Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Pages: 1 2 3 4
Send Topic Print
An abortive that actually works. (Read 15245 times)
MartinL
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 22
An abortive that actually works.
Mar 18th, 2009 at 9:11am
 
I am a former CH sufferer. My son has them now and we have run the gamut of fast abortives with mostly failing success, until this.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

My son indicates that within 5 minutes of smoking 1/4th of a pot cigarette, it completely aborts the CH headache.

My son is not a recreational drug user at ALL. He hates the way any drug legal or illegal make him feel, but it beats having the pain he says.

He has been testing this now for over a week and at every single onset, the CH is completely and totally aborted within 5 minutes of inhalation of a tiny amount of pot and every single time his headache starts to come on. Every single time.

I have never condoned use of illegal drugs and this is not reversal of my position. However, desperate times often mandate desperate measures. We all know how horrific these hurt and the helpless feeling when we're in one.

As an alternate delivery method to smoking, marijuana glycerin tinctures show some promise in our early trials. A few drops of tincture under the tongue and it's absorbed into the blood stream within 5 minutes. You can Google these glycerin tinctures and find the ways to make them should you consider this method. The glycerin base is the key to rapid absorption.

I just thought I would pass this on. I know first hand what CH are all about and while I out grew mine and now I'm almost 60 years old, the remembrance of the pain, the agony and those thoughts of desperation still linger. Watching your son go through them is even worse and particularly when you're helpless to stop his pain.

Of course I can't say this will work for everyone, but what I can say and without any question whatsoever, is that this works miracles for my son, and when all the other abortives have had mixed results and absolutely NONE have not stopped the pain as fast as pot.

I hope this post does not get deleted as it may actually help some. I am not an advocate for illegal drug use, simply an advocate for CH relief and the scientific research done so far seems to substantiate my sons claim.

Should you live in a state where Medical marijuana is obtainable, consider speaking with your doctor. There are also doctors listed on the NORML site by state who support it's use for medical purposes ONLY.

My hope in posting this is that it actually helps someone, so I took my time to post this. This is just an alternative to consider should you deem necessary or appropriate to take more drastic measures.
Back to top
  
 
IP Logged
 
Melissa
CH.com Moderator
CH.com Alumnus
*****
Offline


Don't give up!


Posts: 7238
Central WI, USA
Gender: female
Re: An abortive that actually works.
Reply #1 - Mar 18th, 2009 at 9:41am
 
MartinL,

Hello and welcome.  If you do a search of this site, there have been threads brought up about the use of weed and CH.  For a majority of cluster sufferers, pot makes the cluster headaches worse, not better.  I also have not heard of pot aborting a CH either.

Please know that your post might be a source of contention for some of the members here.  I am glad to hear that your son found something that works for him, but I cannot help but be a bit skeptical.  I hope you understand.

Take care,
Melissa
Back to top
« Last Edit: Mar 18th, 2009 at 9:43am by Melissa »  

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way.  ~Bernie S. Siegel
https://www.facebook.com/mellymoo92  
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: An abortive that actually works.
Reply #2 - Mar 18th, 2009 at 9:45am
 
As far as an abortive goes, if pot works for him, he would be a one in 10 million case. Vaso constrictors have the best track record of aborting CH. If Marijuana, a vaso dialator, aborts his attacks....it would truly make him an unusual case.

Joe
Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
MartinL
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 22
Re: An abortive that actually works.
Reply #3 - Mar 18th, 2009 at 10:28am
 
I was skeptical as well and had all sorts of personal issues but for whatever reason it works for him. This is not an endorsement, simply an observation.

As most of us have tried everything under the sun, this might be a consideration. He is completely and utterly opposed to LSD/LSA/Shrooms and as a matter of fact I spoke to him this morning in which he indicated a headache earlier. I asked him if he took the tincture and he said no, that he used his other abortive. Clearly he's opposed to taking drugs of any kind, except in the most dire of cases.

As stated, it may  not work  for all, but clearly shows signs of eliminating it for some. As all treatments conventional and not, YMMV.

My abortive was Sansert. It worked for me but is not currently available in the USA.

I wont defend, endorse or argue about the merits of this as there is nothing in this thread that will be a benefit to my son. All I did is report what his finding were in hopes of helping others. I see now my good intentions were scoffed at. Sorry, I wasted my time and your bandwidth.

Good luck to you.



Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: An abortive that actually works.
Reply #4 - Mar 18th, 2009 at 10:33am
 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

       Kinder gentler Potter
Back to top
  
 
IP Logged
 
LeLimey
Ex Member



Re: An abortive that actually works.
Reply #5 - Mar 18th, 2009 at 10:49am
 
Martin its' true you can no longer get Sansert in the US however, you can get methysergide which is the same drug without the brand name made up by a compounding chemist. Many clusterheads do so and I just wanted to bring that to your attention

This is not meant as a rude comment so please understand how I'm making it!!

When was your son diagnosed with CH? Did he have an MRI? The reason I ask is it's truly difficult to understand how using a vaso dilator on a vaso dilating condition where every other treatment requires vaso constriction for efficacy is pretty incomprehensible.

I'm very pleased it is aborting his pain, I'm just kind of not sure it IS CH.

This is not meant to be confrontational at all, merely concerned. I'm more concerned he could have another headache condition or something more insidious going on.

There are some pretty grim HA types and the fact is that with over 600 HA types some symptoms may overlap. It may also be that he has a secondary headache condition in addition to CH.

My personal opinion would be that he needs to see a headache specialist neuro asap and determine what is going on.

Regards to you both and I hope pain free time continues

Helen
Back to top
  
 
IP Logged
 
Mrs Deej
YaBB Administrator
*****
Offline


My life is what I make
it, and it's beautiful!


Posts: 1348
Tornado Alley
Gender: female
Re: An abortive that actually works.
Reply #6 - Mar 18th, 2009 at 11:01am
 
Has he tried O2?  It's less expensive and legal...
Back to top
  

"I don't know the key to success, but the key to failure is trying to please everybody" - Bill Cosby
WWW MrsDeej 1514951301  
IP Logged
 
Kimmie
CH.com Veteran
***
Offline


OW!!


Posts: 187
US
Gender: female
Re: An abortive that actually works.
Reply #7 - Mar 18th, 2009 at 12:10pm
 
I read the link you posted.

It seemed strange that they would post benefits of "Hannabis' from only doing research on that ONE 19 yr old kid. That just doesn't sound right.

On the other hand, if they had done it on 20-30 CH males and females and reported their findings, I may have taken a bit more interest.

But only doing the study on one individual instantly loses my interest.

Kimmie
Back to top
  

To accept the challenge is the destiny of leadership.
WWW kimberlydismuke  
IP Logged
 
Chad
CH.com Hall of Famer
*****
Offline




Posts: 738
Emmaus, PA
Gender: male
Re: An abortive that actually works.
Reply #8 - Mar 18th, 2009 at 12:32pm
 
I would say that 99.9% (that 0.1% would be your son) of us would say that ganja triggers clusters.  End of story!

I also never heard of a "former" cluster sufferer.
You're just in a LONG remission my friend.

Chad
Back to top
  

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!
 
IP Logged
 
icedragon
Ex Member



Re: An abortive that actually works.
Reply #9 - Mar 18th, 2009 at 12:39pm
 
Kimmie,
I believe this is a single case study they are reporting on to show something out of the norm.  This could lead to more extensive research in the future.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

I get the impression that Martin's son read the article, and this link from the article, and tried it with positive results.  Rare indeed, and absolutely note worthy...Thank you Martin.

Thomas
Back to top
« Last Edit: Mar 18th, 2009 at 12:54pm by N/A »  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: An abortive that actually works.
Reply #10 - Mar 18th, 2009 at 1:42pm
 
This thread should be re-titled: An abortive that actually worked for my son.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: An abortive that actually works.
Reply #11 - Mar 18th, 2009 at 1:45pm
 
Brew wrote on Mar 18th, 2009 at 1:42pm:
This thread should be re-titled: An abortive that actually worked for my son.



    And one other feller.

       Kinder gentler Potter
Back to top
  
 
IP Logged
 
black
CH.com Old Timer
****
Offline


I Love CH.com!


Posts: 347
Greece,Athens
Gender: male
Re: An abortive that actually works.
Reply #12 - Mar 18th, 2009 at 3:03pm
 
i dont get it.
How can you be so sure in only a week's time that it works?
How do u know if its not a low cycle or just heavy shadows?
Your son isn't curious about getting in this site himself???
how come you dont ask anyone if they have ever tried this???
aren't you curious yourself???
if this works as you claim in a only a week's time how come you
weren't here previous week when nothing worked?? 
what kind of medicine is sansert??is there any similar under other brand name?care to discuss?
and finally what are your intentions??not implying anything
just direct question.

Back to top
  

Oh come on!it's just water.It can't be that bad!
 
