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bigmenawa CH.com Junior Offline I Love CH.com! Posts: 47 Boaz, Alabama Gender:	Does your scalp feel numb? Mar 6^th, 2009 at 10:15pm Everytime I have an episode and that is every night or morning between 3 and 4 am, I was wondering if there is anyone else that has the feeling that their scalp is numb the next day. This is always on the side I have the CH which is my left side. This is the strangest feeling and is with me the entire cluster.
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Jennifer CH.com Alumnus Offline Posts: 3265 Supply, VA Gender:	Re: Does your scalp feel numb? Reply #1 - Mar 6^th, 2009 at 10:24pm I don't get numb, but I do get what I call this "scalp crawly thing". Cant explain it, but its like under the skin. Hate that shit
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bigmenawa CH.com Junior Offline I Love CH.com! Posts: 47 Boaz, Alabama Gender:	Re: Does your scalp feel numb? Reply #2 - Mar 6^th, 2009 at 11:01pm Thank you. The feeling i have is a numb, crawly type feeling like maybe something under your scapl moving around. I think I may have been abducted by aliens and some chip implanted in me. It's always present for the ntire cycle.
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Katie CH.com Junior Offline I just get 'those' headaches. Posts: 98 England	Re: Does your scalp feel numb? Reply #3 - Mar 7^th, 2009 at 2:35am That...yes I know that all too well. Have a look at neuropathic pain.
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bigmenawa CH.com Junior Offline I Love CH.com! Posts: 47 Boaz, Alabama Gender:	Re: Does your scalp feel numb? Reply #4 - Mar 7^th, 2009 at 1:34pm thank you katie. i will.
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purpleydog CH.com Alumnus Offline Posts: 2732	Re: Does your scalp feel numb? Reply #5 - Mar 7^th, 2009 at 4:34pm My scalp doesn't get that feeling, but the affected side of my face becomes numb from my cheekbones up to my hairline, and back to my ear. Always after getting hit. Neuro said that can happen after a hit. Sorry about the creepy crawlies, that would drive me nuts!
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bigmenawa CH.com Junior Offline I Love CH.com! Posts: 47 Boaz, Alabama Gender:	Re: Does your scalp feel numb? Reply #6 - Mar 7^th, 2009 at 4:52pm does behind your ear ever get sore? this is my second cycle and both times there has been soreness behind my left ear which is the affected side for me. this soreness doesn't start until about after the 7th or 8th hit. hurts like crap!!
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Sean C CH.com Alumnus Offline I Love CH.com! Posts: 123 Earth Gender:	Re: Does your scalp feel numb? Reply #7 - Mar 7^th, 2009 at 10:06pm I usually get a bad sunburn feeling on my scalp, about mid cycle. I'm not sure if its cluster related or if its from the ice bags or rubbing or meds. edit to add: I would get the "non stop twitch" in my scalp too but that was a lithium side effect, I had to stop taking it, it was making me insane.
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bigmenawa CH.com Junior Offline I Love CH.com! Posts: 47 Boaz, Alabama Gender:	Re: Does your scalp feel numb? Reply #8 - Mar 8^th, 2009 at 11:03am i'm only on topamax and zomig nasal spray. could the crawlies be a side effect from either of those. i've never erad that as a side effect. thanks
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Steambug

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clock watching

Posts: 63
Worcestershire, UK

Re: Does your scalp feel numb?
Reply #9 - Mar 15^th, 2009 at 4:58am

I get numb in my left temple around the attacks (current cycle is left sided), when I cycles before (and Ive only recently realised that they were cycles of CH) they were on the right and after the last one I've been left with almost permanent numbness in my right temple (very occasionally I have a tiny bit of feeling there).

I get something like the crawling feeling too I think during an attack (do folks call it that? not sure...) but I'd describe it as 'prickles' running from my left central forehead down both sides of my nose in addition to the other symptoms.

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cynjeep89 CH.com Alumnus Offline Posts: 1626 Delaware\| Gender:	Re: Does your scalp feel numb? Reply #10 - Mar 15^th, 2009 at 7:38pm Like Sean, I get the sunburned feeling on my scalp and at times, it feels like my scalp has been scalded. There is also a lot of pain in my jaw on the right side. Brushing my hair and teeth is always an adventure during a cycle.....hurts like heck.
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