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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › What I did.

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What I did. (Read 890 times)

Pitsy

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I Love CH.com!

Posts: 1
Manchester, PA
Gender: male

What I did.
May 15^th, 2009 at 10:55am

I've been chronic for 13 years.

Before Christmas I was taking 200 mg of topomax, 720 mg of verapamil, and occasionally I'd be on indocin. I also used O2 and imitrex when I get attacks.

So I was sick of the topomax making me feel dopey so I (along with my dr) decided to taper myself off. I started feeling better so I decided to start cutting back the verapamil. Now I don't take any preventatives.

Since January I have had only 4 attacks and either took O2 or imitrex to abort. Before I was getting between 5-12 attacks a week.

It's the best I've been since they started. Sometimes I have shadows.

I know this isn't for everybody and you should consult your doctor, but I think I was over medicated.

Just thought I would share. My divorce was final in December so maybe along with the stress of that I why I feel so good.

Take care and pain free wishes to everyone.

Tony

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: What I did. Reply #1 - May 15^th, 2009 at 11:27am Good on ya. Keep huffin that oxygen. Potter
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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: What I did. Reply #2 - May 15^th, 2009 at 11:57am Yes, many people have found that medications can make matters worse, such as in extended cycles. For some of us, yes they helped the CH to a good degree, but the side effects were hell in their own right. I'm glad to see you are doing much better, and as Vet says...keep that O2 around just in case.
Back to top	"The goal of life living in agreement with Nature." ~Zeno IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: What I did. Reply #3 - May 15^th, 2009 at 12:00pm Yup...chronic 5+yrs... off meds 2.5 and much better since off. Attacks are less frequent and less intense. Still get them but life's better Good for u
Back to top	I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again. IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: What I did. Reply #4 - May 15^th, 2009 at 12:09pm Glad it's working for you. 31 years and that little green tank is still one of my best friends! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

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