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I really can't think of anything in this world that is worse than CH. Maybe because I've always been in good health except for the CH condition. When in a cycle my life belongs to CH and I can't do anything about it.
Martini, I'm almost 60 also and have tried almost everything legal and illegal to abort or prevent CH. Nothing has worked. I even tried smoking PCP at one time. That is supposed to dull even the greatest of pain, but it didn't work. When I was younger I smoked pot and still got CH. I don't believe pot is as addictive as tobacco. If someone wanted to try it.
Your story is a nice thing to hear, that it's working for your son, but for most CH sufferers I really don't think pot is going to help us. If we had more research and tests I would think everybody would give it a try, sort of like Oxygen. Since it doesn't have the full support of the medical community, it's only another possible fastfix remedy.
I hope your son continues to have PF success.
Rod

Rod wrote on Mar 20^th, 2009 at 7:12pm:



Sadly and hard to believe, but there are a lot of things in this world worse than CH. My late husband had episodic CH and severe depression. It was the depression that killed him, not CH.

The pain of CH is extreme when its there but it does pass. My late husband found that the pain of severe depression never ended.

You know, we can sit here and talk about it not working, but the fact is, it does work for my son and apparently for at least one other person. I would bet this won't be the last time we hear this claim.

When you consider trying LSD, Shrooms, LSA or other more drastic measures you have no clue what effects those might have ultimately. As medical Marijuana is legal in some states and at least de-criminalized in many other, it might be worth a try.

It's not ideal, I agree, but if it means some relief...I'm sure most of us have considered MUCH worse to get out of the pain.

MartinL wrote on Mar 20^th, 2009 at 9:30pm:



Thank you very much Martin for clarifying.

So he does have pressure and pain behind the eye. What you described sounded like cluster headache, except for the blurry vision and the sensitivity to light and sound. Some people have reported these symptoms although they are more typical of migraines than clusterheadaches.

May I ask further please, what has your son used this cycle ? Did he start out trying other abortives which did not work? How and why did he decide to try this tincture ? Had he taken Magnesium and Melatonin before ?

It sounds like he is planning on using supplements like melatonin and magnesium and omega 3 as preventives rather than traditional meds ?

Since your son had the shadow and took the tincture he skipped the usual first hit of the day, as well as not getting the 2nd shadow/headache either? This makes it sounds like MJ is also working as a preventive, as well an abortive. That is incredible if it is true.

I hope you dont mind me asking all these questions, I am fascinated by this and am keen to learn as much as I can.

Thank you.

MartinL wrote on Mar 18^th, 2009 at 8:03pm:

water X 3 i Tried it - No
- splitting Imitrex auto injections - Not injections buy Orally - N0
- VERY high flow oxygen treatment (above 15LPM)
- kudzu - Not yet
- seeds - Not yet - He's completely opposed to LSD/LSA,Shrooms.
- heat or cold applications - Yes,  hot showers one of his main abortives.
- energy drinks - Yes, he drinks red bulls anyway, does not help. We have also tried high caffeine pills like No-doze. No help on the caffeine.
- hard exercising - He can't even move when in pain. His work is lifting heavy objects. He get's a tremendous amount of exercise.
- Dr Wright's circulatory treatment - No
- meletonin - Yes, 5mg once a day for the last week. Shadows still coming.
- mineral supplementation- Other than magnesium which he has been on for a week no. Fish oil has just been added.


Please point me to some information on how to take O2 effectively for CH. I tried it back in my day with no result and he has tried it as well. Perhaps we were not doing it correctly.

I do monitor his health, his blood pressure is a little high at 198/98 but his O2 blood level always stays around 97-98%.

MartinL wrote on Mar 21^st, 2009 at 8:28am:

MartinL wrote on Mar 21^st, 2009 at 8:28am:


Martin, I read this - and the fact that you have gone to different doctors because they "wouldn't listen to you and wanted to run a bunch of tests."

A little high?!!!! This whole scenario is starting to look really scary to me.

A couple of things.....

Martin, does your son have no desire to get on this site? We would love to talk to him about this in person

You sure must have some pull somewhere to get Physicians from other states to email you back and forth. I never had any luck with that.

Sansert worked for me back in the day as well.

Where are you guys from?

Martin,

I am sorry you are feeling like this. We are only concerned for the health of your son.

Blood pressure at 198/98 is extremely high, thats near the stroke range. Your son is at risk of getting a stroke or a heart attack from that blood pressure alone. Is this blood pressure measured during/straight after a hit or is it his normal reading? Normal blood pressure should only be around 120/80, anything above 150/90 should be treated.