IP Logged
 
MJ
CH.com Hall of Famer
*****
Offline




Posts: 1205
x1||USA|usa|299|85|MN
Gender: male
Re: An abortive that actually works.
Reply #13 - Mar 18th, 2009 at 3:20pm
 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Robbins MS, Tarshish S, Solomon S, Grosberg BM.
From The Montefiore Headache Center, Saul R. Korey Department of Neurology, Albert Einstein College of Medicine, Bronx, NY, USA.

Pharmacological preparations of cannabinoid compounds have a variety of therapeutic uses in medicine, including different pain syndromes, but have not been previously reported as beneficial for cluster headache. We present a patient with cluster headache who was refractory to multiple acute and preventive medications but successfully aborted his attacks with recreational marijuana use; subsequent use of dronabinol provided equally effective pain relief. The beneficial effect may be related to the high concentration of cannabinoid receptors in the hypothalamus, which has been implicated as a site of dysfunction in neuroimaging studies of patients with cluster headache.

PMID: 19220500 [PubMed - as supplied by publisher]
Back to top
  

MJ
 
IP Logged
 
Kimmie
CH.com Veteran
***
Offline


OW!!


Posts: 187
US
Gender: female
Re: An abortive that actually works.
Reply #14 - Mar 18th, 2009 at 3:33pm
 
Don't try to be overly cynical sounding Black.

We truely want these people to stick around and try not to scare em away.
Back to top
  

To accept the challenge is the destiny of leadership.
WWW kimberlydismuke  
IP Logged
 
Chad
CH.com Hall of Famer
*****
Offline




Posts: 738
Emmaus, PA
Gender: male
Re: An abortive that actually works.
Reply #15 - Mar 18th, 2009 at 3:45pm
 
MartinL wrote on Mar 18th, 2009 at 9:11am:
I am a former CH sufferer. 

How can YOU be a "former CH sufferer"????

I know nobody here that has been cured.
Back to top
  

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!
 
IP Logged
 
Kimmie
CH.com Veteran
***
Offline


OW!!


Posts: 187
US
Gender: female
Re: An abortive that actually works.
Reply #16 - Mar 18th, 2009 at 4:06pm
 
..............Yet


(Just my positive spin of the day)
Back to top
  

To accept the challenge is the destiny of leadership.
WWW kimberlydismuke  
IP Logged
 
Marc
Ex Member
****




Gender: male
Re: An abortive that actually works.
Reply #17 - Mar 18th, 2009 at 4:21pm
 
Chad wrote on Mar 18th, 2009 at 3:45pm:
MartinL wrote on Mar 18th, 2009 at 9:11am:
I am a former CH sufferer.  

How can YOU be a "former CH sufferer"????

I know nobody here that has been cured.


I haven't had a CH since about 11:45AM, so as far as I'm concerned - I'm a former CH sufferer for now.

Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: An abortive that actually works.
Reply #18 - Mar 18th, 2009 at 4:25pm
 
black wrote on Mar 18th, 2009 at 3:03pm:
i dont get it.
How can you be so sure in only a week's time that it works?
How do u know if its not a low cycle or just heavy shadows?
Your son isn't curious about getting in this site himself???
how come you dont ask anyone if they have ever tried this???
aren't you curious yourself???
if this works as you claim in a only a week's time how come you
weren't here previous week when nothing worked??  
what kind of medicine is sansert??is there any similar under other brand name?care to discuss?
and finally what are your intentions??not implying anything
just direct question.


Sansert is a brand name for methysergide maleate, and it is NOT used as an abortive, as was implied by MartinL. It is used as a preventative.

I'm on it right now - 2mg 3x/day. And it can be gotten in the US - it's just not manufactured by a big drug company anymore. One has to obtain it either through Canada (I got a one-month supply several years ago for about $120), or through a compounding pharmacy.

I believe it was developed about 50 years ago by chemists to have the same type of headache preventing effect on neuro-receptors as LSD did without the psychadelic side-effects. It has some side-effects of its own (increased risk of fibrosis of the kidneys and heart valves), therefore you need to take a one-month holiday every 6 months you take it.

Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
MartinL
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 22
Re: An abortive that actually works.
Reply #19 - Mar 18th, 2009 at 4:51pm
 
I wasn't even going to post back on this site. There's nothing in this method for me one way or another. But I will clear up some confusion.

My son is 26 years old. I am near 60. My clusters stopped near the age of 35. Both my sons and mine were episodic.

He cycles 3 times a year on average, sometimes more.

