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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Topamax- back to the drawing board

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Topamax- back to the drawing board (Read 910 times)

Katie

CH.com Junior

Offline

I just get 'those' headaches.

Posts: 98
England

Topamax- back to the drawing board
Mar 31^st, 2009 at 3:34pm

And it was going so well.
Broke out with the most increadibly itchy rash that has just spread and spread no matter what I tried to do to damp it down.
Spoken with GP as soon as it started, spoke with the headache clinic.
Thats it.
I have managed to scratch and chew through severe eczema sleep tops in my sleep and kept my husband awake from the scrit noise more than I ever did using O2 and muttering about CH. I cannot focus on essays from trying not to scratch.
Its gone beyond something I can live with and I am not prepared to take any more as I have almost run out of skin that does not have dermitisis.
Looks like this is another preventative drug for the 'and also rans' list.

Fed up. This was one drug that actually helped with the headaches. Angry

Pain is no evil unless it conquers us.

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Bob Johnson

CH.com Alumnus

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"Only the educated are
free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: Topamax- back to the drawing board
Reply #1 - Mar 31^st, 2009 at 4:28pm

I am discouraged by docs who don't start with the old stand-bys like Verapamil--a known track record.

Top. is the latest thing in the literature which means it hasn't had sufficient time of field experience to reveal the side effects, etc.

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive
and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

============================================

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

ALL NEW!! HEADACHE 2008-2009
The new 72 page Headache 2008-2009 is hot off the press! Click here to download the PDF instantly! (free)

If you would like a bound copy, send $12 (includes shipping) to
Robbins Headache Clinic
1535 Lake Cook Rd.
Suite 506
Northbrook, Ill.60062

OR call 847-480-9399 to use Visa or Mastercard.

Bob Johnson

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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Topamax- back to the drawing board Reply #2 - Mar 31^st, 2009 at 4:28pm Sorry Katie, I hope you find an effective substitute quickly. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

Katie

CH.com Junior

Offline

I just get 'those' headaches.

Posts: 98
England

Re: Topamax- back to the drawing board
Reply #3 - Mar 31^st, 2009 at 5:58pm

The anti-convulscents group have been the best to date at tackling the happy mix of chronic migraine and notching down episodic CH.
The hospital is trying to find the one that gives best pain relief but least side effects for me that will allow me to step up during CH and step down for migraine.
Just a tad po'ed as I was beginning to think after 20 years I had finally found something that was working for both.

Pain is no evil unless it conquers us.

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