In order for this site to be run the way DJ envisions it should be he has put in a standard of conduct for everyoen to read before they post.   Please read it since you haven't been here in a while.

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Calling people names as you did to Chuck, steps over that line.  As DJ says...attack the idea or opinion...NOT the person.

OK, I'm gonna step in here.  Chuck is NOT an ass, and consider this your warning for name-calling.  He is the LAST person on this site that would ever be mean.

Everyone needs to take a deeeeeeep breath.

Lissa wrote on Apr 2^nd, 2009 at 4:29pm:

I thought his post was spot on.  Ya shoulda seen the beating I took from a few members when I posted some cockamamy shit.  I took heed, got the oxygen going and dropped the imtrex.

               Kinder gentler Potter

1.  While Chuck might have annoyed you, he is right about Oxygen.  If you deductibles are so high, how could imitrex be cheaper?  Out of pocket, O2 is not expensive.  buy your own regulator and mask and it is very cheap.  If you go into cycle and need it every day, most insurance cos wont give you more than 6 a month (unless this has changed recently)

2.  Imitrex has negative effects to the body. 

3.  Have you tried energy drinks (very cold chugged) with taurine???  If your hits arent so bad, they may be a better option.

I am not down-playing using imitrex, as it works very effectively, but I think O2 is a much better option in general if it works for you.

Now chuck, you know breathing is a trigger since you are chronic and every day you breathe, you usually get multiple hits!!!!

As for smoking, if it was a trigger.... whoa, conventions would be ugly!

FramCire wrote on Apr 2^nd, 2009 at 7:47pm:



Fram, I believe with higher deductibles you have lower co-pays.  When I was covered by Kaiser, all of my co-pays for meds were only $5.00.  It did not matter what the med was, it was always $5.00.

As far as what Chuck said in his post, I can not blame Lissa for her reaction.  I know Chuck does not mean to offend usually, but he crossed the line also. 

Quote:

I don't know what the rest of you would call this, but it looks like a character assassination to me.  And Lissa is the one getting a warning...

Not to mention, she has stated her opinion on O2, and everyone continues to push their opinion about O2 on her.  Give the girl a break.

Thomas

I just wanted to add one thing or rather ask one thing.. has anyone found that the chiropractor made it worse?

My aunt "convinced" me to see on in New Jersey and by the time that he got done, I was in such pain that I was screaming and banging more than ever. I had to go the ER for treatment because it was too severe to go through.. I never went back for fear that that would happen again.

I also scared the chiropractor so bad that called me twice to see how I was doing and to say that he had never seen anything like that. He got a first hand glimpse of CH and I am sure that is not what he wanted to see.

I know that this does not happen to everyone but I just wanted to share my story.. and, not that I want to ever try it again, but wondering if this was a fluke or a trigger? You never know.

And I also wanted to add that I read through this whole post and I have to say that somethings in here were out of line. What Chuck wrote and I know that he meant well were a bit harsh and out of line. We all have our ideas on what works and does not work, we need to respect each other on that.

I did not think that the breathing being a trigger comment was so bad because when I am shadowing and I know of another person with this too, breathing through that nostril is very painful and can make it worse.

And, one more thing, I understand that oxygen is beneficial and safe for most people on this board but that option is not for everyone. I know that it can be very hard to get a hold of and does not work for everyone. If someone has another treatment that works for them than that should be fine.. we all want to be painfree and we do what we need to do as individuals to get there.

That is just my two sense worth.

Jill

Lissa, as I posted in your other thread, I understand that you are going through difficult times right now.  We've all been yhere, although some lose sight of what it was like when they suffered without support or treatment, most here are truly interested in helping you.

Please, use my email or my PM and get in touch with me and let's see if we can't find something that will work to get you some relief from your suffering.

Save your energy for battling your pain.  No one here can claim to know everything, myself included.  I'd like to try and help you if you're interested.

The one thing we know for sure about this disease is that we don't know everything and it's face is always changing.  Contact me if you think you'd like some help from me - no strings or judgement attached.

Cat