How, why this works for him, I have no clue but it's a near instant abort. While I hate the idea of the drug, I am grateful for the instant relief this gives him. I'm not scientist, I'm just a Dad.

Quoting from that article: In 2007, investigators at Italy’s University of Perugia, Department of Public Health, reported that patients with chronic migraines possessed "significantly lower" levels of the endogenous cannabinoids anandamide and 2-arachidonylglycerol (2-AG) in their platelets compared to age-matched controls.

"These data support the potential involvement of a dysfunctioning of the endocannabinoid and serotonergic systems in the pathology of chronic migraine and medication-overuse headaches," they concluded.

I could not find the other/article study on this, if you look on Google, you may find something. The article mentioned something about the canniboids attaching themselves to the hypothalamus. They linked a dysfunctional hypothalamus with CH.

I do not pretend to know what's going on. What I can say is this, it appears to completely reverse the onset. My guess is that it is not blocking the pain only because my son reports no symptoms at all, not even that after phase dull throb we know so well.

As a matter of fact, while I was typing this, my son called. He said a CH was coming on, 1/2 eyedropper of the tincture did it again and he believed it was two minutes. He reported he felt perfectly fine and no symptoms of a headache at ALL.

Is a week long enough? Well, one try is enough to tell, it either does or does not. As he's is a full cycle now, with two or more headaches a day, this is an easy one to test. It works for you yes or no. It does for him and yes he's has been member of this site at one time.

Try it or don't it's up to you. I just thought I would pass on some potentially good news. If it helps even one person out there, my job is done.

I hope everyone cooler heads and shorter cycles.
Back to top
  
 
IP Logged
 
ANNSIE
Ex Member



Re: An abortive that actually works.
Reply #20 - Mar 18th, 2009 at 5:18pm
 

My only concern reading this topic is the ADDICTIVENESS of any pain relief medication, especially cannaboids or opiods.

Here we are discussing the use of an illegal and HIGHLY ADDICTIVE chemical as an abortive. Its not a preventive, its an abortive, meaning that it needs to be used again and again, at each and every headache attack for it to work for the length of the cycle.

We all know that during a high cycle, one can get as many as 6-8 attacks a day, with most having around 4. The cycle often lasts several weeks, or even several months. For a person to not use any preventive, but only cannabis as abortive, will need to use it 5-6 ... 8 times a day every day for several weeks ... that person will develop a very strong addiction to cannabis.

We also know that like nicotine, once the brain is addicted to cannabis, it will change structure with new neural pathways and extra receptors developed. If it is found that the hypothalamus of a CHer has a higher number of cannaboid receptors, guess what the development of more of those receptors will do to his CH ? Yes, it will make his CH worse.

Martin, I strongly suggest that you follow up on your son's headaches very closely. Ask him, or you yourself, keep a diary of the headaches and of how much cannabis he is using, noting down any changes in the characteristic of his attacks. My bet is that you will find after the first couple of weeks, he will get more attacks ( some would be rebound headaches ), the attacks will be more severe and he will need more and more cannabis to control the situation. In the later date, once the addiction has started, he will get phantom headaches just so he can use more cannabis.

This is what happens to people who use opiod pain killers to control the pain of CH.

I know that cannabis is used widely as pain control in terminal conditions, but here the major difference is that these people are TERMINAL. They dont have much more than a few months to live, so it does not matter if they develop an addiction to anything, they are dying anyway. An episodic 28 years old should not be treated as terminal.

Now if we compare it to the other also illegal substances used for CH like seeds or shrooms .... They are different because they are used as PREVENTER not as ABORTIVE. From what I understand, you use seeds or shrooms to break the whole cycle and/or to block all attacks, you dont use it each and every time you get a headache. I am sure if one uses shrooms or seeds purely as a abortive, ie several times a day for days on end, one will end up with a much worse problem than CH to start with.

I would rather recommend your son try oxygen as abortive, its safe, its effective, cheaper, not illegal and most definitely non addictive. Oxygen does not alter the structure of the brain, cannabis does.

Painfree wishes to your son.

Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: An abortive that actually works.
Reply #21 - Mar 18th, 2009 at 5:38pm
 
Quote:
My only concern reading this topic is the ADDICTIVENESS of any pain relief medication, especially cannaboids or opiods.

Here we are discussing the use of an illegal and HIGHLY ADDICTIVE chemical as an abortive. Its not a preventive, its an abortive, meaning that it needs to be used again and again, at each and every headache attack for it to work for the length of the cycle.

