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What worked for me (Read 3881 times)
just bill
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What worked for me
Apr 8th, 2009 at 3:05pm  
After years of taking all different medicines over the counter and prescriptions.... what worked for me was Goodys Headache Powders.... Within 20 minutes of taking one (or two) I would start feeling relief.... I know these powders are sold everywhere but if you know someone that lives in the southern US, have them send you some to try....
I lived with cluster headaches for over 25 yrs and dredded evey one... but these Goodys Powders really worked for me....
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Re: What worked for me
Reply #1 - Apr 8th, 2009 at 3:24pm  
just bill wrote on Apr 8th, 2009 at 3:05pm:
After years of taking all different medicines over the counter and prescriptions.... what worked for me was Goodys Headache Powders.... Within 20 minutes of taking one (or two) I would start feeling relief.... I know these powders are sold everywhere but if you know someone that lives in the southern US, have them send you some to try....
I lived with cluster headaches for over 25 yrs and dredded evey one... but these Goodys Powders really worked for me....

Dude ya got a headache.

     Kinder gentler Potter
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Re: What worked for me
Reply #2 - Apr 8th, 2009 at 3:24pm  
Goody's contains aspirin, caffeine, and acetaminophen, the same formula as Excedrin.

Maybe it is the caffeine??  Either way, glad it works for you.
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just bill
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Re: What worked for me
Reply #3 - Apr 8th, 2009 at 5:20pm  
To vietvet..... first... thanks for your service.... I too am a nam vet... and my son is in the Navy currently with 2 tours to Iraq......

Second.... Dude... it wasn't  "just a headache" ..... I probably went through the same pain you did but mine finally left after 25 yrs.... as the old saying goes... Dont knock it till you try it.... maybe it sounds like just headache meds which that it was intented for.... but when oxygen... tylenol 3... percocets and other scripts didnt work and the Goodys did... who am i to question it??? and yes.... I was finally diagnosed (after years of tests) by 3 different doctors saying it was CH....
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Racer1_NC
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Re: What worked for me
Reply #4 - Apr 8th, 2009 at 6:02pm  
"Percocet" won't touch CH. At least that's what most people say. I'm curious as to what meds you have tried with no success. What flow rate and mask did your O2 set up have? Many here have had good results with a high flow rate and the correct mask.

Oh...and welcome. Sorry ya had a need to seek us out, but I'm glad you found us.

(Also a) Bill
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« Last Edit: Apr 8th, 2009 at 6:03pm by Racer1_NC »  
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Re: What worked for me
Reply #5 - Apr 8th, 2009 at 6:14pm  
I am glad that the Goody's works for you.  You are not the first one to say that it helps you.  I know I tried it, but, like too many other meds, it did nothing for me.

Whatever it is that Goody's does different, it has helped a number of people on this site.

Glad you found something that works.

Chuck
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Re: What worked for me
Reply #6 - Apr 8th, 2009 at 6:35pm  
Hi just bill.....welcome to the group.

I too have heard it works for some.
I'm thinking it may be the caffeine.  Blake takes Excedrine Tension or Migraine for heavy shadows and that helps him.
I may just have to get some Goody's....kinda the same idea.
We'll try almost anything...

Be well....
Jackie

Modified to add:  Just to clairfy.  The Excedrine has never done anything to help a full blow cluster hit.....just takes the edge off a low grade shadow.  
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« Last Edit: Apr 8th, 2009 at 6:53pm by Jackie »  
 
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just bill
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Re: What worked for me
Reply #7 - Apr 8th, 2009 at 7:14pm  
Hey Bill and Chuck.... Nice to meet you.... actually I came to this site years ago.... just never posted anything here till I was telling a friend about this site.... then decided to share what worked for me while I was going through CH.....

Bill... a racer?? what kind??? I drag race a 71 Nova in support of our troops... Done in Navy theme
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« Last Edit: Apr 8th, 2009 at 7:26pm by just bill »  
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Racer1_NC
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Re: What worked for me
Reply #8 - Apr 8th, 2009 at 7:34pm  
just bill wrote on Apr 8th, 2009 at 7:14pm:
Bill... a racer?? what kind??? I drag race a 71 Nova in support of our troops... Done in Navy theme

For years, I was a spotter for a team in a NASCAR regional touring series.....these days I'm just a track bum.  Wink

B
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Re: What worked for me
Reply #9 - Apr 8th, 2009 at 8:54pm  
Bill,
Welcome to CH.com and thank you and VietVet for your service to this country. Acouple of questions.

