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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Been over a year now

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Been over a year now (Read 612 times)

DeStijl

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Posts: 205
Lubbock, TX
Gender: male

Been over a year now
Mar 3^rd, 2009 at 9:33pm

Well, it's official. As of February 22 it had been a year of HA's. I see my neuro again on the 10th, so let's see what he says. HE seems to think that the meds are not working if I have a HA. I've told him that as long as they are down to 3 or 4 per week and no more than a k5 or so I am happy.

Now chronic. Should have known what with the HA's beginning to switch sides and my pattern going all haywire. Let's hope this stops sometime soon and just becomes the longest episodic episode. Bleh!

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Redd

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Posts: 8457
Stevens Point USA Wisconsin
Gender: female

Re: Been over a year now
Reply #1 - Mar 3^rd, 2009 at 10:44pm

It's been known to happen just that way. 16 or 18 or even 24 month long cycles. I believe Brew and Gena have both had cycles lasting more than a year, only to go back out of cycle again. Thats the thing about this beast of ours. Each of us are different, and the cycles are different. For some they are 14-16 weeks. For some, they haven't ended for years.

I can see your point about the meds giving you K5's and under only 3-4 times week as a success. Just note, that some have found that staying on meds have extrended their cycles longer than normal or usual.

Only you can make the call if you want to test that theory for yourself.

Besides...you said it yourself. You are Happy. Thats what counts the most.

"The goal of life living in agreement with Nature." ~Zeno

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Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: Been over a year now Reply #2 - Mar 6^th, 2009 at 7:11pm I sure hope it's one hell of a long cycle and you're just about to come out of it!!!!!!!!!!!!!!!!!!!!! Laurie
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