We all know that during a high cycle, one can get as many as 6-8 attacks a day, with most having around 4. The cycle often lasts several weeks, or even several months. For a person to not use any preventive, but only cannabis as abortive, will need to use it 5-6 ... 8 times a day every day for several weeks ... that person will develop a very strong addiction to cannabis.

We also know that like nicotine, once the brain is addicted to cannabis, it will change structure with new neural pathways and extra receptors developed. If it is found that the hypothalamus of a CHer has a higher number of cannaboid receptors, guess what the development of more of those receptors will do to his CH ? Yes, it will make his CH worse.

Martin, I strongly suggest that you follow up on your son's headaches very closely. Ask him, or you yourself, keep a diary of the headaches and of how much cannabis he is using, noting down any changes in the characteristic of his attacks. My bet is that you will find after the first couple of weeks, he will get more attacks ( some would be rebound headaches ), the attacks will be more severe and he will need more and more cannabis to control the situation. In the later date, once the addiction has started, he will get phantom headaches just so he can use more cannabis.

This is what happens to people who use opiod pain killers to control the pain of CH.

I know that cannabis is used widely as pain control in terminal conditions, but here the major difference is that these people are TERMINAL. They dont have much more than a few months to live, so it does not matter if they develop an addiction to anything, they are dying anyway. An episodic 28 years old should not be treated as terminal.

Now if we compare it to the other also illegal substances used for CH like seeds or shrooms .... They are different because they are used as PREVENTER not as ABORTIVE. From what I understand, you use seeds or shrooms to break the whole cycle and/or to block all attacks, you dont use it each and every time you get a headache. I am sure if one uses shrooms or seeds purely as a abortive, ie several times a day for days on end, one will end up with a much worse problem than CH to start with.

I would rather recommend your son try oxygen as abortive, its safe, its effective, cheaper, not illegal and most definitely non addictive. Oxygen does not alter the structure of the brain, cannabis does.

Painfree wishes to your son.



  You as a highly respected physician should know that cannabis is not addictive. 

             Kinder gentler Potter
Back to top
  
 
IP Logged
 
ANNSIE
Ex Member



Re: An abortive that actually works.
Reply #22 - Mar 18th, 2009 at 5:57pm
 

Potter, I appreciate your kind commend and personally I have never used cannabis so I dont know how addictive it would be to me.

From what I have read, learnt, observed, talked to people from all walks of life who use cannabis, however, is that yes it is definitely addictive. It is not as bad as say cocaine or crack or ice, but it is addictive.

Cannabis is considered the softer drug, the less harmful drug. Many people starting out with cannabis tend to move from it to harder core drugs. Once they have tried the likes of cocaine or meth, they look back at cannabis and see it as nothing. Those who stay with cannabis though, do experience withdrawal and craving, which are symptoms of addiction.

I am sure the degree of addictiveness varies in different individual and from what you have posted through the years here I believe that personally you have found it not as addictive as other substances, ie you could stop it more easily than others but that would be your personal experience only.

The concensus out there would be that yes cannabis is addictive.

Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: An abortive that actually works.
Reply #23 - Mar 18th, 2009 at 5:59pm
 
Quote:
Potter, I appreciate your kind commend and personally I have never used cannabis so I dont know how addictive it would be to me.

From what I have read, learnt, observed, talked to people from all walks of life who use cannabis, however, is that yes it is definitely addictive. It is not as bad as say cocaine or crack or ice, but it is addictive.

Cannabis is considered the softer drug, the less harmful drug. Many people starting out with cannabis tend to move from it to harder core drugs. Once they have tried the likes of cocaine or meth, they look back at cannabis and see it as nothing. Those who stay with cannabis though, do experience withdrawal and craving, which are symptoms of addiction.

I am sure the degree of addictiveness varies in different individual and from what you have posted through the years here I believe that personally you have found it not as addictive as other substances, ie you could stop it more easily than others but that would be your personal experience only.

The concensus out there would be that yes cannabis is addictive.


You should be quiet now.

     Potter
Back to top
  
 
IP Logged
 
ANNSIE
Ex Member



Re: An abortive that actually works.
Reply #24 - Mar 18th, 2009 at 6:07pm
 
Potter wrote on Mar 18th, 2009 at 5:59pm:
You should be quiet now.

     Potter




Indeed, I have said what I wanted to say in this thread, I will be quiet now  Smiley


Back to top
  
 
IP Logged
 
Pages: 1 2 3 4
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!