Blood oxygen level at 97% is not that good either. Normal level in an otherwise healthy individual should be 99 to 100% at all times. Is your son a cigarette smoker ?

Has your son had MRIs to rule out dangerous things like a brain tumour? Has he had all the necessary blood tests ?

I fully understand your frustration with the neurologists but your son needs to see one who are experienced with headaches, especially clusterheadaches. People on the Board here can help recommending one to you.

I am not rubbishing the concept that MJ may work for CH. I am more concerned about your son's health and the actual cause(s) of his headaches and his hypertension. Many people get misdiagnosed and in some that can be dangerous.

I admire your effort in helping your son and in advocating for him, but you need to let the doctors do their work too. You have personal experience with CH but your son may have other medical conditions that you do not know and can not manage on your own.

I may have made you feel even more angry but sometimes we all need to hear what we need to hear, not what we want to hear.

Painfree wishes and best of luck to you and your son.

@Jimi - My son used to be a member here, but when he discussed his abortive here which was Dristan, he was ridiculed. That works too and 100% of the time. He would not come back to this site because of the way people scoffed at him.

I used Dristan before my Sansert. When we got so frustrated with the doctors, he went back to Dristan and that is still his abortive today. People can scoff at that one too. Fine...

Dristan worked for me and and it works for him and 100% of the time. The problem with that is it take 4 tablets per dose and the best Dristan for CH has been taken off the market. It was removed because people were making Speed out of it I am told. There are still Dristan formulas that still work though, and we order them ahead if time to insure he has an ample supply. Pills take 20 minutes or more, pot takes less than 5 minutes. Which one would you choose?

I don't have any pull with doctors, I am just an impassioned parent. When my son discovered a few puffs aborted the CH attack, I contacted Doctors in a state where Medical marijuana was legal. They were receptive to my findings and as I didn't sound like some kid trying to get stoned they were happy to help. One physician sent me a referral to Dr. Bob, who is as I understand it, one of the leading authorities in cannabis pain research so that that I might try to understand the why behind the fact that is does work. I don't need to know IF it works, I know that...but why and more importantly how can I eliminate the other side effects like feeling high?

That journey lead me to thinking of a delivery a delivery method where he didn't smell like pot smoke That's where I learned about Cannabis tinctures and after a few consultation with medical Marijuana doctors I was given the tincture method which I has posted here.

That's how all this started and I continue a dialog with the doctors and Dr. Bob today. I am looking for a solution to alleviate the CH pain without him feeling stoned.

I told my son yesterday about my experience here, he asked me why I was even posting on this forum. His comment mirrors my own thoughts. "I don't care what they say or think,  pot works."

The sad part in all this, is that we all know that people have different experiences in dealing with these god awful headaches, their abortives/preventives etc. and in my mind. NOTHING should be ruled out. People are advocating LSD and other hallucinogenics and yet pot is dismissed as a more harmful solution? I don't get it.

There is NOTHING in it for me to post this here. Why in the world would I just post nonsense when I know first hand the debilitating pain and the life changes these things cause? The only motive I had was try share my experience in order to help others. I am greeted with the skepticism of a snake oil salesman in spite of pointing to scientific articles to facilitate further discussions here. Humm, ok, believe it or not.

I feel reluctant to post back any findings at all, even though I have some new information and developments. I feel sad for users of this forum who might gain some relief. I can't say it works for everyone, because he is not everyone and we all know that some things work and some don't for different sufferers. What I can say is that it works for my son and 100% of the time and continues to work 100% as late as yesterday.

My quest will continue for a safer, less obtrusive and less noxious solution. As I have stated here many times, this was not my first choice of abortive by any stretch of the imagination, but it does work for my son and I support his right to kill that demon inside his head.

People can say what they will, choose to try this or not. I don't sell pot, or sell papers to smoke it, or the glycerin to make tinctures nor am I an advocate for recreational marijuana use nor am I affiliated with any of the above. I'm just a Dad, trying to help my son and perhaps others along the way.

I wish everyone shorter cycles and the best of luck finding your own solutions. I say try it, if it works, great, if not keep trying something else that works for you until a real solution is found that works for EVERYONE 100% of time.

Martin

@Barb - Yep, works here too for my son and like you, we don't know why. A few puffs and wham, the CH is gone.

Martin,

I understand your frustration. Please note that my last comment was specifically aimed at your son's dangerously high blood pressure - NOT the pot issue. You need to find out what is causing the high BP at such a young age.

Good luck

Marc

MartinL wrote on Mar 22^nd, 2009 at 10:56am:


Then your posts make you sound plum ignorant.Let this worthless thread die fer crissakes.


     Kinder gentler Potter