Hi,
The anti-convulscent group are my friends when it comes to kicking back at headaches. They are about the only group of drugs I do seem to have some quality of life with *sighs*
Epilim - weight gain helped with migraine but even increasing the doses did not make a scarp of difference to CH for me.
Gave me word finding difficulties and I tended to be a tad drifty. Not always good a house with four kids one with autism and the other with Aspergers and ADHD.
Topiramate. Reducing migraines, made the spaces between CH headaches 'nicer'. Before the after shock pains were horrible. Side effects are tingling fingers/toes just after I take it, loss of appitite some food and drinks taste weird. Word finding difficulties but better cognitive abilities than I had with Epilim.
I do strongly suggest contacting OUCH UK for info on what drugs are available in the UK. It would also be a good idea to ask for a referral to a Neuro. A good Neuro with a specialised interest in headaches can work with a GP to tweak the drug regime to be more effective as they have a greater knowledge base than most GPs even those with interests in headaches.
You can ask for a referral to a new neurologist again speak with OUCH UK about the problems you have had there.
You can change neuros under the NHS if your having real problems.
I changed mine. My new one is fantastic.
OUCH UK re; none rebreather mask problems. The ones we get issued under the NHS HOOF cost about £2 and I am not sure if the fittings would be compatable so it might be a good idea to chat to someone who has looked into that. It may be possible to order a more expensive better fitting mask on the HOOF.
The NHS provides o2 with an upto 15LPM setting; you would need to ask your home oxygen provider if they do provide a higher setting and if they do then I am fairly sure it would be a case of re-submitting the HOOF. The set-ups in the USA are differant to what is available in the UK so speak with OUCH UK.
And the 'shrooms. DON'T see this website first for legislation etc in the UK Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
You will have the UK drug squad round pretty darn tout sweet under UK legislation . They do not like 'for medicinal purposes' as a defence.
Social services will be breathing down your neck about that too.
If the drugs you have are not working for you.
Call OUCH UK for support and advice. Its UK specific.
Get the name of a good neuro you can travel to
Get a referral from your GP to said neuro
Go see said neuro.
Good luck.