How long have you been in remission, or do you still get CH periods?

When suffering did you try any prescriptions besides narcotics?

Can you please describe one of your worst attacks?

Please understand that for most of us that have tried, like me, 35 different meds, including narcotics, make something like Goody's hard to believe.

Don't get me wrong I'm glad you've found relief, but just a little curious.

Don
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just bill
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Re: What worked for me
Reply #10 - Apr 8th, 2009 at 9:28pm  
Howdy skyhawk..... I have been in remission probably about 4 yrs now..... I started getting CH back in 78..... and was eventually told by my dr that they should start going away by the time i reached 40..... well I am 56 now.... do the math..... lol....

I tried inhalers... and basically anything the dr would throw at me.... am sorry I cant be more specific on what all exactly I took ... but I am suffering from CRS.... Cant remember (lets you fill in the blank.) lol...

What I experienced was a sharp pain behind my eye to start with... then alongside my nose and into my jaw..... my head felt like it split in half..... the pain was so bad a few times i beat my head against the wall and floor...... and worse...... something i wouldn't wish on anyone.... I would try to find someplace dark and keep pressure on my head......

I too couldn't believe something as common down here as Goodys could work better then anything else... but for me it did.... and I would suggest to anyone that asks to spend the couple bucks to see if it works for them.....
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Skyhawk5
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Re: What worked for me
Reply #11 - Apr 8th, 2009 at 10:12pm  
Copy that Bill,
I'm soon to be 54 and CH started in '88. I had to register for the real draft but it was stopped 6 months later and I received a card with 1-H (hold) on it.

Sounds like you've fought the CH battle and are winning at this point. I hope it stays that way. CH is a rare and unpredictable illness and there are cases of remissons for up to 25 years, only to have it return. I pray that's not you of course.

I'm episodic and have had as long as 2 years in remission. The last two cycles I got less than a year. I was chronic my first 28 months of CH.

Thank you for your story and keep up the good fight.

Don
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Though I walk through the valley of the shadow of the Beast , I  have O2 so I fear him not.
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Re: What worked for me
Reply #12 - Apr 8th, 2009 at 10:40pm  
never heard of goodys.  Is it an actual powder, or a pill?   But hey, whatever helps, Im willing to give it a try during the day, to help with the shadows, but not at night when the caffiene will make it impossibel to get the few minutes of sleep the beast allows me to have.
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Re: What worked for me
Reply #13 - Apr 9th, 2009 at 10:22am  
just bill wrote on Apr 8th, 2009 at 9:28pm:
Howdy skyhawk..... I have been in remission probably about 4 yrs now..... I started getting CH back in 78..... and was eventually told by my dr that they should start going away by the time i reached 40..... well I am 56 now.... do the math..... lol....

I tried inhalers... and basically anything the dr would throw at me.... am sorry I cant be more specific on what all exactly I took ... but I am suffering from CRS.... Cant remember (lets you fill in the blank.) lol...

What I experienced was a sharp pain behind my eye to start with... then alongside my nose and into my jaw..... my head felt like it split in half..... the pain was so bad a few times i beat my head against the wall and floor...... and worse...... something i wouldn't wish on anyone.... I would try to find someplace dark and keep pressure on my head......

I too couldn't believe something as common down here as Goodys could work better then anything else... but for me it did.... and I would suggest to anyone that asks to spend the couple bucks to see if it works for them.....

What are inhalers?
     
Kinder gentler Potter
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Re: What worked for me
Reply #14 - Apr 9th, 2009 at 12:38pm  
Potter wrote on Apr 9th, 2009 at 10:22am:
What are inhalers?
     
Kinder gentler Potter

An inhaler or puffer is a medical device used for delivering medication into the body via the lungs. It is mainly used in the treatment of asthma and Chronic Obstructive Pulmonary Disease (COPD).

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Potter
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Re: What worked for me
Reply #15 - Apr 9th, 2009 at 3:41pm  
Quote:
Potter wrote on Apr 9th, 2009 at 10:22am:
What are inhalers?
     
Kinder gentler Potter

An inhaler or puffer is a medical device used for delivering medication into the body via the lungs. It is mainly used in the treatment of asthma and Chronic Obstructive Pulmonary Disease (COPD).

