Hi Brandea, welcome to the site.

Has your physician diagnosed you specifically with Cluster Headaches? Just curious. Anyway, I'm a "supporter" so I don't know about the procedure of which you're inquiring. However, there is alot of information specifically about CH to the left.

Hope you find some answers!

I've heard it mentioned by pain management doctors, including one talking to us about the clusters. I've only heard it mentioned, it hasn't gone any further, though.

But they DID say they had good results for some forms of headaches.

I wish I had more to offer than just 'I've heard of it'. The only thing I can reccomend is check around online more to see if there are others who have had success with it for the type of headaches you're having.

I hope either way, that you are pain free soon!
Mystina

Hi Brandea:

Sorry you are experiencing headaches daily.  I see you've asked what kinds of medications or procedures we've had. 


I'll tell you what I've taken thats helped but it may be more efficient for you if you tell us what you've taken to treat your clusters , maybe what you are taking now for prevents, to abort etc?  With so many members having so many years of experience with these things many could look at your meds and dosages and help you have good discussions with your docs. 

I've taken Verapamil 620 mg which stopped my headaches till cycle was over,  have taken most of the triptans with Zomig Nasal and Immitrex Stat Dose being the fastest abort for me.  Have taken Frova as sort of a prevent ,  and currently using only  RC Seeds which I believe has prevented my March Cycle.    I am episodic btw.

Glad to have you here and hope this helps in some way.

Kelly

Hi Brandea,

I have not heard of the implant you mention.  There a lot of other options you might try before the implant that might just do the trick for you without having to be so invasive.

A lot of people here have success using high flow O2.  It works for me as well.  There is also clusterbusting; using RC seeds, mushrooms, or even LSD have had some success.  There are a number of supplement regimes discussed here that show some promise also.  There is a lot of info in the buttons on the left of the screen for all of these and more.  Good luck in your search.

Thomas