as I taper back up on the Verap I will be hopefully back to some PF time. Just have to try this.
Back to top	QUIT SMOKING SEPT. 03 2005 Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Jim Tew CH.com Junior Offline I Love CH.com! Posts: 43 Delaware, Ohio Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #9 - Jul 8^th, 2009 at 7:07pm I have that exact same Precision Regulator in CGA 540 and am very happy with it.
Back to top	Quit smoking June 1, 2009 Vitamin D, 25-Hydroxy 34.7 ng/mL 07/17/2013 IP Logged

Jim Tew CH.com Junior Offline I Love CH.com! Posts: 43 Delaware, Ohio Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #10 - Jul 8^th, 2009 at 7:09pm I have that exact same Precision Regulator in CGA 540 and am very happy with it.
Back to top	Quit smoking June 1, 2009 Vitamin D, 25-Hydroxy 34.7 ng/mL 07/17/2013 IP Logged

Jim Tew CH.com Junior Offline I Love CH.com! Posts: 43 Delaware, Ohio Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #11 - Jul 8^th, 2009 at 7:10pm I have that exact same Precision Regulator in CGA 540 and am very happy with it.
Back to top	Quit smoking June 1, 2009 Vitamin D, 25-Hydroxy 34.7 ng/mL 07/17/2013 IP Logged

Jim Tew CH.com Junior Offline I Love CH.com! Posts: 43 Delaware, Ohio Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #12 - Jul 8^th, 2009 at 7:10pm I have that exact same Precision Regulator in CGA 540 and am very happy with it.
Back to top	Quit smoking June 1, 2009 Vitamin D, 25-Hydroxy 34.7 ng/mL 07/17/2013 IP Logged

Kilowatt3

CH.com Old Timer

Offline

1952 Jag

Posts: 300
Lake Charles, Louisiana - USA
Gender: male

Re: Got My Script For A 25 LPM Regulator..
Reply #13 - Jul 8^th, 2009 at 7:19pm

barry_sword wrote on Jul 7^th, 2009 at 6:57pm:

...the Verapamil is keeping the beast away for now. I am actually tapering off and am still in high cycle. This is to help my neuro understand why the 25LPM is better than 15LPM for some people as he was hesitant on scripting me the higher flow...

I just want to say I am not trying to be the "tough guy" just want to help my young neuro understand how well the o2 knocks this bastard down and want him "educated" for the next one that comes to him and has CH's, that's all...

Barry,

You need to have your head examined! (j/k) Wink

Back to top

Regards,
Jim
SW Louisiana

If "that which does not kill me, makes me stronger", then how come I always feel like $hit after every near-death experience?

IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Got My Script For A 25 LPM Regulator. (UPDATE) Reply #14 - Jul 8^th, 2009 at 11:27pm Feel good Barry! I wonder if Jim Tew has that exact same Precision Regulator in CGA 540 and is very happy with it?
Back to top	I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again. IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!