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

I believe the question was directed towards Bill.  Etiquette  son etiquette.

         Kinder gentler Potter
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icedragon
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Re: What worked for me
Reply #16 - Apr 9th, 2009 at 5:00pm  
Potter wrote on Apr 9th, 2009 at 3:41pm:
Quote:
Potter wrote on Apr 9th, 2009 at 10:22am:
What are inhalers?
     
Kinder gentler Potter

An inhaler or puffer is a medical device used for delivering medication into the body via the lungs. It is mainly used in the treatment of asthma and Chronic Obstructive Pulmonary Disease (COPD).

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

I believe the question was directed towards Bill.  Etiquette  son etiquette.

         Kinder gentler Potter


Funny, You using a word like etiquette...
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Re: What worked for me
Reply #17 - Apr 9th, 2009 at 6:04pm  
Quote:
Potter wrote on Apr 9th, 2009 at 3:41pm:
Quote:
Potter wrote on Apr 9th, 2009 at 10:22am:
What are inhalers?
     
Kinder gentler Potter

An inhaler or puffer is a medical device used for delivering medication into the body via the lungs. It is mainly used in the treatment of asthma and Chronic Obstructive Pulmonary Disease (COPD).

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

I believe the question was directed towards Bill.  Etiquette  son etiquette.

         Kinder gentler Potter


Funny, You using a word like etiquette...


Funny you not having to use wikipedia for the definition.

                  Kinder gentler Potter
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icedragon
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Re: What worked for me
Reply #18 - Apr 9th, 2009 at 11:18pm  
Potter wrote on Apr 9th, 2009 at 6:04pm:
Funny you not having to use wikipedia for the definition.

                  Kinder gentler Potter

Funny you are,  LOL

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Re: What worked for me
Reply #19 - Apr 17th, 2009 at 1:14am  
Bill,

Welcome aboard.

Having lived in SC for a number of years I am familiar with Goody's, and used to use them a good bit.  Because they are in a powder form they tend to work a little faster than a tablet, or at least that is the advertising factor.  They would work for me for a shadow or up to about a K4.

I don't doubt you have CH, but my personal experience suggests to me that you are undergoing shadows that the Goody's is knocking out, and that you are in the beginning stages of a new cycle.  I HOPE I"M WRONG!  My suggestion is to read up on some of the newer advances in O2 therapy to be prepared if I'm right.  Goody's will not stand up to a full blown attack, and it will tear a hole in your stomach lining.  Been that route.

If your Dr is still trying to give you opioids you need a new Dr yesterday!

Jerry
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Re: What worked for me
Reply #20 - Apr 19th, 2009 at 9:10am  
Listen guys - before we get a stink going here..... Excedrin Extra Strength (about the same ingredients as Goody's) three of them and a good strong cup of coffee works wonders for me (and has for years) when I get hit (up to about a 6) BUT****** it will cause rebounds if taken more than a couple of times!!!!!

Of course since I started on the high flow O2 with my nice demand valve and all that I don't do the Excedrin as often as I used to do, BUT I still do it occasionally and it STILL WORKS. I'm just careful not to do it real often.

Bill, welcome to Clusterville and I'm glad you found something that works for you. If you're starting a new cycle, read up on the new ways to use O2 and give it another try -- it's worked wonders for some of us oldtimers who've been kinda cool about it for years. The high flow rates with the RIGHT mask have made a total believer out of me. I can kill Mr. Demon in a very short time with usually nothing more than O2.

Again welcome....

Hugs BD
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Re: What worked for me
Reply #21 - Apr 20th, 2009 at 6:57pm  
Potter,
I may be mistaken, but Imitrex is the only triptan that comes in an inhaler.  I think it's been on the market about 4 years?
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Re: What worked for me
Reply #22 - Apr 20th, 2009 at 8:18pm  
geeeee   d.d...you can have my zomig ns when you pry it out of my cold dead hands...gonna have to fight thru piles of e tanks first Cool
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Re: What worked for me
Reply #23 - Apr 21st, 2009 at 9:26am  
jon019 wrote on Apr 20th, 2009 at 8:18pm:
geeeee   d.d...you can have my zomig ns when you pry it out of my cold dead hands...gonna have to fight thru piles of e tanks first Cool



Told you that I didn't know which ones came in inhalers!
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