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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Can anyone help me?

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Can anyone help me? (Read 1102 times)

Dave_C

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I love Red Bull!!

Posts: 27
x0|Huntington|USA||0|0|WV,West_Virginia
Gender: male

Can anyone help me?
Mar 4^th, 2009 at 8:39pm

I haven't been on here for a while, I have been PF for almost a year until about a week ago. They're back. I thought I was cured(ha ha) guess not.
Anyway on to my question, I would like to know if anyone knows of a good neurologist in the Eastern kentucky, southern Ohio, or Western West Virginia tri-state area. If you do please let me know who it is. Also anyoone here a sufferer and from this general area. Thanks alot.

THANK GOD FOR RED BULL!!!!!!

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Guiseppi

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San Diego to Florida 05-16-2011

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Re: Can anyone help me?
Reply #1 - Mar 4^th, 2009 at 8:44pm

If you can't find a good neuro, look for a GP who will listen to you. Then educate yourself, using this board, and work with your doc to formulate a treatment plan.

And get oxygen!!!!! You think red bull works fast, I can be completely pain free in as little as 6 minutes using oxygen. Danged near miraculous the way it works. Wishing you luck in your neuro search.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Can anyone help me? Reply #2 - Mar 4^th, 2009 at 9:39pm Dave, how far are you from Edgewood? Kentucky Dr. John Kelly Edgewood I took this from the OUCH site on "sufferer reccomended Doctors" Sad there is only one. I'll be moving to Kentucky this year from California. Western part though.
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Dave_C CH.com Junior Offline I love Red Bull!! Posts: 27 x0\|Huntington\|USA\|\|0\|0\|WV,West_Virginia Gender:	Re: Can anyone help me? Reply #3 - Mar 4^th, 2009 at 10:11pm Howdo I get oxygen, is it prescribed by a doctor, what do I do if happens at work, or when i can't get to the oxygen, use Red Bull I guess? Thanks fo rthe help, it is much appreciated.
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Linda_Howell

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Re: Can anyone help me?
Reply #4 - Mar 4^th, 2009 at 10:28pm

Dave,

Oxygen needs to be precribed by a physician yes. But any Dr. with an M.D. after their name can precribe it. It does not have to be a Neurologist.

This may take a while, but please read this link I'm giving you, start to end. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Our good friend Chuck put this together and it is the most readable as well as informing information you can read on this subject. Absorb this info. Ask questions right here and a lot of us will try to answer any questions you have.

Linda

Hurt people.....hurt people. Think about it.

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Bob Johnson

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"Only the educated are
free." -Epictetus

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Kennett Square, PA (USA)
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Re: Can anyone help me?
Reply #5 - Mar 5^th, 2009 at 7:30am

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Look for "Physician Finder" search box. Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

Bob Johnson

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Guiseppi

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Re: Can anyone help me?
Reply #6 - Mar 5^th, 2009 at 10:44am

I keep a tank at work with me. If you read Lindas link you'll see 02 comes in different sizes. An E-Tank will fit perfectly in one of those "soccer mom" chair bags. Tank, hose and regulator all fit. That way you aren't spooking everyone with a big medical looking rig.

Keep it under your desk, go to a quiet, "WELL VENTIALATED" area and 10 minutes later you're pain free and back to work. On cycle I always have one of my security blanket green tanks within sight!

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: Can anyone help me? Reply #7 - Mar 5^th, 2009 at 11:06am dave i can't recommend a good nuero but i do get down that way. huntington isn't far from the house. if you want to meet up and you know a good spot to park a semi truck i could stop by and we could talk about headaches. send me a pm w/ your #
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